Final Chemo Anniversary

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CAGirl
Posts: 53
Joined: Fri Aug 25, 2017 4:55 pm

Final Chemo Anniversary

Postby CAGirl » Wed Sep 12, 2018 11:35 am

Hi Guys,

This week marks my one-year anniversary of my final (12th) Folfox round. (Injection on the 12th, Disconnect on the 14th.) Damn, it's been a good year since! I mentioned to my sis and my husband, but it's not something you can really broadcast or celebrate. Yet, it feels profound. So, I wanted to mention it here.

These milestones... ya know?

For those Stage 3 like I was who are just starting out, or even halfway through their chemo treatments -- there will be an end!

Here's hoping it becomes a more and more distant memory for me and many, many others of us on here.
Dx 2/2017, age 45, 2 kids: 6 yrs & 3 yrs
History of Crohn's disease - dx in 1997; in remission, thus no colonoscopy in over 10 years
Anemia dx 11/16: GI doc assured me "the likelihood of colon cancer" was "very low".
Stage 3C - T3N2b
8/64 lymph nodes; clear margins surgery 3/17
12 cycles of Folfox 4/17-9/17
3-month CT scan midway through chemo, no changes
2-3-month CT scan post chemo 11/17 slightly larger lung nodule (incr. from 7mm to 8 or 9mm)
follow-up CT scan 3/18 - NED!

NHMike
Posts: 1788
Joined: Fri Jul 21, 2017 3:43 am

Re: Final Chemo Anniversary

Postby NHMike » Wed Sep 12, 2018 6:44 pm

It does feel like it goes on forever. Glad that you’re living a normal life a year out.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 9/8: 1.8; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal

CAGirl
Posts: 53
Joined: Fri Aug 25, 2017 4:55 pm

Re: Final Chemo Anniversary

Postby CAGirl » Thu Sep 13, 2018 12:00 pm

Thanks NHMike!

Congrats on your port removal, too! I remember how good that felt for me. Like I could really move on without it.
Dx 2/2017, age 45, 2 kids: 6 yrs & 3 yrs
History of Crohn's disease - dx in 1997; in remission, thus no colonoscopy in over 10 years
Anemia dx 11/16: GI doc assured me "the likelihood of colon cancer" was "very low".
Stage 3C - T3N2b
8/64 lymph nodes; clear margins surgery 3/17
12 cycles of Folfox 4/17-9/17
3-month CT scan midway through chemo, no changes
2-3-month CT scan post chemo 11/17 slightly larger lung nodule (incr. from 7mm to 8 or 9mm)
follow-up CT scan 3/18 - NED!

stu
Posts: 875
Joined: Sat Aug 17, 2013 5:46 pm

Re: Final Chemo Anniversary

Postby stu » Thu Sep 13, 2018 5:05 pm

What a fantastic post . Sounds as though you are really enjoying life .
Here’s to many more .
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

Lee
Posts: 5722
Joined: Sun Apr 16, 2006 4:09 pm

Re: Final Chemo Anniversary

Postby Lee » Thu Sep 13, 2018 5:24 pm

Congratulations on this milestone. May there be MANY more and that you always reside in NEDville.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

benben
Posts: 303
Joined: Fri Apr 28, 2017 3:18 pm
Location: Washington State

Re: Final Chemo Anniversary

Postby benben » Thu Sep 13, 2018 6:57 pm

Congrats. May you take up permanent residence on NED st.
----------------------
3/29/17 diagnosed CRC - 44 y/o Male
4/17/17 ULAR - Straight anastomosis - no ostomy.
Path: low grade T3n1m0 - moderate diff.
KRAS - NO, MLH1/PMS2/MSH6/MSH2 - Normal.
5/3 med port install
5/22 folfox - first treatment.
3rd treat, delayed - low ANC - reduced to 90% OXI
zarxio all treats
Treat 7 - 75% OXI
Treats 8-12 - NO OXI, Luke & 5FU
10/20/17 CT- NED
3/18 Scope - Clean
7/18 CT-Scan - Clear, CEA 4.6 :(
8/30 CEA 2.6
10/5 CEA 1.5
11/8 PORT OUT!

Caat55
Posts: 539
Joined: Sat Dec 23, 2017 6:01 pm

Re: Final Chemo Anniversary

Postby Caat55 » Thu Sep 13, 2018 7:16 pm

Congrats. A wow year, can't wait. I had first scan on Tuesday, see doctor on Monday, waiting for good new like yours!
Susan
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds
CT NED 9/2018

CAGirl
Posts: 53
Joined: Fri Aug 25, 2017 4:55 pm

Re: Final Chemo Anniversary

Postby CAGirl » Fri Sep 14, 2018 12:36 pm

Susan -- congrats on finishing chemo. Am sending NED vibes to you for fantastic news next week. (I can't believe you have to wait that long for scan results, though!)
Dx 2/2017, age 45, 2 kids: 6 yrs & 3 yrs
History of Crohn's disease - dx in 1997; in remission, thus no colonoscopy in over 10 years
Anemia dx 11/16: GI doc assured me "the likelihood of colon cancer" was "very low".
Stage 3C - T3N2b
8/64 lymph nodes; clear margins surgery 3/17
12 cycles of Folfox 4/17-9/17
3-month CT scan midway through chemo, no changes
2-3-month CT scan post chemo 11/17 slightly larger lung nodule (incr. from 7mm to 8 or 9mm)
follow-up CT scan 3/18 - NED!

DarknessEmbraced
Posts: 3155
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Final Chemo Anniversary

Postby DarknessEmbraced » Mon Sep 17, 2018 10:11 am

Congratulations! :D
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17


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