colon cancer - 19 F (help?)

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butt.hurt
Posts: 1
Joined: Thu Oct 04, 2018 8:34 pm

colon cancer - 19 F (help?)

Postby butt.hurt » Thu Oct 04, 2018 9:21 pm

hey everyone,
first time poster. let me try and explain my situation here.. so i just recently turned 19, ever since i was little, i remember having chronic problems with constipation. throughout my teen years it began to worsen, i tried drinking coffee, tea, a high fiber diet, changing my diet, you name it, it didn't really seem to work. my stool was always very painful and often times very bloody.
over the last year and a half my constipation has changed into on and off diarrhea. it comes and goes in random bouts, sometimes its impossible to control, others not so bad, and other times its just regular 'ol constipation. again, i have tried everything including avoiding common allergy triggers and changing up my routine and such. again, nothing really seems to help. about half a year ago, my stomach pains were so severe that i spent a night in the hospital. (keep in mind, i try and avoid hospitals because of trauma, so this was a big deal for me) i was given blood tests and urine tests and according to the GP, everything was normal. he gave me a rec for stool samples and an ultrasound on my stomach. i foolishly, did none of these things as i was scared. i wish i could report that the symptoms had subsided, but no they have not. one time i took a look down there, and noticed a few strange bumps inside. i googled this and yes, they are definitely polyps. more often than not, i wipe and notice that i am bleeding and its visible in my stool. my butt also is very irritated and itchy and soar all the time.
im concerned because this just hasn't gone away and has become very painful to deal with. my cousin at the age of 23 passed away from colon cancer, because he was so young he didn't think 2 get screened and by the time they caught it, it had been too late. i just wanna know if this is a valid fear, if theres some legitimacy 2 my worries and such.
thanks

KimT
Posts: 613
Joined: Sat Feb 20, 2010 8:53 pm

Re: colon cancer - 19 F (help?)

Postby KimT » Fri Oct 05, 2018 5:38 am

We are not doctors. You need to follow up with your doctor for a proper diagnosis and treatment if necessary. Best of luck.
2/10 dx colon cancer
right hemicolectomy 3/19/10
Stage 2a 0/43 nodes
Lynch syndrome
3/14/10 colon resection/ removal of metal clips
Nov 11 dx ovarian cancer

stu
Posts: 899
Joined: Sat Aug 17, 2013 5:46 pm

Re: colon cancer - 19 F (help?)

Postby stu » Fri Oct 05, 2018 5:53 am

I am really sorry to hear about your cousin . I think your fears are legitimate.
I really hope you can get the strength to follow up with your Doctors . Did your cousin get genetic counselling?
It pays to get into the system and have good monitoring put in place .
Take one small step in the right direction . Phone your doctor .
Much kindness to you ,
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

Jannine
Posts: 90
Joined: Wed Jun 20, 2018 7:46 am

Re: colon cancer - 19 F (help?)

Postby Jannine » Fri Oct 05, 2018 4:42 pm

One thing that will really help is to make sure you have a list of what you want to tell and ask your doctor, and have it with you when you're talking so you can double check and make sure you're not forgetting anything.

Make sure you mention your cousin to your doctor. That's really important.

The only way to find out the answers is to talk to your doctor. Make sure you mention your hospital-related trauma to your Dr. too; this is something that your care team needs to know about and should be able to work around. If it helps to have a list of things to say for that, too, then do that too. Take whatever approach you think you can be most comfortable with that will communicate the information. You might need to push a little to make sure you're understood. Don't be afraid to ask questions.

Do your best to follow up on what the doctor tells you; if you have any adults in your life that you trust and who you think would be able to help you with any of this, don't be afraid to ask them for help. I have a friend who takes a friend with her whenever she needs to go to the doctor or hospital for certain things, because she needs someone she trusts to be there who will keep things on track in case she loses her cool or disassociates because of past trauma.

The hospital can work with you to provide any anti-anxiety or sedative medicine you might need for any procedures. They deal with these kinds of things frequently. If someone you talk to doesn't seem inclined to listen, say you want to talk to someone else. They should honor those sorts of requests.

Many of us put off talking to a Dr. because we were afraid or just hoped it would go away. Some of us did it for months or years. You're not alone in this.

Good luck and please let us know how it all goes!
DX: sigmoid colon cancer 5/2018. 48 F
laparoscopic sigmoid resection (24 cm removed); no stoma.
7.5cm adenocarcinoma -- mod. diff.
1 noncontiguous tumor deposit removed; 0/31 lymph nodes
T3 pN1c M0
5/18 before surgery, CEA 11.2
6/18 began FOLFOX
7/18: CEA 1.9; added neulasta post infusion
9/18: CEA 2.8
10/18: 25% chemo reduction
11/18: CEA 1.8

Lee
Posts: 5739
Joined: Sun Apr 16, 2006 4:09 pm

Re: colon cancer - 19 F (help?)

Postby Lee » Fri Oct 05, 2018 5:28 pm

butt.hurt wrote: . . . i wipe and notice that i am bleeding and its visible in my stool. my butt also is very irritated and itchy and soar all the time.
im concerned because this just hasn't gone away and has become very painful to deal with. my cousin at the age of 23 passed away from colon cancer, because he was so young he didn't think 2 get screened and by the time they caught it, it had been too late. i just wanna know if this is a valid fear, if theres some legitimacy 2 my worries and such.
thanks


Yes you do need to follow up with this, especially since you had a cousin die from this cancer. Make an appointment with a GI doc. I would recommend getting a colonoscopy. That will give you a true diagnoses of what is going. Anything else is just a speculation.

For what is' worth, I had no pain. My mother ended up in the ER with serious stomach pain and rectal bleeding. They did a colonoscopy, no cancer, not even one polyp, just a bad case of diverticulosis.

Itchiness is generally is associated with hemorrhoids. Your other symptoms could be caused my many things, including IBS, cancer is just one possibility. BUTT that colonoscopy will give you that true diagnoses.

good luck, but try not to worry.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

User avatar
ANDRETEXAS
Posts: 601
Joined: Fri Feb 14, 2014 11:01 am
Location: Austin, Texas (University of Tennessee alumnus)

Re: colon cancer - 19 F (help?)

Postby ANDRETEXAS » Fri Oct 05, 2018 8:11 pm

Yes. Follow through with your present doctor or another one. We feel your anxiety. Please know that the worry of the unknown will not go away until you get a definitive prognosis. Once you have that, whether complicated or not, you will feel better, believe it or not. The unknown is scarier than the known. Best of luck to you, and there are knowledgeable people here who can help you.
2014
2/10 - Colon resect
2/13 - DX- Stg IIIb
3/7 - Port placed
3/11 - FOLFOX (12 rds w/full oxi)
8/14 - Chemo finish
8/25 - CT- Inc
9/5 - clean PET
12/10- clean CT
2015
3/2 - Clean colonoscopy & port removed
3/4- clean CT
9/21- clean CT
2016
3/23- clean CT
2017
2/22- clean CT
2018
3/21 - clean CT
4/11 - clean colonoscopy

ONE DAY AT A TIME !

DarknessEmbraced
Posts: 3175
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: colon cancer - 19 F (help?)

Postby DarknessEmbraced » Sun Oct 07, 2018 7:36 am

I'm so sorry you're going through this and for your cousin!*hugs* I would make certain to follow up with your doctors and to get a colonoscopy.*hugs* Good luck!
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17


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