I have been at this for over seven year. I was a BAD stage IV (my CEA was over 2,600 when diagnosed in 2011) and my liver was FULL of cancer in every lobe and there were suspicious nodules in my lungs. My children were 4 and 8...and I was the only working parent...who also supported my Mom. I got lots and lots of opinions...and saw many doctors. Dr. Kemeny at MSKCC saved my life with an HAI pump to my liver. I had lots and lots of chemo during the whole process and 11 RFA's to lung mets as well as a liver resection and resection of one lobe of my left lung. I have most recently been treated by another doctor (you have to find the right treatments and doctors for yourself...be your own advocate) and I am receiving Keytruda (immunotherapy off-label.) As of today, my CEA is 1.0 and I am NED. There is hope. There is hope!
Mommy to Jack (8) now (16) and Katie (4) now (12)
(My Most Precious Things)
Dx 8/11 Stage IV CRC (liver mets) CEA 2,600+
9/11 Folfiri 2/12: Failed Liver Resection
5/12 HAI pump/removed primary
4/13 Liver Resection
8/13-12/15 (10) RFAs lungs
5/17: Upper Left Lobe of lung resected.
02/18: 3 new mets lymph nodes lung:
05/18: Keytruda (MSS w/Intermediate TMB): CEA: 66.4, 39.2, 23.8, 13, 3.5 1.8, 1.0, 2.8 3.9, 5.0, 5.6, 1.5, .8, .8, 1.1, 1.1, .7
7/18; 9/18; 11/18; 2/19 Clear CT scans