Surgery Tomorrow - 27th New Zealand Time

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SteveNZ
Posts: 147
Joined: Tue Apr 24, 2018 4:21 pm
Location: New Zealnd

Re: Surgery Tomorrow - 27th New Zealand Time

Postby SteveNZ » Sun Sep 16, 2018 4:39 pm

Eleda wrote:
AppleTree wrote:Thank you for the update. I was in ICU for 3 days (they had a/c there) before they moved me to a regular unairconditioned room. Yes, walking was key and trying to sit on a chair in 1/2 hour increments. About 5 days later I had tons of fecal matter come out down my legs. What a mess. They told me this was normal after getting a stoma...the last bits so to say. So maybe he will want a depends or mat on the bed. I was so shocked and upset, but if I had known ahead of time it would not have been such a surprise.



Appletree, the exact same happen me, firstly in the hospital 4days post surgery

Second thankful in a hospital again the day I started chemo exactly 2 months later

What looked and textured like pancake batter , it's was such a shock, I was nervous leaving the house again for a while,,, ( I now carry depends incase)
Apparently it's nothing serious,,
Just embarrassing!!!!!!!!

It's amazing how doctors differ
Met my surgeon Fri in connection to reversal ( of course he wants to see his handwork working)
And asked about lazy bowel if I leave it too long!!!! ( After X mas) and he says no if it's 4 months or 24 months I/u pretty much have a new rectum that will need retraining regardless,.

Steve that was my worst nightmare ( a bag at 47!!!!not the cancer :D lol ) at the time, but 4 months in and with the proper bag,,,, it's a piece of cake so if my reversal goes badly,,, I ain't pushed TBH,,, it's not that bad I'm reality, so don't think of its as such. Bad thing

Mike I can now go a week or over with the convex sensuro mio bags
It's brilliant, I'm Evan going back to Spain on a girls holiday next month and then back again with my kids,,,,

Hope u start to recover quickly Steve :D
Adele X

Thank you.
It is the pits. :(
I thought it would all be be smooth sailing but wow.
Am healing slowly.
Aged 56 - I feel really young...
Colo-Rectal Cancer T2 N1 M0
March 2018 - Diagnosis
April-May 2018 Radiation+Chemo then a TIA (Minor Stroke). - Stopped Chemo.
August 27th-November 2018 - Surgery and long, long recovery
*Decided to live to 100 as I will get a telegram from Her Majesty the Queen when 100yrs old. I so, so want one.
Am a Salvation Army chap so I complete 'knee drill' (prayer) to the Commander in Chief often. For myself personally this helps me through.

NHMike
Posts: 2555
Joined: Fri Jul 21, 2017 3:43 am

Re: Surgery Tomorrow - 27th New Zealand Time

Postby NHMike » Sun Sep 16, 2018 5:26 pm

SteveNZ wrote:Thank you for your replies.
UPDATE- At day 18 after op bowel was still not working. :(
Very painful and I look like I am having twins.
X-ray showed swoolen areas and blockages. Pretty sure it is the irradiated intestines playing up.
Being fed by IV.
Day 19 bowel finally started slowly and with much pain. :D :( :( :D

Today are trying food through nasal tube (man I gag continually with that) again and hoping all will keep working. Surgeon would rather follow this rather than operate to "rummage around".

So getting there.


I'm glad you're feeling well enough to post through this awful ordeal. I do hope that it gets better and better.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

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mobrouser
Posts: 173
Joined: Wed Apr 11, 2018 1:44 pm
Location: Ontario

Re: Surgery Tomorrow - 27th New Zealand Time

Postby mobrouser » Sun Sep 16, 2018 5:29 pm

Thanks for the update, we've missed your cheery voice here.
Wow 18+ days, I can only imagine how you must feel. And you have had such a tough go of it from the very beginning too.

Sending wishes that everything is on an upswing for you from now on.

Cheers,
mob 8)
CC Dx 102017 age 58
Lap. right hemi-colectomy Dec 2017
Adenocarcinoma ascending colon – 6cm x 6cm x 2cm, Low Grade, penetrates to peritoneum
T4a N2a M0, Stage IIIC
lymph nodes 6 positive out of 18
FOLFOX start Jan/18 end Aug/8 (felt like a year)
CEA - 01/15/18-2.8; 07/29/18-5.3; 09/19-2.4; 03/20-2.7; 09/20-2.9
CT scan 08/18 - Clear; 10/19 - Clear; * 10/20 - 8mm & 6mm nodules in liver
PET scan 09/18 (thought about bringing the cat :wink: ) - Clear
Colonoscopy Dec 7 2018 - Clear - Next in 3 years?

Gravelyguy
Posts: 382
Joined: Thu Jul 05, 2018 6:03 pm

Re: Surgery Tomorrow - 27th New Zealand Time

Postby Gravelyguy » Sun Sep 16, 2018 6:53 pm

Thanks for the update. Sorry it has been such a rough go. Praying the next 18 days get much better than the last.

Dave
6/17 dx mRC t3n1m1 very low rectal tumor 2 liver Mets 1.3 cm and .9 cm

6/17 begin 4 rounds Folfox w/Vectibix
9/17 short course radiation
10/17 rectal and liver resection LAR with coloanal anastomosis (no rectum left)
11/17-3/18 8 rounds Folfox
6/18 still NED!! Takedown
8/28/18 still NED! CEA .8 new low for me
10/18/18 colonoscopy clear
12/12/18 CEA .9 still NED!
6/11/19 CEA 1.0
12/19/19 CEA 1.0 still NED!
6/17/20 CEA 1.1 still NED!
12/15/20 CEA 1.1still NED!
12/16/21 CEA 1.2 still NED!

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O Stoma Mia
Posts: 1709
Joined: Sat Jun 22, 2013 6:29 am
Location: On vacation. Off-line for now.

Re: Surgery Tomorrow - 27th New Zealand Time

Postby O Stoma Mia » Mon Sep 17, 2018 1:34 am

It was nice to hear from you. I'm sorry to hear that you are having such a tough recovery, however.

In case you're interested, here are some nice photos of New Zealand North Island, and New Zealand South Island for your review. Do you recognize any of these places?


http://praisephotography.com/photo-collections-2/new-zealand-north-island/

http://praisephotography.com/photo-collections-2/new-zealand-south-island/

SteveNZ
Posts: 147
Joined: Tue Apr 24, 2018 4:21 pm
Location: New Zealnd

Re: Surgery Tomorrow - 27th New Zealand Time

Postby SteveNZ » Thu Sep 20, 2018 3:52 pm

O Stoma Mia wrote:It was nice to hear from you. I'm sorry to hear that you are having such a tough recovery, however.

In case you're interested, here are some nice photos of New Zealand North Island, and New Zealand South Island for your review. Do you recognize any of these places?


http://praisephotography.com/photo-collections-2/new-zealand-north-island/

http://praisephotography.com/photo-collections-2/new-zealand-south-island/

They are wonderful. I have been to all those locations. New Zealand is pretty small and I love exploring.
Aged 56 - I feel really young...
Colo-Rectal Cancer T2 N1 M0
March 2018 - Diagnosis
April-May 2018 Radiation+Chemo then a TIA (Minor Stroke). - Stopped Chemo.
August 27th-November 2018 - Surgery and long, long recovery
*Decided to live to 100 as I will get a telegram from Her Majesty the Queen when 100yrs old. I so, so want one.
Am a Salvation Army chap so I complete 'knee drill' (prayer) to the Commander in Chief often. For myself personally this helps me through.

SteveNZ
Posts: 147
Joined: Tue Apr 24, 2018 4:21 pm
Location: New Zealnd

Re: Surgery Tomorrow - 27th New Zealand Time

Postby SteveNZ » Thu Sep 20, 2018 4:05 pm

NEW SURGERY- Today 21st
Intestines refuse to work. Pretty painful.
Surgeon pretty sure scar tissue causing issues. Lapraotomy to check things out.
Feeling a bit down :(
Aged 56 - I feel really young...
Colo-Rectal Cancer T2 N1 M0
March 2018 - Diagnosis
April-May 2018 Radiation+Chemo then a TIA (Minor Stroke). - Stopped Chemo.
August 27th-November 2018 - Surgery and long, long recovery
*Decided to live to 100 as I will get a telegram from Her Majesty the Queen when 100yrs old. I so, so want one.
Am a Salvation Army chap so I complete 'knee drill' (prayer) to the Commander in Chief often. For myself personally this helps me through.

stu
Posts: 1612
Joined: Sat Aug 17, 2013 5:46 pm

Re: Surgery Tomorrow - 27th New Zealand Time

Postby stu » Thu Sep 20, 2018 4:54 pm

Sounds rough . Much love coming from Scotland.
Hope it resolved soon .
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

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CRguy
Posts: 10472
Joined: Sun Feb 10, 2008 6:00 pm

Re: Surgery Tomorrow - 27th New Zealand Time

Postby CRguy » Thu Sep 20, 2018 6:06 pm

SteveNZ wrote:NEW SURGERY- Today 21st
Intestines refuse to work. Pretty painful.
Surgeon pretty sure scar tissue causing issues. Lapraotomy to check things out.
Feeling a bit down :(

Stay strong
and keep ON
KEEPIN' ON !!!!
my friend

Mega posi +++++ vibes and Harmony coming your way
for a successful follow up, and gentle healing

On the Journey with you
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

peanut_8
Posts: 2340
Joined: Sun May 25, 2014 1:31 pm

Re: Surgery Tomorrow - 27th New Zealand Time

Postby peanut_8 » Thu Sep 20, 2018 6:13 pm

Steve

Can certainly understand why you're feeling down. 21 days is a really long time. Hope the surgeon gets things working again.

Best Wishes,
peanut
female, diagnosed Jan 14, RC stage 2a, age 56
MSS
April 14, 28 chemo/rad with Xeloda
June 14 adjuvant Xeloda 6 rounds
currently NED

martd
Posts: 128
Joined: Tue Nov 21, 2017 3:48 pm
Location: Phoenix, Az

Re: Surgery Tomorrow - 27th New Zealand Time

Postby martd » Thu Sep 20, 2018 6:38 pm

Hang in there Steve. Sorry you're such a rough time. Smooth sailing from here on out. You'll get through it.

Dan
49 y/o male dx 11/2017 crc
Stage 4 with 17 liver Mets, cea 490
RAS, BRAF WT Tp53 LOF
12 rounds folfox , avastin
5/18 cea 2.8 liver resection and pve
7/18 part 2 liver resection, remove right side of liver
Surgical site mrsa infection, wound vac
8/18 cea .9 cCR, rectal tumor is gone
Rectal surgery postponed, watch and wait
10/18 clear scan CEA .7
01/19 clear scan CEA .9
04/19 clear scan CEA .9
07/19 clear scan CEA 1.0

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Atoq
Posts: 412
Joined: Wed Oct 25, 2017 9:31 am

Re: Surgery Tomorrow - 27th New Zealand Time

Postby Atoq » Fri Sep 21, 2018 3:26 am

Good luck! I hope this is resolutive!
Looking forward to hearing from you again.

Claudia
1972, 2 kids
Dx rectal cancer 10.2017
T3N2aMX (met left lung 8 mm)
Lynch neg
CEA 1.8
Neoadjuvant chemoradio Xeloda + 25x2 Gy
05.12.17 laparotomic surg. for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle lung biopsy
07.05.18 CAT scan, lung met 11 mm
04.06.18 ileo reversal
26.06.18 wedge VATS
24.08.18, 31.02.19 CAT scan
12.09.18, 06.02.19 scope, CEA 1.6
19.11.18 scope
20.08.19 CAT, eco
13.09.19 scope, CEA 1.2
18.03.20 CAT, eco, scope, NED
29.11.20 CAT, NED
2023 NED

Thetoad
Posts: 165
Joined: Mon Nov 23, 2015 2:46 am
Location: New Zealand

Re: Surgery Tomorrow - 27th New Zealand Time

Postby Thetoad » Sun Sep 23, 2018 2:27 am

Keep fighting Kiwi. Best wishes from Dunedin.
Emergency extended rt hemi November 2013.
Complete blockage, small perforation.
Stage 2a.
T3N0M0
22 Lymph nodes clear.
No bag.

Yearly appts appts and 6 monthly CEA tests.
Incisional hernia repair, mesh Nov. 2014.
Cellulitus
CEA 1.4 on 28/7/17
27/5/17. Gallbladder removed, open.
Good consultation Feb. 2017
CEA 1.7 on 16/11/17 colonoscopy ok Jan. 2018 :)
Nurse pleased, March 2018. CEA 1.8. One more CEA test and hopefully last appt in November, 2018.
Prostate cancer, Gleason 7 (3+4) Sept. '18.

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Maggie Nell
Posts: 1150
Joined: Wed May 27, 2015 1:57 am
Location: Central Highlands, Victoria, Oz

Re: Surgery Tomorrow - 27th New Zealand Time

Postby Maggie Nell » Sun Sep 30, 2018 5:20 am

How's it going Steve?
DX April 2015, @ 54
35mm poorly diff. tumour, incidental finding following emergency R. hemicolectomy
for ileo-colic intussusception.
Lymph nodes: 0/22
T3 N0 MX
Stage II CRC, no adjuvant chemo required.

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mobrouser
Posts: 173
Joined: Wed Apr 11, 2018 1:44 pm
Location: Ontario

Re: Surgery Tomorrow - 27th New Zealand Time

Postby mobrouser » Sun Sep 30, 2018 8:30 am

I was wondering that too....
Steve I'm hoping that you're recovering well and that you'll be posting pics from Harry and Meagan's October tour of NZ for us!!!
Cheers.

8) mob
CC Dx 102017 age 58
Lap. right hemi-colectomy Dec 2017
Adenocarcinoma ascending colon – 6cm x 6cm x 2cm, Low Grade, penetrates to peritoneum
T4a N2a M0, Stage IIIC
lymph nodes 6 positive out of 18
FOLFOX start Jan/18 end Aug/8 (felt like a year)
CEA - 01/15/18-2.8; 07/29/18-5.3; 09/19-2.4; 03/20-2.7; 09/20-2.9
CT scan 08/18 - Clear; 10/19 - Clear; * 10/20 - 8mm & 6mm nodules in liver
PET scan 09/18 (thought about bringing the cat :wink: ) - Clear
Colonoscopy Dec 7 2018 - Clear - Next in 3 years?


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