Encouragement

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Nancymaxwell
Posts: 1
Joined: Thu Dec 24, 2015 7:42 am

Encouragement

Postby Nancymaxwell » Wed Aug 29, 2018 9:28 am

For the past two years I have been turning to this site for information, encouragement, and comfort and now want to offer something in return. In December 2015 my husband was diagnosed with Stage IV CC, with mets to the liver. His CEA was over 1000. With the grace of God and the help of exceptional surgeons, he is here today. Please see the last lines of his status. Thank you all for your courage, honesty, and humor.

12/2014 Dx Stage IV CC, met to liver. INOPERABLE. CEA 1200.
Emergency stent placed in colon; port inserted
12/24/2015 (Christmas Eve) begin FofFox
Good response, CEA dropped; tumors diminished
3/2015 Surgeon feels hepatectomy now possible
3/2015 12 hours of surgery. Hepatectomy and resection of bowel with colostomy. Major blood loss. Surgery slowed. Resuscitation required
Post surgery: Ascites. Denver Shunt proposed twice but ultimately not required.
8 weeks in hospital
CEA 1.7
FolFox again
NED! CEA is tested regularly and has fluctuated within the normal range. As low as 1.6, as high as 2.9
2016 Colostomy reversed.
8/2018 NED!

User avatar
mobrouser
Posts: 69
Joined: Wed Apr 11, 2018 1:44 pm
Location: Ontario

Re: Encouragement

Postby mobrouser » Wed Aug 29, 2018 1:22 pm

Wow, he didn't have an easy route to NED!! The two of you must be absolutely thrilled with this result.
Thanks for sharing your good news with the club.

8) mob
CC Dx Oct 2017 @ age 58
Laparoscopic hemi-colectomy Dec 2017
Adenocarcinoma ascending colon – 6cm x 6cm x 2cm, Low Grade, penetrates to peritoneum
T4a N2a M0, Stage IIIC
lymph nodes 6 positive out of 18
FOLFOX started Jan 16 2018; finished Aug 2 2018 (felt like a year)
CEA - 01/15/18 - 2.8; 07/29/18 - 5.3
CT scan Aug 8 2018 - Clear
PET scan Sept 6 2018 (thought about bringing the cat :wink: ) - Clear

hiker
Posts: 41
Joined: Thu Aug 09, 2018 10:15 am

Re: Encouragement

Postby hiker » Wed Aug 29, 2018 1:50 pm

Wow, that has been one wild ride so far! Congratulations on the NED status. There really is no feeling quite like being told one's body has been rid of cancer.

Welcome to the club.

hiker
Colonoscopy 2/17, 5cm tumor descending
Diagnosed stage iv, liver mets 3/17
Colon resection 3/17
Told surgery not an option, get my affairs in order
Meet w/MSK team 5/01/17
Folfox(3rds) 5/17-6/17
Liver resection/implant HAI pump 7/17
HAI pump chemo(5rds) 8/17-2/18
Folfiri+Vectibix(11rds) 8/17-2/18
Spot on chest CT 10/17
Lung biopsy (that was fun) 11/17
Nocardia bacterial infection w/spread to brain (this is serious) 11/17
IV antibiotics 12/17-2/18
Oral antibiotics 3/18-present
Clear of cancer since surgery

Lee
Posts: 5666
Joined: Sun Apr 16, 2006 4:09 pm

Re: Encouragement

Postby Lee » Wed Aug 29, 2018 1:51 pm

That last line is awesome, congratulation!! May he always reside in NEDville.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

crikklekay
Posts: 49
Joined: Thu Feb 15, 2018 9:47 am
Location: Richmond, VA

Re: Encouragement

Postby crikklekay » Wed Aug 29, 2018 3:08 pm

That is such great news, congratulations!!
Caring for DH John, 41
DX: Colon Cancer, Sigmoid colon
Tumor type: Adenocarcinoma
Tumor grade: G2, Moderately differentiated w/invasion of visceral peritoneum
Stage IIIC
Positive lymph nodes: 6/22
Chemotherapy: FOLFOX (6)
12/17 ER and emergency surgery
02/18 Hospital w/ MSSA infected port, PICC line inserted, abdominal CT scan clear chest CT scan showed septic emboli & blood clots
03/18 Hospital w/ CDIFF
04/18 Chest CT scan clear
06/18 Colonoscopy Clear
08/18 CT Scan Clear, NEMD

Caat55
Posts: 515
Joined: Sat Dec 23, 2017 6:01 pm

Re: Encouragement

Postby Caat55 » Wed Aug 29, 2018 9:16 pm

Thank you!
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds

NHMike
Posts: 1700
Joined: Fri Jul 21, 2017 3:43 am

Re: Encouragement

Postby NHMike » Thu Aug 30, 2018 10:07 pm

That's brutal stuff to go through over a long period of time. That's quite the marathon and it says a lot about him and you that he got through it. I hope he remains cancer-free.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 9/8: 1.8; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal

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ANDRETEXAS
Posts: 587
Joined: Fri Feb 14, 2014 11:01 am
Location: Austin, Texas (University of Tennessee alumnus)

Re: Encouragement

Postby ANDRETEXAS » Thu Aug 30, 2018 11:45 pm

It sounds like you did take it one day at a time for many, many days. Congratulations!
2014
2/10 - Colon resect
2/13 - DX- Stg IIIb
3/7 - Port placed
3/11 - FOLFOX (12 rds w/full oxi)
8/14 - Chemo finish
8/25 - CT- Inc
9/5 - clean PET
12/10- clean CT
2015
3/2 - Clean colonoscopy & port removed
3/4- clean CT
9/21- clean CT
2016
3/23- clean CT
2017
2/22- clean CT
2018
3/21 - clean CT
4/11 - clean colonoscopy

ONE DAY AT A TIME !

Eleda
Posts: 157
Joined: Thu Dec 28, 2017 2:28 am
Facebook Username: adele Morgan
Location: Ireland

Re: Encouragement

Postby Eleda » Fri Aug 31, 2018 11:40 am

Great to see such a wonderful response and outcome
Long may it last :D :D :D
Sending all good vibe to remain NED
ADELE X
SWF, 47
Mom to 3 sons 6/8/12
Dec4th 2017 colonoscopy for minor intermittent rectal bleeding during Summer
CEA 4.4
DX T3 L3C M0 2.5/3 cm above AV.
JAN 3RD started 1650mg Zelda 2xday, with 28 radiation
Did tagamet 800mg daily and 75mg IV VIT C WEEKLY UNTIL SURGERY and
Tumor reduce by 80% 1 LN still remaining
TATME May10th, temp illeostomy
10/07/2018 CEA 3
MMR INTACT
Began FOLFOX July 10th
24/08/2018 Allergic reaction so next infusion lucovorin and 5fu
CEA 4
Second attempt with oxi aug 12th

DarknessEmbraced
Posts: 3115
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Encouragement

Postby DarknessEmbraced » Mon Sep 03, 2018 2:12 pm

Wonderful news! :)
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17

rtomlin
Posts: 1
Joined: Mon Sep 03, 2018 3:07 pm

Re: Encouragement

Postby rtomlin » Mon Sep 03, 2018 8:11 pm

Congrats! ]Similar diagnosis -- are you allowed to share where you were treated? Thx so much..

Capri
Posts: 65
Joined: Thu Apr 19, 2018 5:59 pm

Re: Encouragement

Postby Capri » Sat Sep 08, 2018 11:25 am

What a long, hard journey this has been for your DH and you. May he remain NED forever!
Mom to son 46 yo at Dx (2017)
9/17 rectal bleeding
12/17 colonoscopy sigmoid tumor; CT & MRI chest, abd,& pelvis clear; CEA normal
1/18 Robotic resection, Path: adenocarcinoma, Stg. IIIA T3 N1 MX, mod. differentiated, margins clear
2/18 Port placed; 2/26/18 Begins FOLFOX
6/18 On Early surveillance CT 2 liver hemangiomas, PET scan-nothing "lit up"
Neuropathy has started.
7/30/18 Completed 12 cycles of FOLFOX.

mariane
Posts: 623
Joined: Sun Sep 13, 2015 6:16 pm

Re: Encouragement

Postby mariane » Sun Sep 09, 2018 9:44 pm

Congratulations!!! Many, many happy years in NEDville!
mom of now 9 years old twins, dx @ 40 in 6/2015 with upper rectal cancer, 10+ liver mets, CEA 140
chemo: 8/2015 - 10/2016 - 4xFOLFIRINOX, 2xFOLFOX, 8xFOLFIRI, 10x5FU, HAI pump -12xFUDR
4 surgeries, complete pathological response
CEA<2 since 10/2015
NED since May 2016

I praise God for every day with my family!

martd
Posts: 46
Joined: Tue Nov 21, 2017 3:48 pm

Re: Encouragement

Postby martd » Sun Sep 09, 2018 10:15 pm

rtomlin wrote:Congrats! ]Similar diagnosis -- are you allowed to share where you were treated? Thx so much..


Are you looking for a major cancer center? Are you familiar with MSK in New York? With having liver mets they are probably the best choice. There are many more also.
49 y/o male dx 11/2017 crc
Stage 4 with 17 liver Mets, cea 490
RAS, BRAF WT
12 rounds folfox , avastin / oxi
5/18 cea 2.8 liver resection and pve
7/18 part 2 liver resection, remove right side of liver
Surgical site mrsa infection, wound vac
8/18 cea .9 complete clinical response, rectal tumor is gone!
Rectal surgery postponed, wait and watch

tater
Posts: 67
Joined: Wed Jul 19, 2017 5:53 pm

Re: Encouragement

Postby tater » Sun Sep 09, 2018 11:32 pm

Thanks for the post and awesome news.
DH to 38 wife w/kids
Stage 3C DX 3/3/17 CEA 29
5-fu and radiation ended May 17, 2017
Stage 4 External iliac node July 17, 2017
FOLFOX + Avistan July 18 2017 CEA 2.3
Nov 9, 2017 LAR, Hysterectomy & External Nodes Removed W/ileostomy
CEA 1.5 12/17, 2.1 2/18, 2.3 6/18, 1.1 9/18
Clear CT and MRI on 2/5/2018
Reversal Surgery 6/26/18


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