Postby Rikimaroo » Mon Sep 17, 2018 4:59 pm
I have not been on for a little. I finished 6 rounds of FOLFOX on 8/15/2018. My neuropathy still there and its annoying but tolerable. I did a pet scan and a mri on Friday the 7th and got result last Wednesday. Dr. said PET SCAN looks good, nothing. MRI came back with 1.1 cm soft tissue implant in the right deep pelvis, consistent with recurrent/metastatic disease. He said since the PET scan didn't light up it probably isn't anything but he still wants me to do a biopsy. Dr. said that he thinks it Scar Tissue but is not 100% sure. They had a meeting (tumor board) and discussed it and said the next step would to do a biopsy to make sure its not recurrent cancer in the rectum.
As you all know my CRM was positive and I did Chemo hoping it would eliminate any chance of recurrence. I am not sure what this is but I am a little stressed, when I try to keep jovial and positive. Anyone else been in this predicament? Let me know your outcome/stories. One thing is if it comes back positive for cancer, I will need to undergo another resection which will possibly lead to a permanent ileostomy. I had Ileostomy reversal scheduled for October 17th but now if this is a recurrence I will not be able to do it.
I am praying and hoping its nothing. Please pray for me as well and let me know what you guys have experienced, I know everyone's different.
This is the MRI:
TUMOR
* There are new postsurgical changes of proctectomy with coloanal
anastomosis. No distal colonic wall thickening or abnormal enhancement.
* 1.1 x 0.9 cm enhancing soft tissue nodule in the right deep pelvis
(series 18 image 47; series 10 image 19) with mild focal FDG uptake on
PET performed earlier today.
Now I am wondering if this is the rectum or somewhere else. I am going to message my Doctor, I thought it was a possible recurrence in rectum but this might not be, not 100% sure now. ugh1!
RC T3N1M0 12/16
MSS - NRAS Mutation
Chemo Rad, CCR - W&W 5/2017
Recurrence 11/2017
CT Scan 11/2017 Liver Met 5.5cm Stable, Stage IV
LAR/Liver Resect 4/2018
Reversal 10/18
CEA highest 500, lowest .8 throughout process, waiting for latest
Recurrence left vesical/pelvic sidewall - 10/7/2019 resect perm bag,
CEA rise Feb/May 3.7, 8.8, 30, Recurrence in Pelvic
CEA 40 right now, but was 57, so folfiri to beat it back down.
Lots of chemo for the past 4 years.