Stewsbetty wrote:I am MSI-h, (MLH1 and PMS2) not Lynch. I did full 12 rounds of folfox and had a recurrence within 5 months. Multiple Mets to lymph nodes all over abdomen, chest and neck. We watched a lymph node in my neck grow 3 cm while doing 2 rounds of folfiri. Then I started Keytruda and within 3 months all my tumours had shrunk by 50%. I am a year in now with just a few involved nodes shrinking or remaining stable.
All that to give you a back story to my advice. I would get on immunotherapy right away and watch what it does. We scanned after 3 rounds and it was amazing to see the results - though it was apparent in my rapidly recovering health anyway. Definitely don’t waste any time on more chemo if it hasn’t shown any positive results. If the immunotherapy isn’t showing shrinkage after a few rounds then I would plan for surgery.
Immunotherapy can be much easier for the body to handle. I am doing so much more living than I was able to in chemo.
As a Canadian I have no advice on drs. But please keep us informed of your progress.
Beth
Thanks Beth! Awesome news about your response to Keytruda. Let's keep these positive stories rolling!