Stage 4 Hope

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Punky44
Posts: 498
Joined: Mon Oct 01, 2018 4:29 pm

Re: Stage 4 Hope

Postby Punky44 » Fri Oct 12, 2018 4:11 pm

Stu, I love that photo of your mom and I am so happy for you and her and hoping for a positive outcome for my mom just like this.
Caregiver to my amazing mom (68 at dx)
10/1/18 DX with rectal cancer; CEA 17
T3N2M0
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
6/28/19 Reversal and port out
CEA 2.1; 1.9; 2.6; 2.8; 2.3; 2.4; 3.0; 3.4; 3.1; 3.4; 3.0; 3.1; 2.6
Latest update: 8/21/23 Clear CT with CEA 2.6!

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.

User avatar
cecioboe
Posts: 597
Joined: Mon Oct 17, 2011 9:08 pm
Facebook Username: Ceci Lagarenne (Higgins)
Location: Texas

Re: Stage 4 Hope

Postby cecioboe » Sat Oct 13, 2018 12:27 am

That's so great! Big hugs all around!

Ceci
Wife to Jim Stage IV RC w/liver mets
DX 9/16/11
T3N1M1
Oct - Dec 2011 chemo/rad
1/04/12 ileo
1/16/12 LAR, liver resection
2/29/12 blockage, emer surg, ileo rev
4/16/12- 9/16/12 chemo
NED since 10/22/12
De-ported 6/24/16

cartech78
Posts: 78
Joined: Thu Oct 25, 2018 6:22 pm

Re: Stage 4 Hope

Postby cartech78 » Thu Oct 25, 2018 7:16 pm

Thats amazing! God Bless you and your mom!
40 Y/o male
Dx 10/5/18 stage lV CRC
Sg colon
23 inoperable liver mets largest 4.5 cm
Colon resection 10/6/18 clean margins
Starting FolFox on 11/18
2nd opinion at MSK on 12/18
HAI pump installed on 3/6/2019 also found 20 more small tumors on liver scans missed
7/2/2019 MRI and CT show only 2 liver tumors visible and they are shrunk by 3/4
11/25/19- Liver resection at MSK- got out all cancer and am NED. More scans and mop up chemo to follow.
1 month Scan clear! Jun/20 scans still clear. Off chemo since 3/20

mariane
Posts: 704
Joined: Sun Sep 13, 2015 6:16 pm

Re: Stage 4 Hope

Postby mariane » Thu Oct 25, 2018 9:27 pm

Stu, congratulations to your mum! I am so happy for you both. Your mum looks amazing.
You are a great cheerleader to your mum and us all here, Stu. Thank you.
mom of now 14 years old twins, dx @ 40 in 6/2015 with upper rectal cancer, 10+ liver mets, CEA 140
chemo: 8/2015 - 10/2016 - 4xFOLFIRINOX, 2xFOLFOX, 8xFOLFIRI, 10x5FU, HAI pump -12xFUDR
4 surgeries, complete pathological response
CEA<2 since 10/2015
NED since May 2016

I praise God for every day with my family!

bitchslapped
Posts: 1538
Joined: Tue Sep 09, 2014 3:23 pm
Location: PNW/USA

Re: Stage 4 Hope

Postby bitchslapped » Fri Oct 26, 2018 9:46 pm

Guess I'm late to the party! Just saw this post. Did your mum have a recent scan since Oct of last year & just not in your sig yet? It just doesn't get any better than clear scans. Your mamma is showing you how it's done, Stu :lol: :mrgreen:
Great photo of her & :?: (we'll call him mystery man).
No doubt mother & daughter are grateful for one another w/mutual admiration. Your mum for what she has had to endure & still w/a beautiful smile... & a daughter who continues to support her & "pay it forward".

Well done!

Best Wishes
BS
DSS,35YO,unresect mCRC DX 7/'14,lvr,LN,peri,rib
FOLFOX+Avstn 4 Rnds d/c 10/'14
Stent 9/'14
FOLFIRI+Avstn 10/'14
Gone From My Sight 2/20/15
Me:garden variety polyps + precancerous polyp, diverticulitis
Carergver x2 DH,DM dbl occupancy,'03-'10
DH dx 47YO mCRC,'04-'07, lvr, billiary tree fried x HAI
DM dx CC 85YO,CC,CHF,stroke,dementia,aphasia

stu
Posts: 1613
Joined: Sat Aug 17, 2013 5:46 pm

Re: Stage 4 Hope

Postby stu » Sat Oct 27, 2018 2:12 am

Hi Mariane ,
So lovely to hear from you and delighted you continue to do so well . The years are flying by!!!
Take care and I hope your family continues to do well .
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

stu
Posts: 1613
Joined: Sat Aug 17, 2013 5:46 pm

Re: Stage 4 Hope

Postby stu » Sat Oct 27, 2018 2:19 am

Hi Bitchslapped ,
She did indeed . It took a long time for the scan results to come through as we apparently have a staffing problem in the radiology unit but her specialist nurse phone to say it was good news .

That man is my wee Irish dad ! He will be eighty next year . He has a couple of health issues right now but on the whole going great .

Agh the signature . Never even thought about it . I will just pop off now and update . :lol:

My mother was just telling me I am becoming “ a wee boss” . I saw the funny side as it’s more a case of “ I can’t believe you were even contemplating doing that!!!” .

Anyway it’s all good news .

Take care,

Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

Euny0115
Posts: 4
Joined: Sat Oct 27, 2018 11:54 am

Re: Stage 4 Hope

Postby Euny0115 » Sat Oct 27, 2018 2:02 pm

My husband who’s only 23 years old got diagnosed with stage 4 cancer recently and stories like this give me so much strength. He will be starting chemo very soon, hopefully. Thank you truest for posting.

stu
Posts: 1613
Joined: Sat Aug 17, 2013 5:46 pm

Re: Stage 4 Hope

Postby stu » Sun Oct 28, 2018 11:29 am

Hi ,
I am so very sad to read that . Get the best medical team around him and seek out the windows of opportunity that come along .
I wish him every success with treatment and strength for you as you support him .
Keep hold of hope .
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

User avatar
mypinkheaven
Posts: 459
Joined: Fri May 20, 2016 4:29 pm
Facebook Username: Sally Cunningham
Contact:

Re: Stage 4 Hope

Postby mypinkheaven » Sun Oct 28, 2018 11:59 am

Thanks for the encouragement, Stu. Love the photo. That is you with your mum, isn't it?
MSS, KRAS Wild NRAS Mutated
9/2012 CRC IIB Lft Colectomy 0 lymph nodes 0 Chemo
10/2013 CT clear
11/15 CEA 2.7 to 4.6
11/15 Spread to uterus. Hysterectomy
2/16 Pelvic radiation 25, brachytherapy 3
4/16 - 6/16 Xeloda
6/16 CT Several lung nodules 5 mm
8/16 CT Nodules still present. Most stable. Some growth
11/16 Transfer to UCSD Moores
12/16 Folfox + Avastin failed
2/17 Folfiri + Erbitux
8/17 5FU+Erbitux No 5FU bolus
7/18 Spread to vagina
6/18 Folfiri + Avastin + Trametinib
6/18 CEA dropping

stu
Posts: 1613
Joined: Sat Aug 17, 2013 5:46 pm

Re: Stage 4 Hope

Postby stu » Sun Oct 28, 2018 12:53 pm

Image
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

stu
Posts: 1613
Joined: Sat Aug 17, 2013 5:46 pm

Re: Stage 4 Hope

Postby stu » Sun Oct 28, 2018 12:53 pm

Pinkheaven sometimes I do a bit of Photobombing!!
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

stu
Posts: 1613
Joined: Sat Aug 17, 2013 5:46 pm

Re: Stage 4 Hope

Postby stu » Sun Oct 28, 2018 2:05 pm

Pinkheaven , Stu is my son’s name!! It happened a long time ago when I was having trouble accessing the forum and it stuck !!!
Stu’s Mum
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

Lee
Posts: 6207
Joined: Sun Apr 16, 2006 4:09 pm

Re: Stage 4 Hope

Postby Lee » Sun Oct 28, 2018 3:07 pm

Congratulations to your mum and living in NEDville.

Nice pictures of your parents and of you and your son.

Totally awesome,

Lee

PS Your son has your eyes and nose.
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

mymom
Posts: 1299
Joined: Fri Aug 12, 2011 11:07 pm
Location: Connecticut

Re: Stage 4 Hope

Postby mymom » Mon Oct 29, 2018 10:01 pm

Wonderful!!!!!
Stage 4 CC DX 5/11
colon/livr rsct 5/11(1 met)
Folfox July-11/11
NED to 5/12
New Primry BC-4/12,Stage 1
2 livermet 5/2012
Liver rsct,HAI 6/12,Folfiri
NED to 10/13,1 liver met,ablation, Folfiri
NED to 12/14, another spot
3/15 NED
Ablation 1 liver met 10/15
1/16-current NED
6/22- small spot liver again, ablation oct 2023


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