New stomach primary

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LB10
Posts: 106
Joined: Tue Mar 17, 2015 5:25 pm

New stomach primary

Postby LB10 » Sun Sep 30, 2018 10:04 am

Hi all,
I found this forum after I completed treatment for stage 3 rectal cancer in January 2015. I haven’t been a big poster but frequent reader and have been helped very much by everyone here.
I had a complete pathological response and was feeling confident that I was going to be a lucky survivor. Then seemingly out of no where I was just diagnosed with stomach cancer, a new primary. Just like that I’m back in a fight for my life.
The plan is for chemo then surgery then more chemo. I start on Monday. I’m having a really hard time gathering my courage to go through this again. The cancer perforated my stomach and caused an abscess on my spleen. I had a fever for 3 weeks before they figured out what was going on. I’ve been feeling ill since mid August, just getting my feet under me now in time to feel sick again on chemo.
I apologize for all the self pity here, I am just in shock and devastated. All I can see is misery ahead.
Just needed to share with people that get it. Thanks for reading.
Lisa
Stage III Rectal cancer
Dx 3/14
4/14-7/14 8 rounds Folfox
8/14-9/14 Radiation/Xeloda
1/15 APR colostomy
46 yo wife & mom

mpbser
Posts: 496
Joined: Wed Apr 19, 2017 11:52 am

Re: New stomach primary

Postby mpbser » Sun Sep 30, 2018 3:41 pm

Sorry to hear about this, LB10. It's awful that it took so long to find out that there was this going on. Prayers sent your way.
Wife 4/17 Dx age 45
5/17 - Lap left hemi
Adenocarcinoma
5 x 4 x 1 cm
low grade
T3 N2b M1a
Stage IV A
lymph nodes: 9 of 54
8/17 Sub-total colectomy
2nd tumor 5.5 cm T1 N0
CEA: 1.4, 2.1, 1.5, 1.9, 1.9, 2.1, 2.1, 2.4, 1.7, 2.0
MSS/MSI-L
Lynch no; KRAS wild
Immunohistochemsistry: Normal MLH1, MSH2, MSH6, and PMS2
Tumor DNA variants: MTOR, APC, TP53
Liver left hepatectomy seg 4 1/31/18
5/18 NED

User avatar
Atoq
Posts: 324
Joined: Wed Oct 25, 2017 9:31 am

Re: New stomach primary

Postby Atoq » Sun Sep 30, 2018 8:20 pm

It really sucks! But there is a plan and that’s a positive thing. A big hug and lots of positive vibes.

Claudia
45 year old, mother of 2
Dx rectal cancer 10.2017
At least T3N2aMX (suspect metastasis to one lung 8 mm)
Lynch negative
CEA 1.8
Neoadjuvant chemoradiotherapy Xeloda + 25x2 Gy
05.12.17 laparotomic surgery for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle biopsy of lung, updated to stage IV
07.05.18 CAT scan, lung metastasis 11 mm
04.06.18 ileostomy reversal
26.06.18 wedge VATS surgery
24.08.18 CAT scan, clear
12.09.18 scope, ok. CEA 1.6
19.11.18 clear coloscopy

User avatar
ANDRETEXAS
Posts: 601
Joined: Fri Feb 14, 2014 11:01 am
Location: Austin, Texas (University of Tennessee alumnus)

Re: New stomach primary

Postby ANDRETEXAS » Sun Sep 30, 2018 10:39 pm

I don't mean this as a pat on my back...but a desire for you to fight on. My LAD artery was 100% clogged when I showed up in the ER in July 2007. I recovered, and my cardiologist says my heart is better than ever. In 2008, I was diagnosed with Gleason 7 prostate cancer.....had surgery....My PSA is now 0.01. I had a clean colonoscopy in 2008, and the gastroenterologist told me to come back in 2018. In 2014 I went to the ER for a totally unrelated matter,and I was told I had Stage 3 colon cancer. My five-year anniversary is coming up. My CEA is now 0.98. Sigmund Freud said "The goal of all life in death."
But not while I have anything to say about it, My body may want to, but my brain doesn't. So far the two of us are winning. :wink: And if something else comes up, we'll face it again. I don't give up easily. Lisa, you are a survivor. That doesn't mean in one instance, that means in every instance. I know how it is to feel like "Why Me?" and I asked my doctor why I was the only one in my family that ever got cancer. He said: "Because you are the only one that can handle it." I said "Right on." I'm still here at the moment, and my family still doesn't have cancer....so fight on, you are a survivor." Andre
2014
2/10 - Colon resect
2/13 - DX- Stg IIIb
3/7 - Port placed
3/11 - FOLFOX (12 rds w/full oxi)
8/14 - Chemo finish
8/25 - CT- Inc
9/5 - clean PET
12/10- clean CT
2015
3/2 - Clean colonoscopy & port removed
3/4- clean CT
9/21- clean CT
2016
3/23- clean CT
2017
2/22- clean CT
2018
3/21 - clean CT
4/11 - clean colonoscopy

ONE DAY AT A TIME !

hiker
Posts: 82
Joined: Thu Aug 09, 2018 10:15 am

Re: New stomach primary

Postby hiker » Mon Oct 01, 2018 9:44 am

Andretexas,

You have the attitude and inner fight to be a survivor. I applaud you for facing all those giants and defeating them.

As many times as you've almost been taken out, I guess it's not only cats that have nine lives.

hiker
Colonoscopy 2/17, 5cm tumor descending
Diagnosed stage iv, liver mets 3/17
Colon resection 3/17
Told surgery not an option, get my affairs in order
Meet w/MSK team 5/01/17
Folfox(3rds) 5/17-6/17
Liver resection/implant HAI pump 7/17
HAI pump chemo(5rds) 8/17-2/18
Folfiri+Vectibix(11rds) 8/17-2/18
Spot on chest CT 10/17
Lung biopsy (that was fun) 11/17
Nocardia bacterial infection w/spread to brain (this is serious) 11/17
IV antibiotics 12/17-2/18
Oral antibiotics 3/18-12/18
Clear of cancer since surgery

LB10
Posts: 106
Joined: Tue Mar 17, 2015 5:25 pm

Re: New stomach primary

Postby LB10 » Mon Oct 01, 2018 10:21 am

Thank you all for your kind responses. It means a lot to hear from fellow fighters and survivors. Trying to put my big girl panties on and head to my first chemo in a couple of hours. Your words have helped me. Thank you.
Stage III Rectal cancer
Dx 3/14
4/14-7/14 8 rounds Folfox
8/14-9/14 Radiation/Xeloda
1/15 APR colostomy
46 yo wife & mom

User avatar
spinnz
Posts: 74
Joined: Sat Dec 05, 2015 4:19 pm
Facebook Username: Diana Wiseley

Re: New stomach primary

Postby spinnz » Tue Oct 02, 2018 5:49 pm

I'm so sorry! It's beyond comprehension how this can happen. I'm in the same boat and completely taken aback by the experience. Hugs for healing!
Dx age 53 10/8/15
Lap/robotic converted to open sigmoid colectomy, partial small-bowel resection and right salpingo-oophorectomy 10-9-15
CRC stage 3b, T3N1aM0
Margins clear of malignancy
1/27 lymph nodes
Well differentiated
CAT / MRI's indicate NED
FOLFOX + Neulasta- 2 rounds 11/15
Xeloda, 1 week on 1 week off 1/16- 5/16
1/5/16 CEA 1.0, 5/16, 1.0
Factor 13-bleeding disorder
NEW DX
11/15/18 IDC

LB10
Posts: 106
Joined: Tue Mar 17, 2015 5:25 pm

Re: New stomach primary

Postby LB10 » Wed Oct 03, 2018 9:39 am

Spinnz
I’m sorry you are going through this too.
Incomprehensible is the right word.
Hugs to you.
Stage III Rectal cancer
Dx 3/14
4/14-7/14 8 rounds Folfox
8/14-9/14 Radiation/Xeloda
1/15 APR colostomy
46 yo wife & mom

DarknessEmbraced
Posts: 3175
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: New stomach primary

Postby DarknessEmbraced » Sun Oct 07, 2018 7:42 am

I'm so very sorry you're going through this!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17

LB10
Posts: 106
Joined: Tue Mar 17, 2015 5:25 pm

Re: New stomach primary

Postby LB10 » Sun Oct 07, 2018 11:17 am

Just want to say thank you for the support. It means the world to me.
Stage III Rectal cancer
Dx 3/14
4/14-7/14 8 rounds Folfox
8/14-9/14 Radiation/Xeloda
1/15 APR colostomy
46 yo wife & mom


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