Cmac1275 wrote:Despite several “new” spots showing on my latest scans, they don’t know if all of them are truly new. It’s possible prior CTs missed them. The surgeon may have missed them too as they are quite small. Or, the microdisease was there and simply grew in the absence of chemo over the last 4 months. Therefore, they won’t necessarily consider my current diagnosis as real progression. You have to show quantifiable disease progression after taking FOLFOX/Avastin to qualify for the trial.
Cmac1275 wrote:So for now, more FOLFOX/Avastin starting in a couple of weeks. Then re-staging. I suppose if we don’t like what we hear after this next round of chemo, we’ll start looking at other places like Memorial Sloan Kettering and MD Anderson for second and third opinions.
In the meantime, I’ve also setup an appointment in a couple of weeks with a naturopathic doctor to discuss adjuvant treatment with diet and supplements. It works for some. Maybe it will help me.
hiker wrote:If you only have liver mets, I would encourage you to contact MSK in NYC and see if Dr. Nancy Kemeny will accept you as a patient. She is an expert, probably the leading expert, on treating liver mets from colon cancer. A year and half ago I was told by several doctors that I had two years left to live, at most. My body is currently cancer free thanks to her and my surgeon Dr. D'Angelica.
bitchslapped wrote:You indicated that is a possibility for you. If you have the means, why wait? Outside major cancer centers can work w/your local docs & it all takes time in sending records, initial consultation, paperwork, etc. You don't owe your doctors anything.
hiker wrote:I had 3-4 mets spread over both lobes and they were all removed during the resection and HAI pump implant surgery. However, if you have mets that can't be resected they can install the pump, hit the mets with super powerful chemo to eliminate them or shrink them enough that surgery may be a possibility in the future. Please get to MSK (Dr. Kemeny if at all possible) - they can do things others can't.
If you need any info (regarding logistics, places to stay, etc.), please feel free to PM me. I'll be happy to help any way I can.
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