Triggers of the painful variety. I noticed my first trigger last summer. I was still on the 5FU pump. I would get a bollus prior to the 46 hour hook up. Twice my pump malfunctioned and I also received a bollus prior to disconnect. This triggered an extremely painful bout of hand and foot syndrome that was very heat sensitive. It lasted a couple of months and made my neuropathy seem minor in comparison. During the heat of summer. I couldn’t drive because I couldn’t handle the steering wheel and I couldn’t wear shoes. I actually considered stopping treatment. Dropped the 5FU and it eased. I had a colectomy in November, a PVE in May, a liver resection in June, and a cryoablation on a foot neuroma a month ago. An Issue I was unaware of is that anesthesia can exacerbate neuropathy. It was after the last procedure that my neuropathy went mad. I wish I had the numbness and tingling but alas I have the awful pain. Freezing burning throbbing. And it climbed to my knees and returned to my fingers with a vengeance. I’m seeing another specialist this Wednesday. The good news is I’m NED and chemo free for the foreseeable future! This is unbelievable to me. As soon as I find some relief for my fingers I will contribute more here. I took extra meds so I could peck this out.
I don’t know if it’s any one particular anesthetic that triggers this increase. Not enough research goes in to CIPN. Anyone have a similar experience?
Peace and health
Cyn