DH wondering how others dealt with pain and how long it lasts?

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Joined: Sat Sep 22, 2018 5:05 pm

DH wondering how others dealt with pain and how long it lasts?

Postby rosegirl » Sun Oct 07, 2018 4:05 pm

My DH is experiencing more pain now that he knows his diagnosis than before! He was wondering how others dealt with the pain. He has started taking Percoset. He takes Miralax/stool softeners daily, takes Epson salt baths several times a day. Chemo (5-FU pump) and radiation start tomorrow for 6 weeks and we would like to know how soon others experienced relief. Any positive stories out there I can share with him? Thanks!
Wife to DH 45
Lower rectum
3 cm
Stage 3A or B
1 positive Lymph Node
CEA 3.35
Starting 5-FU 10/8/18

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Joined: Sat Aug 25, 2018 8:09 pm
Facebook Username: Matthew

Re: DH wondering how others dealt with pain and how long it lasts?

Postby sbpaq1 » Sun Oct 07, 2018 8:25 pm

Miralax and Sennakot to keep things moving was the best thing for me prior to chemo/radiation, it made going more often and definitely on the very loose side. That kept the pain of being blocked or spending too much time in pain at bay. Assuming hes having the gut type pain a heating pad also helped a lot.

The pain introduced from Rad/Chemo was a whole different beast, I kept up the Miralax/Sennakot & heating pad but was also prescribed suppositories that helped bring down some of the issues.
Age 30, Male
07/05/18 - Colonoscopy, T3N2M0/Stage IIIB Rectal, MSS and High Grade
09/10/18 - 28 Days Xeloda/Radiation
10/11/18 - MRI decrease in Tumor & Nodes
11/19/18 - lAR
12/06/18 - Bad news, Surgery margins inconclusive, 17 of 19 nodes, PNI & LVI
12/09/18 - Bad news, 2 spots on liver and 1 on Lung, XELOX start
02/15/19 - Good News! Lung spot gone, Liver Spot down to 1, Nodes shrinking.
06/15/19 - bad news! Rectal recurrence and node increase
07/01/19 - folfiri
08/23/19 - surgery consult unc

Posts: 118
Joined: Tue Nov 21, 2017 3:48 pm
Location: Phoenix, Az

Re: DH wondering how others dealt with pain and how long it lasts?

Postby martd » Sun Oct 07, 2018 8:54 pm

I experienced relief fairly quick, within the first couple of treatments and that was with only chemo no radiation. It will all depend on his response. The beginning is rough but once you get settled into treatment it gets easier. Hope it all goes well for him.

49 y/o male dx 11/2017 crc
Stage 4 with 17 liver Mets, cea 490
12 rounds folfox , avastin
5/18 cea 2.8 liver resection and pve
7/18 part 2 liver resection, remove right side of liver
Surgical site mrsa infection, wound vac
8/18 cea .9 cCR, rectal tumor is gone
Rectal surgery postponed, watch and wait
10/18 clear scan CEA .7
01/19 clear scan CEA .9
04/19 clear scan CEA .9
07/19 clear scan CEA 1.0

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