Robino1 has left us today at 6:40pm.

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Robino1
Posts: 463
Joined: Fri Aug 11, 2017 12:09 pm
Facebook Username: Robin.lawthers
Location: Florida

Robino1 has left us today at 6:40pm.

Postby Robino1 » Sat Oct 06, 2018 9:20 pm

She is finally at peace.
At 54 2014 1st colonoscopy colon cancer detect
Colon resect margins clear. No chemo Stage II
2017
Distend abd, pain in intestines.
CT scan seeding & Ascites
Lap diag - cancer on the omentum
CEA 217; 219
FOLFOX started 6/17
CEA 202
8/29/17 CT melting of tumor.
Latest CT scan shows 2 new tumors and return of ascites.
CEA: (2017)9/30 -109; 10/12 -99.1; 11/4 -90.7; 11/30 -70.7; 12/14 -83.4; (2018)1/4 -73.3; 2/1-84.2; 89.2; 89.8; 88.5; 81.8: 93.5; 107; 119
BRAF V600e

heiders33
Posts: 284
Joined: Sat Nov 04, 2017 11:08 am

Re: Robino1 has left us today at 6:40pm.

Postby heiders33 » Sat Oct 06, 2018 9:41 pm

:( So so sorry to hear this. She was always so encouraging to everyone even in the midst of her own difficulties. RIP
36 year-old female
May 2017: Dx rectal cancer at T3N2M0
MSS, KRAS
June-July 2017: 28 days of chemo/radiation
September 2017: laparoscopic LAR with loop ileostomy
October 2017 - February 2018: XELOX six rounds
March 2018: reversal
April 2018: CEA 2.1, all blood counts normal
May 2018: CT scan showed liver spot
August 2018: Abnormal PET, CEA 2.4
September 2018: liver resection with HAI pump

orlar
Posts: 65
Joined: Fri Jul 21, 2017 12:51 am
Location: oregon

Re: Robino1 has left us today at 6:40pm.

Postby orlar » Sat Oct 06, 2018 9:46 pm

I am truly saddened by this news. I will miss Robin's positive influence and caring for others. God Bless!
56yo male DX 5/17, Right Hemi colectomy 6/17
Stage 3c 12 of 21 LN
7/17-12/17 Folfox(no Oxi round 9-12)
12/17 liver/lung mets-Stage 4 MSS KRAS G13D
2/18 liver doubled to 8.5cm+new met, lung mets to 1.4cm, multi peri/omen
2/18-7/18 Folfiri+Avastin(no 5FU after C2)
4/18 mets shrinking
7/18 liver/lung mets growing, Folfiri stopped
10/18 In Clinical Trial
CEA 5/17-16.2, 12/17-16.1, 02/18-43.0, 3/18-16.9, 4/18-9.0, 5/18-5.5, 6/18-6.9, 7/18-7.8, 9/18-56

Beckster
Posts: 278
Joined: Thu Jan 12, 2017 3:01 pm
Location: New Jersey

Re: Robino1 has left us today at 6:40pm.

Postby Beckster » Sat Oct 06, 2018 10:28 pm

Oh my...I am devastated. We had many discussions and found her to be a positive force on the forum. My thoughts and prayers go out to her family. She will be truly missed.
57/Female
DX:(CC) 10/19/16
11/4/16- Lap right hemi(cecum)
CEA- Pre Op (1.9), Pre Chemo (2.5)
Type: Adenocarcinoma
Tumor size: 3.5 cm x 2.5 x 0.7 cm
Grade: G3 (surgical) G2 (pre-op)
TNM: T3N0M0/IIA
LN: 0/24
LVI present
Surgical margins: clear
MSS
12/27/2016 - Capeox, anaphylactic reaction to oxaliplatin on first infusion-discontinued
1/2/17 to 6/9/17- Xeloda monotherapy
6/26/17, 12/12/17, 6/18/18 CT Scan NED :D
CEA- 6/17- 3.6, 9/17- 2.8 12/17-2.8, 3/18-3.1, 6/18-3.0, 9/18 2.8
Clear Colonoscopy 10/17 :D

Lee
Posts: 5678
Joined: Sun Apr 16, 2006 4:09 pm

Re: Robino1 has left us today at 6:40pm.

Postby Lee » Sat Oct 06, 2018 10:38 pm

NOOO :cry:

I am so sorry to read this. She was a super person around here. My thoughts and prayer go to her family and friends. Know that she was a special friend around here and will be missed by many, including me.

(((HUGS))) to her family,

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

Detox
Posts: 27
Joined: Fri Apr 28, 2017 5:27 pm

Re: Robino1 has left us today at 6:40pm.

Postby Detox » Sat Oct 06, 2018 10:46 pm

Very saddened to hear this. Didn't talk to her personally but loved reading her posts.

Sincere condolences to her family.

zephyr
Posts: 123
Joined: Thu Aug 18, 2016 7:31 am

Re: Robino1 has left us today at 6:40pm.

Postby zephyr » Sun Oct 07, 2018 5:42 am

WHAT?!? WAIT...WHAT?!?!?!?

No, no, no, no, no...

She will be missed.

She
Is
Missed

RIP
Jun-2016 CRC Surgery
Jul-2016 Stage 4, inoperable lung mets
Aug-2016-May-2018 Folfox, 5FU & Avastin, 5FU, Folfiri & Cyramza; beg in Oct-2017, receiving Vitamin C & Quercetin by IV every week
Jun-2018 Taking a chemo break; preparing for surgery
Oct-18 Recovering from YAG laser surgeries (Germany) on R and L lungs, 11 mets removed

Ron50
Posts: 665
Joined: Fri Feb 10, 2006 7:04 pm

Re: Robino1 has left us today at 6:40pm.

Postby Ron50 » Sun Oct 07, 2018 6:13 am

With everyone we lose we lose a little bit of ourselves. She was a special lady. Never once did I hear her complain , she was nothing but positive and supportive. Like so many here she just deserved the chance to live a full and happy life. Cancer SUCKS. Ron.
dx 1/98
st 3 c 6 nodes
48 sessions 5Fu/levamisole
no recurrence cea <.5
numerous l/t side effects of chemo

DarknessEmbraced
Posts: 3126
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Robino1 has left us today at 6:40pm.

Postby DarknessEmbraced » Sun Oct 07, 2018 7:28 am

How very sad. My deepest condolences to her family and friends. :(
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17

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Atoq
Posts: 311
Joined: Wed Oct 25, 2017 9:31 am

Re: Robino1 has left us today at 6:40pm.

Postby Atoq » Sun Oct 07, 2018 7:34 am

That was really sad news! She was always so supportive.

Condolences to her family.

Claudia
45 year old, mother of 2
Dx rectal cancer October 2017
At least T3N2aMX (suspect metastasis to one lung 8 mm)
Lynch negative
CEA 1.8
Neoadjuvant chemoradiotherapy Xeloda + 25x2 Gy
05.12.17 laparotomic surgery for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle biopsy of lung, updated to stage IV
07.05.18 CAT scan, lung metastasis 11 mm
04.06.18 ileostomy reversal
26.06.18 wedge VATS surgery
24.08.18 CAT scan, clear
12.09.18 scope, ok. CEA 1.6

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susie0915
Posts: 847
Joined: Wed Aug 02, 2017 8:17 am
Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: Robino1 has left us today at 6:40pm.

Postby susie0915 » Sun Oct 07, 2018 8:42 am

This makes me so sad. She was always so positive even though she was dealing with recurrence. Prayers to her family.
58 yrs old Dx @ 55
5/15 DX T3N0MO
6/15 5 wks chemo/rad
7/15 sigmoid/scar tissue left
8/15 Pet scan NED
9/15 LAR
0/24 nodes
10/15 Bowel blockage. surgery,early ileo rev, c-diff inf :(
12/15 6 rds of xelox
5/16 Clear CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 CT 4mm lung nod
7/17 no change lung nod
10/17 Clear pel/abd CT
11/17 CEA<.5
1/18 CT/Lung no change in 4mm nodule
5/18 CEA<.5, clear CT pel/abd/lung nod no change

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ANDRETEXAS
Posts: 600
Joined: Fri Feb 14, 2014 11:01 am
Location: Austin, Texas (University of Tennessee alumnus)

Re: Robino1 has left us today at 6:40pm.

Postby ANDRETEXAS » Sun Oct 07, 2018 10:58 am

My deepest sympathies to her friends and family. She was always so supportive of everyone. She will be missed on this forum.
2014
2/10 - Colon resect
2/13 - DX- Stg IIIb
3/7 - Port placed
3/11 - FOLFOX (12 rds w/full oxi)
8/14 - Chemo finish
8/25 - CT- Inc
9/5 - clean PET
12/10- clean CT
2015
3/2 - Clean colonoscopy & port removed
3/4- clean CT
9/21- clean CT
2016
3/23- clean CT
2017
2/22- clean CT
2018
3/21 - clean CT
4/11 - clean colonoscopy

ONE DAY AT A TIME !

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WriterGirl1969
Posts: 493
Joined: Sat Mar 05, 2016 3:48 pm
Location: Central NY

Re: Robino1 has left us today at 6:40pm.

Postby WriterGirl1969 » Mon Oct 08, 2018 2:05 pm

Another light lost . . . so very sad to hear this news. She was such a positive, uplifting and caring person.
We'll miss you, Robino.
DX 3/4/2016 Colon Cancer; age 46 Mom of 4-yr-old
Stage IIIB: T3N1M0
3/31/16 Left Hemi
4 to 10/2016: Xeloda Monotherapy
CEA: 10/16 0.56, 1/17 0.54
3/6/17 CT clear; 4/17/18 CT clear;
NED 2 years
“If I can help somebody as I walk along, then my living shall not be in vain.”

User avatar
Shana
Posts: 401
Joined: Sun Jul 30, 2017 9:45 pm
Location: Sonoma, CA

Re: Robino1 has left us today at 6:40pm.

Postby Shana » Mon Oct 08, 2018 11:28 pm

Rest in Peace Robin.

She was such a kind and supportive person to all of us. She beamed positivity like the sun shining from above, always there to uplift someone who needed it.
I will miss her and keep her in my thoughts.

My deepest condolences to Robin's family who meant the world to her. I am so sorry for your loss
DX - 12/16
MSS - KRAS wild
Well-differentiated adenocarcinoma at splenic flexure
Stage IV CC with liver mets
5FU - Failed twice - 1/17 and 3/17
Irinotecan + Cetuximab: 8/17
Irinotecan and Erbitux ran it's course. CEA rising
Primary tumor invaded tail of pancreas and spleen. Liver mets major concern
Y-90 radioembolization on 9/17/18, liver enzyymes have dropped. 10 Radiation treatments to primary tumor completed too. CT scan Nov to assess overall situation...

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mobrouser
Posts: 79
Joined: Wed Apr 11, 2018 1:44 pm
Location: Ontario

Re: Robino1 has left us today at 6:40pm.

Postby mobrouser » Mon Oct 08, 2018 11:31 pm

I am so sorry to read this news, but thank you for sharing it .
I hope everyone in her family knows how willing she was to support others despite the challenges she was facing.

With much sadness,
mob
CC Dx Oct 2017 @ age 58
Laparoscopic hemi-colectomy Dec 2017
Adenocarcinoma ascending colon – 6cm x 6cm x 2cm, Low Grade, penetrates to peritoneum
T4a N2a M0, Stage IIIC
lymph nodes 6 positive out of 18
FOLFOX started Jan 16 2018; finished Aug 2 2018 (felt like a year)
CEA - 01/15/18 - 2.8; 07/29/18 - 5.3
CT scan Aug 8 2018 - Clear
PET scan Sept 6 2018 (thought about bringing the cat :wink: ) - Clear


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