Cmac1275 wrote:Despite several “new” spots showing on my latest scans, they don’t know if all of them are truly new. It’s possible prior CTs missed them. The surgeon may have missed them too as they are quite small. Or, the microdisease was there and simply grew in the absence of chemo over the last 4 months. Therefore, they won’t necessarily consider my current diagnosis as real progression. You have to show quantifiable disease progression after taking FOLFOX/Avastin to qualify for the trial.
I feel your frustration. The fact is they just don't know. Why is that? No PET scan or MRI @ original dx? ONE liver resection is enough for anybody; not the same as having a tooth extracted. My DH back in '04 rec'd about 5 months/10 rounds of FOLFOX + Avastin. Then we had to wait the longest 4 months before liver resection. Had the cancer come back in the interim, he w/n be a candidate for liver surgery.
Cmac1275 wrote:So for now, more FOLFOX/Avastin starting in a couple of weeks. Then re-staging. I suppose if we don’t like what we hear after this next round of chemo, we’ll start looking at other places like Memorial Sloan Kettering and MD Anderson for second and third opinions.
In the meantime, I’ve also setup an appointment in a couple of weeks with a naturopathic doctor to discuss adjuvant treatment with diet and supplements. It works for some. Maybe it will help me.
Some links here on the forum for help in researching clinical trials where they will do the searching for you:viewtopic.php?f=1&t=53238
Also outside link:http://trialfinder.fightcrc.org/
U.S. News & World Report Best Cancer Hospitals 2018/2019:https://health.usnews.com/best-hospital ... ngs/cancer
You indicated that is a possibility for you. If you have the means, why wait? Outside major cancer centers can work w/your local docs & it all takes time in sending records, initial consultation, paperwork, etc. You don't owe your doctors anything.
DSS,35YO,unresect mCRC DX 7/'14,lvr,LN,peri,rib
FOLFOX+Avstn 4 Rnds d/c 10/'14
Gone From My Sight 2/20/15
Me:garden variety polyps + precancerous polyp, diverticulitis
Carergver x2 DH,DM dbl occupancy,'03-'10
DH dx 47YO mCRC,'04-'07 fried x HAI
DM dx CC 85YO,CC,CHF,stroke,dementia,aphasia