DH Scan is November

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pantufla
Posts: 133
Joined: Thu Dec 03, 2015 12:44 pm
Facebook Username: kelleykulina

DH Scan is November

Postby pantufla » Mon Oct 08, 2018 3:49 pm

Hi everyone. I'm starting to get nervous. It's that time of year again and I'm bracing myself. If you look at my signature line, has anyone had this many nodes and nodules and had everything be ok? Doc says, "They have been there since the beginning, don't worry. They would have doubled, etc.etc." The radiologist last year said to follow them more closely. The largest left-sided central mesenteric lymph node was 13 mm last November. At the time of diagnosis it was 10 mm (1 cm) from what I read. Doc says no big deal. DH doesn't want to go to another doctor.

I guess my real question is whether or not all of these nodes and nodules would really be nothing in your experience?

Thanks everyone.
DH T2 N1b M0. 3/15 positive nodes.
Stage IIIA moderately differentiated adenocarcinoma.
Tumor size 6 cm.
Left hemicolectomy 10/26/15.
FOLFOX 11/30/15 to 5/2/16, full 12 cycles.
Lynch negative.
10/3/16 CT scan clear.
11/10/17 CT: "Focal opacity along the left lower lung, 7 mm. Two small peripheral opacities along the right lower lobe, 2 to 3 mm. A few small to mildly prominent left-sided central mesenteric nodes, up to 13 mm. There are subcentimeter retroperitoneal lymph nodes."

hiker
Posts: 86
Joined: Thu Aug 09, 2018 10:15 am

Re: DH Scan is November

Postby hiker » Mon Oct 08, 2018 4:01 pm

Absolutely they could be nothing...and they could be something. Can't know without proper tests. The fact that your husband's doctor only has him doing CTs every year either means he doesn't think there's a problem or he's not a very good doctor. And since the radiologist recommended watching them more closely, I would think that would mean scans often. My oncologist had me scanned every 2 months while on chemo, now every 3 months post-chemo, with an MRI of just my liver every other time since my mets were in the liver. She's incredibly thorough.

I think I would ask the doctor if scans that infrequently are really adequate when questionable nodes have been noted.

hiker
Colonoscopy 2/17, 5cm tumor descending
Diagnosed stage iv, liver mets 3/17
Colon resection 3/17
Told surgery not an option, get my affairs in order
Meet w/MSK team 5/01/17
Folfox(3rds) 5/17-6/17
Liver resection/implant HAI pump 7/17
HAI pump chemo(5rds) 8/17-2/18
Folfiri+Vectibix(11rds) 8/17-2/18
Spot on chest CT 10/17
Lung biopsy (that was fun) 11/17
Nocardia bacterial infection w/spread to brain (this is serious) 11/17
IV antibiotics 12/17-2/18
Oral antibiotics 3/18-12/18
Clear of cancer since surgery

AppleTree
Posts: 248
Joined: Fri Mar 18, 2016 8:16 am

Re: DH Scan is November

Postby AppleTree » Mon Oct 08, 2018 7:18 pm

I finished chemo in April. Had a questionable CT scan in June, so DR ordered a PET. My PET was clear, but she still ordered another PET in 3 months, just to be sure. So, I have another PET scan next week. If that one is clear, then my next scan will be in 6 months. I wonder if the American Cancer Society has a recommendation for scanning? If they do, you could show the DR. I would think the DR would scan at least every 6 months for awhile.
Diag Feb 5, 2016 Age 45
3 cm tumor 5 cm from verge
Radiation + Xeloda pills - 3000mg 5x week
3/14 - 4/16 - 25 sessions
Shrank just over 50% L nodes 0/13
Remove rectum with temp Ileo 6/17
Reversal 7/20 due to infection
Acute hepatitis August. Chemo cancelled
June to September 2016 - 58 days in hospital

2017
6/16, MRI shadow in lung
Pet - 6.6mm Met in Upper right lobe
7/30 VAT surgery Mass General/Boston
8/24 port
8/30 - 4/28 Folfox. 12 rounds
2018
June CT shows new lung Mets.
July PET...CLEAR!

pantufla
Posts: 133
Joined: Thu Dec 03, 2015 12:44 pm
Facebook Username: kelleykulina

Re: DH Scan is November

Postby pantufla » Tue Oct 09, 2018 9:20 am

Thanks.
DH T2 N1b M0. 3/15 positive nodes.
Stage IIIA moderately differentiated adenocarcinoma.
Tumor size 6 cm.
Left hemicolectomy 10/26/15.
FOLFOX 11/30/15 to 5/2/16, full 12 cycles.
Lynch negative.
10/3/16 CT scan clear.
11/10/17 CT: "Focal opacity along the left lower lung, 7 mm. Two small peripheral opacities along the right lower lobe, 2 to 3 mm. A few small to mildly prominent left-sided central mesenteric nodes, up to 13 mm. There are subcentimeter retroperitoneal lymph nodes."


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