Re: Need Support - Told today I'm on Palliative Care
Posted: Mon Jul 29, 2019 2:28 pm
Good luck! I signed palliative care papers 4 years ago. My twins were 6 and I was 40. I am still here, doing good. I wish you best of luck!
Colon cancer (colorectal cancer) support forum
nynessie wrote:One month ago I had my CRS-HIPEC surgery. Cannot believe it's been a month already.
So far nothing to report, except that my husband tells me that when the surgeon came out to see him afterward, he said things went well and he was positive he'd gotten 99% of it. It was a long surgery - I went in at 8am, and my husband said the doctor came out around 8-8:30pm. Paul was able to see me once I got into the ICU at 10:30pm. He deserves a medal. He said the hardest part was the lack of progress reports all day.
I am looking forward to seeing Dr. Cusack on Monday, and will also see my oncologist Dr Jeff Clark. I'm not sure about everything that was done - though know it included sigmoid, liver, small intestine, diaphragm resections with a complete hysterectomy. I've an incision a little longer than 13 inches with about 48 staples.
I am doing well, at least with the PT and napping parts.
Thanks for everyone's support, and I will update next week.
nynessie wrote:Pathology says all the margins are clean. YAY!
nynessie wrote:I'm doing fine at the moment, trying to gain weight, and beginning to get braver with my food choices. My body seems to be following a path of its own, with my emotions all over the place, and I'm hoping it's just a little more time before everything settles down. Physical therapy is fantastic, and I'm very glad I am doing this. I go twice a week, working on my posture, endurance, stability, and strength. A lot of walking too. Surgeon has not signed off yet on any exercise involving my abdomen. Staples are out, and of the two dozen or so steri-strips, only five stubbornly remain.
I'm hoping I can get back into my normal clothes soon as it's getting cold here in the northeast. I am rather tired of my two pairs of baggy sweatpants. Also find it funny how much I want to wear a bra again. Darn incision went a little higher than he said, so the bad is just a bit too tight. Anyway, I've set Friday as my day to try on some fall clothes. Wish me luck!