2 swollen nodes in abdomen...

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clj12288
Posts: 7
Joined: Tue Dec 12, 2017 11:09 am

Re: 2 swollen nodes in abdomen...

Postby clj12288 » Tue Oct 16, 2018 9:06 pm

Stewsbetty wrote:
clj12288 wrote:Jep,
I am sorry to hear about this discovery. I am hoping it's not abdominal lymph nodes. However, if they are, I want to give you some info because I have experience with it.

Mine have only been detected by PET scans - never big enough by CT criteria to be seen. So, I've had PETs every 2-3 months since July of 2015. Mine are considered retroperitoneal & para-aortic, and common illiac. If you do a search - it is somewhat rare. At least rare to have these lymph nodes and not other organs involved. We have blasted mine with 30 rounds of chemo, radiation, and surgery - and they continue to persist. Next steps are to try an EGFR inhibitor chemo. I have been fortunate to keep them relatively contained - although recently a node popped up in my supraclavicular (neck) region. But considering these first showed on a scan in July of 2015 - it's not lost on me I've been relatively lucky to only have these for the past 3 years.

I would suggest taking an aggressive treatment approach and making sure your doctor is in line with that approach. Don't let any doctor tell you that this means chemo for life...it may mean chemo for now until better options come along. Let me know if you have any questions.

Best of luck,
clj12288


Hello CLJ,

We share some commonalities. I am one of the weird LN met people. Mine started in retroperitoneal area, spread to thoracic and then up to my left supraclavicular node. Thought it was interesting that it went to the left and not the right in the neck.
Not similar in that chemo didn’t help me and my spread was very rapid. Thankfully immunotherapy is working really well for me now.
Sure hope that between surgeries and treatment you can diminish or keep your disease contained.

Beth




Hi Beth
It's nice to meet you as it does seem like we are some of the "weirder" ones here. Mine is also in my left neck node (supraclavicular). I did a little research and after asked my oncologist who confirmed; the reason it goes to the left and not the right is because the thoracic duct from which the lymph drains from abdomen ends at the left supraclavicular nodes aka Vichow's node. Very odd and it feels so stange that cancer traveled that far. Right now, my chemo is helping me, but I am preparing for the day when it won't. Which immuno are you on? I just got my Foundation One results from my most recent biopsy and I have a Tumor Mutation Burden of 15 muts/MB which may make me eligible for immuno despite being MSS. I hope that the immuno continues to work well for you! It's given so much hope to so many people.

clj
clj, 30
dx '14, stage IIIc sigmoid cc
colectomy, 12 folfox
7/15, stage IV, met to liver, retroperitoneal/para aortic LNs
8/15 - 11/15: folfiri + liver resection
2/16: 14 5FU + avastin & 4 folfiri +avastin
12/16 -2/17 - PA LN removal (5/10 LNs +) & 25 tx radiation
12/17 - PET confirms metastasis to right common illiac node, uptake in PA LNs
14 folfiri + avastin
9/18: Pet progression, left supraclavicular node, biopsy + for mets
Begin folfiri + vectibix
CEA: not useful. 0.9 now
KRAS wild type, MSS

Kanthicln
Posts: 1
Joined: Sat Mar 16, 2019 9:35 pm

Re: 2 swollen nodes in abdomen...

Postby Kanthicln » Sat Mar 16, 2019 9:43 pm

In the CT we found that retroperitoneal lymph node to the left of the aorta is 1.9 * 1.3 * 2.2

An aortocaval retroperitoneal lymph node is 1.8 * 1.2 * 2.7

Had pet. Right side lymph below neck is 1.8, and at the retroperitoneal it is 9.7

My feet were swollen since Feb couple days after my breast MRI.
Note: I was diagnosed with stage 1a breast cancer and had lumpectomy two weeks ago. Sentinel and axillary nodes in the armpit are negative.

Am silently worrying about those lymph nodes showed up on CT and pet. Didn't do any diagnosis yet. Onco told she will do re pet in two months.
Waiting on oncoscore of the breast cancer and in two weeks I meet my onco.

Did anyone have swollen feet when you had enlarged lymph nodes in the abdomen

nzjez
Posts: 5
Joined: Sat Jan 19, 2019 12:23 pm
Facebook Username: Jeremy Macgillivray

Re: 2 swollen nodes in abdomen...

Postby nzjez » Fri Mar 22, 2019 2:24 am

Hi Jep.
I came across a similar concern with a swollen lymph node near my right hip. And when I say concerned, that is quite an understatement. Like yourself I had a lot of affected lymph nodes in my histology report. 21 positive out of 47.
My oncologist arranged for a biopsy on the day, as it was reasonably accessible near my hip.
Luckily it came through all clear, which I must say surprised me. I guess after all the stress of a recent surgery, perhaps inflammation is reasonably normal.
I thought I should share, as it's nice to hear people with similar symptoms doing well.
Good luck :)
Jeremy
Male, 39,
Stage 3c (T3N2bM0 21/47 LNs)
2018-11 - Colon resection
2018-12 - CAPOX Chemo started
2019-03 Clear CT

mpbser
Posts: 903
Joined: Wed Apr 19, 2017 11:52 am

Re: 2 swollen nodes in abdomen...

Postby mpbser » Sat Mar 23, 2019 5:19 am

jep,

Have you received the results of the biopsy? You mentioned possible surgery on a different thread. What's the latest?
Wife 4/17 Dx age 45
5/17 LAR
Adenocarcinoma
5 x 4 x 1 cm
low grade
T3 N2b M1a
Stage IV A
8/17 Sub-total colectomy
2nd tumor 5.5 cm T1 N0
lymph nodes: 9 of 96
CEA: 2.9 to 2.2
MSS/MSI-L
Lynch no; KRAS wild
Immunohistochemsistry Normal
Tumor: MTOR, APC, TP53
Fall 2017 FOLFOX shrank the 1 met in liver
1/18 Liver left hepatectomy seg 4
5/18 CT clear
12/18 MRI shows 1 liver met
3/7/19 Resection & HAI
4/1/19 Folfiri & FUDR
5/13/19 HAI pump catheter dislodge, nearly hemorrhaged to death
6/10/19 5FU

jep
Posts: 121
Joined: Sun Jun 11, 2017 7:45 pm

Re: 2 swollen nodes in abdomen...

Postby jep » Sat Mar 23, 2019 2:23 pm

Hi, yes, the lymph node that was biopsied tested positive :( The big concern is the position of this node (near the aorta)....2 surgeons have already said that they would do his surgery (but they did let us know of the risks)....we're in limbo right now....2 more treatments to complete this cycle of chemo, then a scan and a colonoscopy.....my hubby and his docs can't really make any decisions until we see the results of those tests...I'm very nervous :|
Wife of DH (47) Stage IV CC on 5/16/17
T Loc: recto-sigmoid
T type: Adenocarcinoma
T size: 7.4 cm
T grade: G3
TNM code: T3N2M1
Pos LNs: 8 out of 20
Baseline CEA value: .9
LVI: present
Perineural invasion: present
LAR margins: clear (w/in microns)
Folfox (8/17-1/18)
Scope 6/18 - CLEAR! - 2 polyps removed
PET 10/17/18: 3 pos LNs
Irinotecan + Vectobix (started in 11/18)
CEA: 1.7 (2/19)
Xeloda + radiation (May 2019)

mpbser
Posts: 903
Joined: Wed Apr 19, 2017 11:52 am

Re: 2 swollen nodes in abdomen...

Postby mpbser » Sat Mar 23, 2019 2:50 pm

Good luck with those scans and the upcoming decision-making. Do you trust these surgeons with the para-aortic node surgeries? I read that this can be done laparoscopically, so that's good.
Wife 4/17 Dx age 45
5/17 LAR
Adenocarcinoma
5 x 4 x 1 cm
low grade
T3 N2b M1a
Stage IV A
8/17 Sub-total colectomy
2nd tumor 5.5 cm T1 N0
lymph nodes: 9 of 96
CEA: 2.9 to 2.2
MSS/MSI-L
Lynch no; KRAS wild
Immunohistochemsistry Normal
Tumor: MTOR, APC, TP53
Fall 2017 FOLFOX shrank the 1 met in liver
1/18 Liver left hepatectomy seg 4
5/18 CT clear
12/18 MRI shows 1 liver met
3/7/19 Resection & HAI
4/1/19 Folfiri & FUDR
5/13/19 HAI pump catheter dislodge, nearly hemorrhaged to death
6/10/19 5FU

jep
Posts: 121
Joined: Sun Jun 11, 2017 7:45 pm

Re: 2 swollen nodes in abdomen...

Postby jep » Sun Mar 24, 2019 7:20 pm

My husband trusts his surgeon completely, but he still wants to meet with another surgeon at Smilow just to get another set of eyes on this....unfortunately, my husband's first surgery was "open" so they don't think laparoscopic is a viable option (given all the scar tissue)....
Wife of DH (47) Stage IV CC on 5/16/17
T Loc: recto-sigmoid
T type: Adenocarcinoma
T size: 7.4 cm
T grade: G3
TNM code: T3N2M1
Pos LNs: 8 out of 20
Baseline CEA value: .9
LVI: present
Perineural invasion: present
LAR margins: clear (w/in microns)
Folfox (8/17-1/18)
Scope 6/18 - CLEAR! - 2 polyps removed
PET 10/17/18: 3 pos LNs
Irinotecan + Vectobix (started in 11/18)
CEA: 1.7 (2/19)
Xeloda + radiation (May 2019)

Brearmstrong
Posts: 81
Joined: Sun Mar 26, 2017 3:24 pm
Location: CT

Re: 2 swollen nodes in abdomen...

Postby Brearmstrong » Mon Mar 25, 2019 8:38 am

Jep,

Any chance you are able to get in to talk to Dr. Charles Cha at Smilow? I think I mentioned in another post that he was my original surgeon and then also did my para aortic node dissection. Mine were massed together (not good) and 12.5 SUV uptake on PET. I trust him 100% and he ended up getting out 10 nodes in that area, 5 of which were mets. I've been NED for the past 10 months. Throwing that out there again as we have so much in common along with location. Best of luck to you both!

-Brenda
45 F Jan 17 Mom 2 boys
tumor appendix/colon
Muc Adeno 4cm
mod diff G2 T4aN2
nodes 8/50
CEA 4.6 after surgery <.05
KRAS G12D MSS
FOLFOX Apr-sep 17
Clean CT scan Jul 2017 lung nodule 4mm, clean CT oct 17, CEA 3.4, nov 17 8.1. May 18 2.3 Jul 18 1.0 oct 18 1.3 Jan 19 1.3 Mar 19 1.0
Oct 2017 clean CT
Nov 17 PET para aortic nodes Stage IV
Folfori w/avastin Dec 17 CEA 7.1
May 18- surgery to remove nodes- 5 positive xeloda continues
Aug 18-CT NED Nov 18 CT clear, Feb 19 CT clear, May 19 CT clear

jep
Posts: 121
Joined: Sun Jun 11, 2017 7:45 pm

Re: 2 swollen nodes in abdomen...

Postby jep » Mon Mar 25, 2019 2:47 pm

YES! Thank you Brenda!! We asked my husband's oncologist about Dr. Cha (after reading your post), and they actually know each other! His onc is going to speak with Cha and set up an appointment....my husband loves his local surgeon but also wants to hear what Dr. Cha has to say.....thank you so much for that recommendation!!
jep
Wife of DH (47) Stage IV CC on 5/16/17
T Loc: recto-sigmoid
T type: Adenocarcinoma
T size: 7.4 cm
T grade: G3
TNM code: T3N2M1
Pos LNs: 8 out of 20
Baseline CEA value: .9
LVI: present
Perineural invasion: present
LAR margins: clear (w/in microns)
Folfox (8/17-1/18)
Scope 6/18 - CLEAR! - 2 polyps removed
PET 10/17/18: 3 pos LNs
Irinotecan + Vectobix (started in 11/18)
CEA: 1.7 (2/19)
Xeloda + radiation (May 2019)

User avatar
LPL
Posts: 624
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: 2 swollen nodes in abdomen...

Postby LPL » Mon Mar 25, 2019 3:42 pm

jep wrote:YES! Thank you Brenda!! We asked my husband's oncologist about Dr. Cha (after reading your post), and they actually know each other! His onc is going to speak with Cha and set up an appointment....my husband loves his local surgeon but also wants to hear what Dr. Cha has to say.....thank you so much for that recommendation!!
jep

Wow, it is so nice to hear how you two talk and help each other, sharing experiences. Sending Best wishes to you Jep for a good outcome of these doctor visits !!
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma pt 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a Stage IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED->Jan-19 mets to lung
:!: Steroid induced hyperglycemia dx after 3chemo
Surgeries 2016: 3/18 Emergency colostomy
5/23 Primary+gallbl+stoma reversal+port 9/1 Liver mets
RFA 2019: Feb lung met

jep
Posts: 121
Joined: Sun Jun 11, 2017 7:45 pm

Re: 2 swollen nodes in abdomen...

Postby jep » Thu Mar 28, 2019 8:30 pm

LPL wrote:
jep wrote:YES! Thank you Brenda!! We asked my husband's oncologist about Dr. Cha (after reading your post), and they actually know each other! His onc is going to speak with Cha and set up an appointment....my husband loves his local surgeon but also wants to hear what Dr. Cha has to say.....thank you so much for that recommendation!!
jep

Wow, it is so nice to hear how you two talk and help each other, sharing experiences. Sending Best wishes to you Jep for a good outcome of these doctor visits !!


Yes, I know! The advice and support we've gotten on this board has helped my husband and our family so much....these are not easy times, but having so many informed people helping and encouraging really makes a difference.... <3
Wife of DH (47) Stage IV CC on 5/16/17
T Loc: recto-sigmoid
T type: Adenocarcinoma
T size: 7.4 cm
T grade: G3
TNM code: T3N2M1
Pos LNs: 8 out of 20
Baseline CEA value: .9
LVI: present
Perineural invasion: present
LAR margins: clear (w/in microns)
Folfox (8/17-1/18)
Scope 6/18 - CLEAR! - 2 polyps removed
PET 10/17/18: 3 pos LNs
Irinotecan + Vectobix (started in 11/18)
CEA: 1.7 (2/19)
Xeloda + radiation (May 2019)


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