Hai pumps?

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supportingsister
Posts: 15
Joined: Sun Oct 16, 2011 3:26 pm
Facebook Username: elizabeth kirkpatrick mosier

Hai pumps?

Postby supportingsister » Tue Sep 11, 2018 9:22 am

Hello,
My sister has been fighting stage IV colon cancer four years. She currently has inoperatable mets on her liver. We were hoping to go to SKM this month and discuss the possibility of a hai pump, only to learn that the treatment is being discontinued since the company stopped making the pump. SKM no longer has the treatment available accounting to my sister’s oncologist at mgh in Boston. Does anyone have more info? Are there alternatives? Anyone aware of hospitals still offering this or similar procedures.

Thank you,
Elizabeth.

hiker
Posts: 139
Joined: Thu Aug 09, 2018 10:15 am

Re: Hai pumps?

Postby hiker » Tue Sep 11, 2018 9:27 am

Please contact MSK directly. It's my understanding that they bought up the remaining inventory of the Codman pumps so they may still have some. If not, there was talk about using a different pump.

If your sister only has liver mets, I would encourage you to contact MSK and seek HAI treatment.

hiker
Colonoscopy 2/17, 5cm tumor descending
Diagnosed stage iv, liver mets 3/17
Colon resection 3/17
Told surgery not an option, get my affairs in order
Meet w/MSK team 5/01/17
Folfox(3rds) 5/17-6/17
Liver resection/implant HAI pump 7/17
HAI pump chemo(5rds) 8/17-2/18
Folfiri+Vectibix(11rds) 8/17-2/18
Spot on chest CT 10/17
Lung biopsy (that was fun) 11/17
Nocardia bacterial infection w/spread to brain (this is serious) 11/17
IV antibiotics 12/17-2/18
Oral antibiotics 3/18-12/18
Clear of cancer since surgery

supportingsister
Posts: 15
Joined: Sun Oct 16, 2011 3:26 pm
Facebook Username: elizabeth kirkpatrick mosier

Re: Hai pumps?

Postby supportingsister » Tue Sep 11, 2018 9:40 am

Thank you. Her oncologist, Dr Nip, contacted Dr Epstein directly yesterday. We are waiting for an appointment. Dr Nip believes that SKM is no longer offering that treatment. I’m hoping he is wrong. I’m also hoping we can get some back up hospitals, like Anderson, who still have pumps available if SKM does not.

Why the fuck did they discontinue production. The studies were so promising. I’m pretty pissed. She did 3 months of chemo first, so minimize disrupting her summer plans with her young children. No they are freaking not available!!!

hiker
Posts: 139
Joined: Thu Aug 09, 2018 10:15 am

Re: Hai pumps?

Postby hiker » Tue Sep 11, 2018 9:56 am

I know two people who are scheduled for HAI pump implants this month at MSK, so not sure your doc is correct.

Here is an article discussing the pump being discontinued:

https://www.nytimes.com/2018/04/25/heal ... evice.html

You can be the judge as to why they stopped making it.

Disclaimer: Dr. Kemeny is my oncologist and Dr. D'Angelica is my surgeon.

hiker
Colonoscopy 2/17, 5cm tumor descending
Diagnosed stage iv, liver mets 3/17
Colon resection 3/17
Told surgery not an option, get my affairs in order
Meet w/MSK team 5/01/17
Folfox(3rds) 5/17-6/17
Liver resection/implant HAI pump 7/17
HAI pump chemo(5rds) 8/17-2/18
Folfiri+Vectibix(11rds) 8/17-2/18
Spot on chest CT 10/17
Lung biopsy (that was fun) 11/17
Nocardia bacterial infection w/spread to brain (this is serious) 11/17
IV antibiotics 12/17-2/18
Oral antibiotics 3/18-12/18
Clear of cancer since surgery

heiders33
Posts: 338
Joined: Sat Nov 04, 2017 11:08 am

Re: Hai pumps?

Postby heiders33 » Tue Sep 11, 2018 10:19 am

Your onc is incorrect. MSK is getting HAI pumps now from Medtronic. They are battery powered rather than pressure powered. The Codman pumps are being saved for people who qualify for Kemeny’s trial (non KRAs mutation). The Medtronic pumps are for everyone else. See if you can get in Kemeny’s trial, or if not ask about the Medtronic pumps. I am having this surgery done next week by Dr Kingham. It’s still being done!
36 year-old female
May 2017: Dx rectal cancer T3N2M0
MSS, KRAS G12D
6/17: 28 days chemorad
9/17: LAR/loop ileostomy
10/17 - 2/18: XELOX six rounds
3/18: reversal
5/18: CT liver spot, blood counts normal
8/18: Abnormal PET, CEA 2.4
9/18: liver resection/HAI pump
10/18: Clear CT/sigmoidoscopy
10/18 - 4/19: 6MO FUDR/5FU

supportingsister
Posts: 15
Joined: Sun Oct 16, 2011 3:26 pm
Facebook Username: elizabeth kirkpatrick mosier

Re: Hai pumps?

Postby supportingsister » Tue Sep 11, 2018 4:05 pm

Thank you so much for the information. Mgh does not offer hai pumps and sends people to SKM. As of this morning, my sister was still waiting on the appointment. Sounds like things have been sorted out in the last few weeks. You guys are far more in the know then many doctors.

Cmac1275
Posts: 54
Joined: Mon Aug 06, 2018 4:21 pm

Re: Hai pumps?

Postby Cmac1275 » Sat Sep 15, 2018 5:39 pm

heiders33 wrote:Your onc is incorrect. MSK is getting HAI pumps now from Medtronic. They are battery powered rather than pressure powered. The Codman pumps are being saved for people who qualify for Kemeny’s trial (non KRAs mutation). The Medtronic pumps are for everyone else. See if you can get in Kemeny’s trial, or if not ask about the Medtronic pumps. I am having this surgery done next week by Dr Kingham. It’s still being done!



This is encouraging. My wife and I have reached out to MSK for a possible consultation. We live in Raleigh, so not too much of a burden travel wise. But, my interest in MSK was due to the HAI pump possibility. If that were off the table now, we have top notch cancer centers right here in North Carolina. Although, my wife still thinks I should at least visit the folks at MD Anderson.
42 yr, male, husband and father of 3
DX Stage IV Colon Cancer Jan 2018
Multiple liver mets
KRAS G13D / MSS

Jan 2018 Partial colon resection
Mar 2018 FOLFOX + Avastin | CEA 60.1
July 2018 Partial liver resection | CEA 4.7
Sep 2018 Recurrence in liver | CEA 2.9
Oct 2018 FOLFOX + Avastin
Nov 2018 Stopping FOLFOX. New mets | CEA 4.3
Dec 2018 Beginning AbbVie ABT-165 Trial

User avatar
DBF
Posts: 307
Joined: Fri Jun 07, 2013 1:44 pm
Facebook Username: https://www.facebook.com/#!/profile.php?id=1000008
Location: New York

Re: Hai pumps?

Postby DBF » Mon Sep 17, 2018 11:58 am

I know someone who just got an HAI pump installed at MSK a few weeks ago. He asked his onc about the pumps being discontinued. He was told MSK is continuing to offer them as a surgical option to patients. Good luck!
6/13 Dx @ 29 Wks pregnant, 42 yo
Adenocarcinoma, mucinous features
7/13 C-sec/col resec/part. hysterectomy
8/13 Pulm embolism
8/13 Liv met
9/13 Liv resect
FOLFOX
CEA UP
ADAPT: Xeloda/Celebrex
2/14 oopherectomy
10/15 obstruction surg
10/17 Scar tissue removal/vsg surg
NED :D
Mom to 3 boys: 20, 9 & 5

Cmac1275
Posts: 54
Joined: Mon Aug 06, 2018 4:21 pm

Re: Hai pumps?

Postby Cmac1275 » Mon Sep 17, 2018 6:08 pm

Thanks, @DBF. I just had a liver biopsy done today to confirm suspicious new spots. It’s only been two and a half months since my first of two liver resections. Not happy about this considering I’ve had a very positive journey since my original Dx back in January. The good news is that nothing shows up anywhere else in my body. So, if it turns out that my CRC can’t get enough of my liver, then we would want to at least explore HAI to slow this thing down.
42 yr, male, husband and father of 3
DX Stage IV Colon Cancer Jan 2018
Multiple liver mets
KRAS G13D / MSS

Jan 2018 Partial colon resection
Mar 2018 FOLFOX + Avastin | CEA 60.1
July 2018 Partial liver resection | CEA 4.7
Sep 2018 Recurrence in liver | CEA 2.9
Oct 2018 FOLFOX + Avastin
Nov 2018 Stopping FOLFOX. New mets | CEA 4.3
Dec 2018 Beginning AbbVie ABT-165 Trial


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