When I started chemotherapy...

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Punky44
Posts: 379
Joined: Mon Oct 01, 2018 4:29 pm

Re: When I started chemotherapy...

Postby Punky44 » Fri Mar 22, 2019 10:36 pm

Congrats!
Caregiver to my amazing mom (68)
10/1/18 DX with rectal cancer; CEA 17 at diagnosis
T3N2M0
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
CEA 4/23: 2.1; 7/24: 1.9; 10/22: 2.6
6/28/19 Reversal and port out
10/22 — nodules on lungs—possible infection or mets—PET scheduled for 11/25

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.

Cmarie03
Posts: 29
Joined: Sat Feb 16, 2019 6:35 pm

Re: When I started chemotherapy...

Postby Cmarie03 » Sat Mar 23, 2019 4:01 pm

Congrats!! Oh I loathe the lovenox - have to take for a few months bc I got stupid blood clot around my port. But congrats on NED!! I hope to be where you are one day!!
Diagnosed stage IIIC rectal cancer 12/20/18 in ER
4 rounds FOLFOX January 2019-February 2019
Xeloda/Radiation March 2019-April 2019
4 more rounds FOLFOX 6/5-7/17
Surgery sched 8/20/19

User avatar
mobrouser
Posts: 155
Joined: Wed Apr 11, 2018 1:44 pm
Location: Ontario

Re: When I started chemotherapy...

Postby mobrouser » Mon Sep 23, 2019 3:01 pm

Breaking news (from 10 days ago) - Scanned August 27th and my review appointment with the oncologist was Sept. 12th. It was clear!!!
CEA was 2.4. I’m not a smoker but it appears to be my normal.

In March 2020 it will be a CEA test only, no ultra sound or x-ray, then next scan in August. If all is good next August there will only be CEA tests after that to 5 years.

No more scans? I’m having trouble reconciling that when one of the items the oncologist brought up at my first appointment 21 months ago was survival rates with a 3C diagnosis.

Best wishes to everyone.

Cheers,
mob 8)
CC Dx Oct 2017 @ age 58
Laparoscopic right hemi-colectomy Dec 2017
Adenocarcinoma ascending colon – 6cm x 6cm x 2cm, Low Grade, penetrates to peritoneum
T4a N2a M0, Stage IIIC
lymph nodes 6 positive out of 18
FOLFOX started Jan 16 2018; finished Aug 2 2018 (felt like a year)
CEA - 01/15/18 - 2.8; 07/29/18 - 5.3
CT scan Aug 8 2018 - Clear
PET scan Sept 6 2018 (thought about bringing the cat :wink: ) - Clear
Colonoscopy Dec 7 2018 - Clear - Next in 3 years?

stu
Posts: 1208
Joined: Sat Aug 17, 2013 5:46 pm

Re: When I started chemotherapy...

Postby stu » Mon Sep 23, 2019 4:34 pm

Big Yippee.

No more scans . I guess it will take time to adjust to going solo but you will get there .

Here’s to many long and happy days ahead .

Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

Gravelyguy
Posts: 246
Joined: Thu Jul 05, 2018 6:03 pm

Re: When I started chemotherapy...

Postby Gravelyguy » Tue Sep 24, 2019 12:00 pm

Wonderful News!! The NED club is so much fun. May you be in it a long time!

Dave
6/17 dx mRC t3n1m1 very low rectal tumor 2 liver Mets 1.3 cm and .9 cm

6/17 begin 4 rounds Folfox w/Vectibix
9/17 short course radiation
10/17 rectal and liver resection LAR with coloanal anastomosis (no rectum left)
11/17-3/18 8 rounds Folfox
6/18 still NED!! Takedown
8/28/18 still NED! CEA .8 new low for me
10/18/18 colonoscopy clear
12/12/18 clear scans, CEA .9 still NED!
6/11/19 clear scans CEA 1.0

User avatar
SilverWedding
Posts: 71
Joined: Sat May 18, 2019 5:54 am
Facebook Username: Cynthia Harding Marshall

Re: When I started chemotherapy...

Postby SilverWedding » Thu Sep 26, 2019 11:03 pm

Congratulations. Gives me hope.
DH, 56, Sigmoid & rectum
Adenocarcinoma 2cm
 G2: Moderately differentiated
T3N2aM0
Stage IIIb
LN 6/22
5/19 Baseline CEA value - 18.9
Lymphovascular invasion (LVI): present
Perineural invasion (PNI): not identified
Surgical margins: proximal -negative; distal - negative 1.5cm; circumferential - negative 1mm)
MSI status: Waiting‬
Lynch status: ?
KRAS/BRAF: ?
Open Restorative Proctectomy, J-Pouch Coloanal Anastomosis, Loop Ileo w/Appendectomy
Neo-adjuvant Xeloda/radiation
Adjuvant Chemo: to begin 11/19

Jannine
Posts: 182
Joined: Wed Jun 20, 2018 7:46 am
Location: Maryland, USA

Re: When I started chemotherapy...

Postby Jannine » Fri Sep 27, 2019 6:40 am

Congrats Mob!!! I'm so happy for you!!
DX: sigmoid colon cancer 5/2018. 48 F
laparoscopic sigmoid resection (24 cm removed); no stoma.
7.5cm adenocarcinoma -- mod. diff.
1 noncontiguous tumor deposit removed; 0/31 lymph nodes
T3 pN1c M0
5/18 before surgery, CEA 11.2
6/18 began FOLFOX
7/18: CEA 1.9; added neulasta post infusion
9/18: CEA 2.8
10/18: 25% chemo reduction
11/18: CEA 1.8
7/19 CT scan clear


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