mpbser wrote:Spazzyjanet,
Good to hear that he is having an MRI. I have to advocate for my husband to get them instead of CTs as his CTs never picked up on his liver tumor. (I honestly don't know why the oncologist had ordered a CT in May when he originally said that surveillance was going to be with MRIs.) The gold standard is abdominal MRI for liver mets and Chest CTs to watch out for lung mets. That is what we are having done this fall.
With the best care you can possibly get and super strong advocacy, that 40% can get bumped to 80%. I'm definitely not the most well liked patients' spouse by his doctors, but I'm always making sure that my husband is getting the best treatment the medical system can provide (within our means).
Spazzyjanet wrote:I've noticed that many of the successful Stage 4's used Avastin in their FOLFOX regime.
I am still waiting on the genome test on the tumor for that, BUT I ran my raw data file from 23 and me through a site called selfdecode.com and it says that I have an snp that is associated with shorter overall progression-free survival on this drug (Avastin) and now I am pretty scared.
Will the tumor genome test show the same thing as my raw data file? Or are these different altogether? If so, is that going to significantly decrease my chances?
cartech78 wrote:Hi all, I am new here as of today and this is my first post. I was just diagnosed with stage 4 CRC on 10/5. I am a 40 year old male. I went for a colonoscopy due to stomach issues and woke up from that procedure with my wife standing over me crying her eyes out and being told i had to go straight to hospital for an emergency surgery as my colon was 98% blocked. They did a bunch of CT scans on me and said i had 6 or 7 mets on my liver and sent me straight to colon Resection surgery. The surgeon removed a tumor the size of a baseball from my left side colon with clean margins. I have since been told my liver is not operable to remove the cancer from there. I am almost three weeks out now from that surgery and got my port installed today for Chemo which they want to start Monday the 29th. So far the only good news i have received is the Mayo clinic is having me come out to MN on 1/8/2019. I want to thank everyone who took their time to post their story on this post as it has given me the most hope i have had since diagnosis. I am having a hard time even looking at my sweet 8 yo daughter without breaking down into tears. This post has helped immensely. Thank you all.
teacher2017 wrote:cartech78 wrote:Hi all, I am new here as of today and this is my first post. I was just diagnosed with stage 4 CRC on 10/5. I am a 40 year old male. I went for a colonoscopy due to stomach issues and woke up from that procedure with my wife standing over me crying her eyes out and being told i had to go straight to hospital for an emergency surgery as my colon was 98% blocked. They did a bunch of CT scans on me and said i had 6 or 7 mets on my liver and sent me straight to colon Resection surgery. The surgeon removed a tumor the size of a baseball from my left side colon with clean margins. I have since been told my liver is not operable to remove the cancer from there. I am almost three weeks out now from that surgery and got my port installed today for Chemo which they want to start Monday the 29th. So far the only good news i have received is the Mayo clinic is having me come out to MN on 1/8/2019. I want to thank everyone who took their time to post their story on this post as it has given me the most hope i have had since diagnosis. I am having a hard time even looking at my sweet 8 yo daughter without breaking down into tears. This post has helped immensely. Thank you all.
Hi there! I know this is overwhelming and frightening. We all understand it well. Know that you can beat this. Focus on doing every chemo and staying healthy. Be as normal as possible. People handle this as a chronic illness not a terminal disease. The objective is to operable. Look into the Hai pump and ask a million questions. You can do this. Focus and get into the game. That 8 year old needs to see you fight. Stay in touch...
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