Stage 4 Hope

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stu
Posts: 845
Joined: Sat Aug 17, 2013 5:46 pm

Stage 4 Hope

Postby stu » Sun Oct 07, 2018 8:07 am

Just to encourage all who are starting out with a stage 4 diagnosis.
Mum scanned well and has now entered her ninth year since diagnosis.
The first few years were rough but her quality of life is good .
Hope is gives a little light to some on this path.
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared

WarriorSpouse
Posts: 136
Joined: Tue Aug 16, 2016 9:02 pm

Re: Stage 4 Hope

Postby WarriorSpouse » Sun Oct 07, 2018 8:44 am

Great news Stu!
It is always good to read such great news on the Colon Talk community forum.
America sends your Mum warm thoughts and heartfelt wishes for continued good health and success!
WS
Spouse of wife 47 years old
10/2014, Stage IV Metastatic CC
Lymph node involvement 12/15, w/ positive PET on para-aortic lymph nodes.
5 cm sigmoid tumor resection as well as positive Virchow lymph node.
KRAS mut, Highly Differentiated, Lynch Negative
Folfox and Avastin 1 YR (Oxi for 5 months) NED 05/2015
Zeloda and Avastin since 01/2016
Chemo break 03/2017, back on Zeloda and Avastin 04/2017.

"...Perseverance is not a long race; it is many short races one after the other."
-Walter Elliot

teacher2017
Posts: 198
Joined: Sat Sep 09, 2017 1:18 pm
Facebook Username: Lydia Clark

Re: Stage 4 Hope

Postby teacher2017 » Sun Oct 07, 2018 7:50 pm

Wonderful news! Wishing her many more years! I can only hope!
48 year old female- mom of 2 (12,15)
DX stage 3c - 12/17 LN. T3
8" sigmoid resection Sept 22 2017
6.1cm tumor size
chemo -folfox 11/8/17-4/18
CEA level- 1.4 11/8/17
Colonoscopy- 5/30/18 - CLEAR!
Cea level- 1.8 6/1/18
Cea level- 2.1. 8/4/18
Sh$t has hit the fan- 8/10/18 Stage 4
1cm met in seg.8 liver
Liver resection- 9/12/18

Gravelyguy
Posts: 39
Joined: Thu Jul 05, 2018 6:03 pm

Re: Stage 4 Hope

Postby Gravelyguy » Sun Oct 07, 2018 10:08 pm

That is great news, Stu! It is so encouraging for those of us settling into this NED thing. Hope for many more years!

Dave
6/17 dx mCRC t3n1m1 very low rectal tumor 2 very small liver Mets

6/17 begin 4 rounds Folfox w/Vectibix
9/17 short course radiation
10/17 rectal and liver resection
11/17-3/18 8 rounds Folfox
6/18 NED!! Takedown
8/28/18 still NED! CEA .8 new low for me

User avatar
CRguy
Posts: 9612
Joined: Sun Feb 10, 2008 6:00 pm

Re: Stage 4 Hope

Postby CRguy » Mon Oct 08, 2018 12:09 am

Cheers Stu
Give Mum a hug from all of us
and one for you, too !!

Harmony
CRguy
Caregiver x 3
Stage IV A rectal cancer/lung met
11 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

dliu
Posts: 27
Joined: Sun Jun 03, 2018 7:16 am

Re: Stage 4 Hope

Postby dliu » Mon Oct 08, 2018 5:21 pm

This is such great news, stu!

All the best to you and your mum.
Caring for my mum, who had a sigmoid colectomy after CT scan (which also evidenced multiple liver mets)
09/05/2018 Dx Stage IV, 6/11 LN
28/05/2018 First round of FOLFOX + Avastin
CEA down from 6000+ (28/05/2018) to 843 (14/08/2018)

AppleTree
Posts: 222
Joined: Fri Mar 18, 2016 8:16 am

Re: Stage 4 Hope

Postby AppleTree » Mon Oct 08, 2018 7:12 pm

That is great news! Hope goes a long ways toward brightening someone's day. Thank you for sharing. We all celebrate every victory.
Diag Feb 5, 2016 Age 45
3 cm tumor 5 cm from verge
Radiation + Xeloda pills - 3000mg 5x week
3/14 - 4/16 - 25 sessions
Shrank just over 50% L nodes 0/13
Remove rectum with temp Ileo 6/17
Reversal 7/20 due to infection
Acute hepatitis August. Chemo cancelled
June to September 2016 - 58 days in hospital

2017
6/16, MRI shadow in lung
Pet - 6.6mm Met in Upper right lobe
7/30 VAT surgery Mass General/Boston
8/24 port
8/30 - 4/28 Folfox. 12 rounds
2018
June CT shows new lung Mets.
July PET...CLEAR!

stu
Posts: 845
Joined: Sat Aug 17, 2013 5:46 pm

Re: Stage 4 Hope

Postby stu » Tue Oct 09, 2018 3:22 am

Hello ,
Thank you so much for your good wishes .
My mum was so touched by them . She sincerely hoped it encourages people to press on and seek out windows of opportunity.
Much love to you all Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared

Spazzyjanet
Posts: 21
Joined: Mon Oct 01, 2018 3:28 pm
Facebook Username: Heather Stoker

Re: Stage 4 Hope

Postby Spazzyjanet » Tue Oct 09, 2018 3:49 am

As of yesterday, it seems that my diagnosis might be landing at Stage IV as well.

I woke up this morning and remembered and my chest lit up with panic and fear. My spreading, if/when confirmed Cancer is also just to the liver- for now.

I see that your Mom got a liver resection.

I have only spoken to a radiologist so far about about the possible spreading, but he made it sound like they would press with FOLFOX and then biopsy later.

I wonder whether we should be doing something more aggressive now?
40 yr old. Dx 9/2018, Stage IV
4.2 cm Tumor, PT3, PN2B
Grade 2, Moderately Differentiated, Invades through muscularis propria into periccolorectal tissues.
11 of 18 with metastatic adenocarcinoma w/soft tissue metastasis + removal of one cancerous node in Peritoneum.
9/2018, Colostomy (partial) and Removal of Tumer/Nodes- Proximal Colon Margin Negative
10/2018, PET shows 6 liver mets; 1 2cm, 5 smaller. 3 on left lobe, 3 on right.

lovelife789
Posts: 114
Joined: Thu Aug 24, 2017 5:28 am

Re: Stage 4 Hope

Postby lovelife789 » Tue Oct 09, 2018 8:16 am

Give your mum a big hug for me!! I don't know how old was she when she was diagnosed and the details of her journey but everytime I read your signature I find hope!

Everytime I get told when people met to somewhere else outside of liver, prognosis dims a lot ... i would get so frustrated.... Then I would read your signature and felt better.

Thank you!!! And best wishes to her being NED forever!!!
F/38 - Dx 8 Mar 17, CEA 80.5
Stage IV Sig. Colon, 6 Liver mets, T3N0M1a, KRAS NRAS Wild, G2=Moderately differentiated
3/17- 6/17 - 6 rounds of FOLFOX + Erbitux - CEA 2.5
7/17 - 1st Liver resect/Colon/Gall, all clear margin
8/17 - 2nd Liver resec
9-12/17' - completed 13 rounds of FOLFOX - CEA 1.0
1/18 - Clear PET SCAN - CEA 1.4
3/18 - Clear MRI - CEA 0.8
6/30 - PET SCAN showed a lung nodule that grew from 5mm to 8mm - CEA 1.0
Aug - VATs done, colon met cfm

stu
Posts: 845
Joined: Sat Aug 17, 2013 5:46 pm

Re: Stage 4 Hope

Postby stu » Tue Oct 09, 2018 9:38 am

Image
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared

stu
Posts: 845
Joined: Sat Aug 17, 2013 5:46 pm

Re: Stage 4 Hope

Postby stu » Tue Oct 09, 2018 9:51 am

Hi Janet ,
Really sorry to hear you require more treatment . Mum went straight to chemo and it was a good plan . It allowed strinkage to occur and pulled in any stray cells . After surgery she did not have any chemo which is where our countries may differ in approach .
Back in 2009 there truely were not the options available for treatment that there are now . I wish you did not have more treatment to face but wish you the very best . Getting a specialist team on board with wise decisions and good clinical judgements was a game changer for mum .
You have many options open to you so take the time you need to seek the best approach .
Once a plan was in place mum felt a lot better .
Take care ,
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared

stu
Posts: 845
Joined: Sat Aug 17, 2013 5:46 pm

Re: Stage 4 Hope

Postby stu » Tue Oct 09, 2018 10:01 am

Hi Lovelife ,
The photo is for you with mum’s permission. She was 67 at diagnosis but very fit . She is 76 in the photo and as you can see is keeping well . Sometimes she makes me laugh as it turns out you can do a lot despite missing several parts of your major organs . She has some impairment from chemo but it’s just accepted and dealt with.
The first couple of years were challenging as most of the surgeries and chemo were carried out in that time frame .
The thought of the lung met was so much worse than the reality of it for mum and it really was the easiest process for her to date .
She has two nodules which stay static and have no uptake in a PET scan since 2014 . One is 7mm !! But does not seem to be cancer . She is now on yearly scans .
Her oncology team are really positive with her and think she does best with just surgery . Bit of quality of life at this stage too . In the beginning it was all negative language, half way through it turned to “ doing well” and now they are all fully on board with her approach .
They have been such a blessing in the whole process .
Looking forward to hearing more good news from your signature line. :D
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared

kiwiinoz
Posts: 1099
Joined: Thu Jan 03, 2013 11:44 pm

Re: Stage 4 Hope

Postby kiwiinoz » Tue Oct 09, 2018 5:37 pm

Hi Stu
Good to see the photo of your Mum and glad she is doing so well. May she continue to be a beacon of hope to you, and to others, including myself on this board.
Kiwi
Stage IV Rectal Cancer (39 Year old male at dx)
pT3N0M1 (wish that was M0)
Diagnosed 05 Dec 2012
LAR 05 Jan 2013
VATS 27 Feb 2013
FOLOFX April 2013 - Sep 2013
Clear Scan 03 Dec 2013 - 27 Feb 2018
Port Out 26 March 2015

teresajj1
Posts: 34
Joined: Sun Mar 27, 2016 7:36 pm
Location: Florida

Re: Stage 4 Hope

Postby teresajj1 » Fri Oct 12, 2018 2:38 pm

Thank you Stu! Thats wonderful news!
Dx 3/16 @ 36yrs Stage IIIB-6/18 Stage IV
RT Hemi-colectomy
T3N1M0. 2/37 lymph nodes
4/2016 Started 12 rounds of 5 FU & Oxi Chemo
7/2016 Stopped chemo after 5 rounds due to chest pain
8/2017 MUYTH Gene
10/2017 Clear CT Scan; CEA 1.9
5/2018 CEA 447 & CA-125 144
6/2018 Stage IV w/drop metastases to peritoneal cavity
7/2018 Cytoreductive surgery & Hipec (3 tumors, 2 nodules on bladder, and ovaries removed)
10/2018 Clear CT


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