Eleda wrote:Thanks so much for Ur reply Mike,
I'm n the middle of standard chemo so won't prob change anything now but in the event this returned as reacurance or matastasis, I would possibly be in a better position for treatment, or trials " all depends on available drugs too I suppose in Ireland at that time !!!
I've had the standard testing and I'm MMR intact!!!!
TBH, one article will say MSS, h is better prognosis than MSS , it just totally confuses me when it comes to mutation,,,,, I don't think my inshurance in Ireland will cover this but I'll pay the 2k myself, as u say, if a choice given , targeted therapy it's a deffo, in saying that I can't complain I'm doing ok through chemo ATM, (4 left)
Even though I'm really pro active and positive,,, I will always be aware that it could return, so anything to prepare or help, I'll do
I'm concidering getting my reversal before X mas, and my surgeon said I would possibly have more evecuation problems rather than incontinence issue's because he tried to make my new rectum perfect size ( but that's wishful thinking lol) but went on the smaller side rather than larger!!!!
Did Ur surgeon give u any indication as to what you were likely to suffer in relation to reversal???
Eleda wrote:No time is a good time I think, I will make a decision end of next month,,,,
He said he would also do a coplasty, I Never asked if he actually did not the end!!!!! I will next visit!!!! A J- pouch was not an option due to location.
Did u have either done during surgery???
henry123 wrote:The only important test right now for you is msi-high vs mss status as only that would alter course of treatment from chemo to possibly immunotherapy from a very good lab.
Other test is not really that useful but if u can comfortably afford it , no harm.
My oncologist said it was a waste of resources when they are most needed due to expenses and reduced income.
Eleda wrote:Thanks Mike Ur always very good to explain stuff,
Sorry if This sounds stupid but surely if Ur MMR is intact, u wouldn't have cancer in the first place?? I'm similar to u in the sense I keep reading papers but I'm getting nowhere, ( chasing my tail ) and unfortunately I usually see the understudy at the clinic,,, so it's difficult to get them to break this down to English for me!!!
Also by any chance to u have a reputable link for PSK, I'm aware the Chinese and Japanese will Excel in this area but when it comes to health supplement, I'm Very apprehensive to order from an unknown source outside of Europe, want to start and continue on this along with the cemitidine long term
Thanks again Adele
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