Robino1 has left us today at 6:40pm.

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stu
Posts: 1613
Joined: Sat Aug 17, 2013 5:46 pm

Re: Robino1 has left us today at 6:40pm.

Postby stu » Tue Oct 09, 2018 3:12 am

Difficult to read this . Such a lovely helpful person .
Much love to her family .
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

ValZen
Posts: 33
Joined: Fri Sep 08, 2017 8:16 am

Re: Robino1 has left us today at 6:40pm.

Postby ValZen » Tue Oct 09, 2018 2:12 pm

I never had the opportunity to chat with Robin on here, but I saw her name many, many times offering support and encouragement to the other members on here. I was so sad to hear of her passing and my condolences and prayers go out to her family during a sad, difficult time.

Bruce'swife
Posts: 1
Joined: Sun Jul 30, 2017 11:30 am

Re: Robino1 has left us today at 6:40pm.

Postby Bruce'swife » Tue Oct 09, 2018 4:54 pm

So very sorry to read this. Sympathy extended to her family.
Wife of DH stage 3A rectal cancer
Diagnosed 10/2014
A blur of radiation, surgery, chemo, reversal
4 major hernia repair surgeries 10/2017-7/2018
NED 6/16, 4/17, 10/18, 10/19, 5/20, 11/20
Clear colonoscopy 1/2019; 10/19, 5/29/20

kiwiinoz
Posts: 1170
Joined: Thu Jan 03, 2013 11:44 pm

Re: Robino1 has left us today at 6:40pm.

Postby kiwiinoz » Tue Oct 09, 2018 5:37 pm

That is really sad. She was always a really positive influence, no matter what issues she faced herself.
Stage IV Rectal Cancer (39 Year old male at dx)
pT3N0M1 (wish that was M0)
Diagnosed 05 Dec 2012
LAR 05 Jan 2013
VATS 27 Feb 2013
FOLOFX April 2013 - Sep 2013
Clear Scan 03 Dec 2013 - August 2020
Port Out 26 March 2015

prasadusaus
Posts: 1
Joined: Wed Aug 15, 2018 6:04 am

Re: Robino1 has left us today at 6:40pm.

Postby prasadusaus » Wed Oct 10, 2018 9:22 am

A very special person.Many times offering support and encouragement to the other members.A great loss.My condolences and prayers go out to her family during a difficult time.

NHMike
Posts: 2555
Joined: Fri Jul 21, 2017 3:43 am

Re: Robino1 has left us today at 6:40pm.

Postby NHMike » Wed Oct 10, 2018 10:56 am

Rather stunned to hear this. I always remembered her smiling face in her avatar and that she was nice to everyone despite her difficulties.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

Eleda
Posts: 328
Joined: Thu Dec 28, 2017 2:28 am
Facebook Username: adele Morgan
Location: Ireland

Re: Robino1 has left us today at 6:40pm.

Postby Eleda » Wed Oct 10, 2018 2:33 pm

I'm very shocked and saddened to read this , because I wasn't aware of how serious her condition was the past few months, she was always so helpful esp to us new bees,, she will be missed

RIP wherever that may be and begin Ur new journey.........
Adele XXX
SWF, 47
Mom to 3 sons 6/8/12
Dec4th 2017 colonoscopy for minor intermittent rectal bleeding during Summer
CEA 4.4
DX T3 L3C M0 2.5/3 cm above AV.
JAN 3RD started 1650mg Zelda 2xday, with 28 radiation
Did tagamet 800mg daily and 75mg IV VIT C WEEKLY UNTIL SURGERY and
Tumor reduce by 80% 1 LN still remaining
TATME May10th, temp illeostomy
10/07/2018 CEA 3
MMR INTACT
Began FOLFOX July 10th
24/08/2018 Allergic reaction so next infusion lucovorin and 5fu
CEA 4
Second attempt with oxi aug 12th

Caat55
Posts: 694
Joined: Sat Dec 23, 2017 6:01 pm

Re: Robino1 has left us today at 6:40pm.

Postby Caat55 » Wed Oct 10, 2018 9:47 pm

What a sad day it is. My condolences and prayers to the family.
Susan
Do at 55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds
CT NED 9/2018
PET NED 12/18
Clear Colonoscopy 2/19, 5/20

bitchslapped
Posts: 1538
Joined: Tue Sep 09, 2014 3:23 pm
Location: PNW/USA

Re: Robino1 has left us today at 6:40pm.

Postby bitchslapped » Sat Oct 13, 2018 3:47 pm

Was very surprised to read of Robin's passing. I know she was following HIPEC patients, looking into HIPEC herself & then seemed to stop posting for awhile, but people take breaks from posting time to time. She was a cheerful, supportive member here. I wished she would have reached out here for support, but people deal the way they deal.

Thanks to her family or friend who notified us.

My deepest condolences for your loss.

BS
DSS,35YO,unresect mCRC DX 7/'14,lvr,LN,peri,rib
FOLFOX+Avstn 4 Rnds d/c 10/'14
Stent 9/'14
FOLFIRI+Avstn 10/'14
Gone From My Sight 2/20/15
Me:garden variety polyps + precancerous polyp, diverticulitis
Carergver x2 DH,DM dbl occupancy,'03-'10
DH dx 47YO mCRC,'04-'07, lvr, billiary tree fried x HAI
DM dx CC 85YO,CC,CHF,stroke,dementia,aphasia

Rikimaroo
Posts: 436
Joined: Tue Dec 20, 2016 8:48 pm
Location: Florida

Re: Robino1 has left us today at 6:40pm.

Postby Rikimaroo » Tue Oct 23, 2018 5:54 pm

Very shocked and sad to hear this news. I was expecting her to be here a very long time. She was so positive and gave everyone hope and strength to push forward. I am so sad to read stuff like this. May she rest in peace.
RC T3N1M0 12/16
MSS - NRAS Mutation
Chemo Rad, CCR - W&W 5/2017
Recurrence 11/2017
CT Scan 11/2017 Liver Met 5.5cm Stable, Stage IV
LAR/Liver Resect 4/2018
Reversal 10/18
CEA highest 500, lowest .8 throughout process, waiting for latest
Recurrence left vesical/pelvic sidewall - 10/7/2019 resect perm bag,
CEA rise Feb/May 3.7, 8.8, 30, Recurrence in Pelvic
CEA 40 right now, but was 57, so folfiri to beat it back down.
Lots of chemo for the past 4 years.

mariane
Posts: 704
Joined: Sun Sep 13, 2015 6:16 pm

Re: Robino1 has left us today at 6:40pm.

Postby mariane » Tue Oct 23, 2018 9:22 pm

I am very sorry.
mom of now 14 years old twins, dx @ 40 in 6/2015 with upper rectal cancer, 10+ liver mets, CEA 140
chemo: 8/2015 - 10/2016 - 4xFOLFIRINOX, 2xFOLFOX, 8xFOLFIRI, 10x5FU, HAI pump -12xFUDR
4 surgeries, complete pathological response
CEA<2 since 10/2015
NED since May 2016

I praise God for every day with my family!


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