Page 1 of 2

Encouragement

Posted: Wed Aug 29, 2018 9:28 am
by Nancymaxwell
For the past two years I have been turning to this site for information, encouragement, and comfort and now want to offer something in return. In December 2015 my husband was diagnosed with Stage IV CC, with mets to the liver. His CEA was over 1000. With the grace of God and the help of exceptional surgeons, he is here today. Please see the last lines of his status. Thank you all for your courage, honesty, and humor.

12/2014 Dx Stage IV CC, met to liver. INOPERABLE. CEA 1200.
Emergency stent placed in colon; port inserted
12/24/2015 (Christmas Eve) begin FofFox
Good response, CEA dropped; tumors diminished
3/2015 Surgeon feels hepatectomy now possible
3/2015 12 hours of surgery. Hepatectomy and resection of bowel with colostomy. Major blood loss. Surgery slowed. Resuscitation required
Post surgery: Ascites. Denver Shunt proposed twice but ultimately not required.
8 weeks in hospital
CEA 1.7
FolFox again
NED! CEA is tested regularly and has fluctuated within the normal range. As low as 1.6, as high as 2.9
2016 Colostomy reversed.
8/2018 NED!

Re: Encouragement

Posted: Wed Aug 29, 2018 1:22 pm
by mobrouser
Wow, he didn't have an easy route to NED!! The two of you must be absolutely thrilled with this result.
Thanks for sharing your good news with the club.

8) mob

Re: Encouragement

Posted: Wed Aug 29, 2018 1:50 pm
by hiker
Wow, that has been one wild ride so far! Congratulations on the NED status. There really is no feeling quite like being told one's body has been rid of cancer.

Welcome to the club.

hiker

Re: Encouragement

Posted: Wed Aug 29, 2018 1:51 pm
by Lee
That last line is awesome, congratulation!! May he always reside in NEDville.

Lee

Re: Encouragement

Posted: Wed Aug 29, 2018 3:08 pm
by crikklekay
That is such great news, congratulations!!

Re: Encouragement

Posted: Wed Aug 29, 2018 9:16 pm
by Caat55
Thank you!

Re: Encouragement

Posted: Thu Aug 30, 2018 10:07 pm
by NHMike
That's brutal stuff to go through over a long period of time. That's quite the marathon and it says a lot about him and you that he got through it. I hope he remains cancer-free.

Re: Encouragement

Posted: Thu Aug 30, 2018 11:45 pm
by ANDRETEXAS
It sounds like you did take it one day at a time for many, many days. Congratulations!

Re: Encouragement

Posted: Fri Aug 31, 2018 11:40 am
by Eleda
Great to see such a wonderful response and outcome
Long may it last :D :D :D
Sending all good vibe to remain NED
ADELE X

Re: Encouragement

Posted: Mon Sep 03, 2018 2:12 pm
by DarknessEmbraced
Wonderful news! :)

Re: Encouragement

Posted: Mon Sep 03, 2018 8:11 pm
by rtomlin
Congrats! ]Similar diagnosis -- are you allowed to share where you were treated? Thx so much..

Re: Encouragement

Posted: Sat Sep 08, 2018 11:25 am
by Capri
What a long, hard journey this has been for your DH and you. May he remain NED forever!

Re: Encouragement

Posted: Sun Sep 09, 2018 9:44 pm
by mariane
Congratulations!!! Many, many happy years in NEDville!

Re: Encouragement

Posted: Sun Sep 09, 2018 10:15 pm
by martd
rtomlin wrote:Congrats! ]Similar diagnosis -- are you allowed to share where you were treated? Thx so much..


Are you looking for a major cancer center? Are you familiar with MSK in New York? With having liver mets they are probably the best choice. There are many more also.

Re: Encouragement

Posted: Sun Sep 09, 2018 11:32 pm
by tater
Thanks for the post and awesome news.