Postby zephyr » Wed Oct 03, 2018 7:18 am
Oh boy do I remember THAT episode. You feel like you’re passing broken shards of glass. My husband could hear me cry out from the other side of the house. Ok, it’s a small house, but still.
My GI doc gave me the Diltiazem (let’s just call it D cream ok?). It did not help me. Then I had a follow up with my surgeon and he gave me D cream with lidocaine also in it. I had to get it at a compounding pharmacy and insurance wouldn’t cover it. It ran me $50. Here’s the trick though that the surgeon stressed: if you don’t push it up one knuckle’s worth, it won’t work. It will not be easy at first but it will get better. At least that was my experience. My surgeon also prescribed Anusol HC (something like that) suppositories. I’m sorry I can’t be more precise but I’m not in my hometown where I could look it up. If you ask your doc, he/she should be able to figure it out. (Buy the 2 box supply of plastic gloves at Costco; your mother will go through them.) At night, I often rubbed a little of the cream on the suppository to make it easier to insert. Don’t know if that was a good idea but it felt better physically and I did get better.
I don’t remember how long it took to clear up but it was not, not, not months. Maybe 3 weeks but the pain level decreased very soon after I started and got better every day. My best wishes to your Mom. It’s an awful experience.
Good luck.
Last edited by
zephyr on Wed Oct 03, 2018 7:44 am, edited 2 times in total.
Nov-2009 Early stage CRC, routine colonoscopy
2010-2014 F/U colonoscopies, all clear
Jun-2016 CRC during F/U colonoscopy, surgery, Stage 4, KRAS, MSS
Aug-2016-May-2018 Folfox, 5FU, Folfiri & Avastin
Aug/Sep-2018 YAG laser surgeries (Germany), 11 nodules removed
Nov-2018 clean CT scan
Mar-2019 New lung nodules
Apr-2019 Dec-2020 Xeloda/Avastin, SBRT, cont. Xeloda/Avastin
Mar-2021 Forfiri/Avastin
Mar-2022 Ablation & Thoracotomy
Feb-2023 Folfiri & Avastin
Nov-2023 Xeloda & Avastin