Surgery Tomorrow - 27th New Zealand Time

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Lee
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Re: Surgery Tomorrow - 27th New Zealand Time

Postby Lee » Wed Aug 29, 2018 1:49 pm

AppleTree wrote: . . . About 5 days later I had tons of fecal matter come out down my legs. What a mess. They told me this was normal after getting a stoma....


How did that happen, the mess down your leg? Am I correct to assume you did not have a wafer or a bag on? I had a wafer and a bag on from the moment surgery was finished. I was about 4 days out from surgery when I passed stool for the 1st time, butt it went into a clear bag, no mess.

I don't think I would have been happy either.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

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O Stoma Mia
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O/T: Mucoid plaque

Postby O Stoma Mia » Wed Aug 29, 2018 8:25 pm

AppleTree wrote: . . . About 5 days later I had tons of fecal matter come out down my legs. What a mess. They told me this was normal after getting a stoma....

This can happen even if you have an ileostomy bag on. It has a name. it's called mucoid plaque, I think.

I don't think it would happen if you had an APR surgery with a permanent colostomy bag, however, because the back passage is all closed up in that case.

https://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=50238&hilit=mucoid+plaque#p383928
Last edited by O Stoma Mia on Wed Aug 29, 2018 10:04 pm, edited 1 time in total.

Caat55
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Re: Surgery Tomorrow - 27th New Zealand Time

Postby Caat55 » Wed Aug 29, 2018 9:15 pm

Thinking positive thoughts Steve that you are feeling better, moving without as much pain and will be soon able to let us know in person how you are doing. Strong thoughts heading down your way.

Susan
Do at 55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds
CT NED 9/2018
PET NED 12/18
Clear Colonoscopy 2/19, 5/20

Lee
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Joined: Sun Apr 16, 2006 4:09 pm

Re: Surgery Tomorrow - 27th New Zealand Time

Postby Lee » Wed Aug 29, 2018 9:24 pm

O Stoma Mia wrote:
AppleTree wrote: . . . About 5 days later I had tons of fecal matter come out down my legs. What a mess. They told me this was normal after getting a stoma....

This can happen even if you have an ileostomy bag on. It has a name. it's called mucoid plaque, I think.

I don't think it would happen if you had an APR surgery with a permanent colostomy bag, however, because the back passage is all closed up in that case.

https://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=50238&hilit=mucoid+plaque#p383928


Thank you OSM, I'm a bit smarter today thanks to you. Now I understand how this could happen. Yes I have a permanent colostomy (14+ yrs now), Barbie Butt, all closed up back there. Butt with an ileostomy, totally different anatomy from my situation.

Thank you,

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

J-man
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Joined: Tue Jan 29, 2013 4:14 am

Re: Surgery Tomorrow - 27th New Zealand Time

Postby J-man » Thu Aug 30, 2018 12:52 am

I am sending my very best wishes for a successful surgery and a good recovery.

J

rtcasper
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Location: Ohio

Re: Surgery Tomorrow - 27th New Zealand Time

Postby rtcasper » Thu Aug 30, 2018 7:26 am

Steve, hope things are going well for you. Always in my prayers!
By the glory, by the grace, by the strength of God, I will be made whole.

43-M
Aug 3, 18-colonoscopy, 5cm mass 12cm from AV rectal cancer
Aug 16-MRI
Aug 17-CT,chest and pelvis
CEA-.99-likely not a good marker
Clinical DX-T2/T3n1 -3cm mass, 13.5 from AV-might be colon? - let surgeon make determination
Sept 10-14 radiation
Sept 25-CR lap surgery, temp loop ileostomy
Oct 2-path stage pT1N0M0-no chemo recommended
Jan 8-stoma takedown
Jan-April- C diff
May-Fecal matter transplant
Sept-Clean scan NED

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O Stoma Mia
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Re: Surgery Tomorrow - 27th New Zealand Time

Postby O Stoma Mia » Thu Aug 30, 2018 8:21 am

SteveNZ wrote:Hello, this is Susie, Steve's wife. He wanted me to let you know how the surgery went and how he is feeling now.

The surgery was 4 hours and he was in recovery over 3 hours...

Hi Susie -

Thank you for taking the time to give us the update on Steve.

Over 7 hours in surgery/recovery! That sounds like a long time. It must have been a very stressful time for you. Please take care of yourself now and try to get some rest.

DarknessEmbraced
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Re: Surgery Tomorrow - 27th New Zealand Time

Postby DarknessEmbraced » Mon Sep 03, 2018 2:15 pm

I hope your surgery went well!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

NHMike
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Re: Surgery Tomorrow - 27th New Zealand Time

Postby NHMike » Mon Sep 03, 2018 4:21 pm

I'v had episodes of stuff coming out of the rear end, with the ileostomy and it was usually because it went down the other opening. It was usually the result of sleeping horizontally with the waste flowing up towards the stoma. This was fixed by sleeping on a foam wedge.

Steve sounds like he's had a pretty tough time of it so far - it's hard for me to tell as he's gotten a colostomy which is a lot different from an ileostomy.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

SteveNZ
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Re: Surgery Tomorrow - 27th New Zealand Time

Postby SteveNZ » Tue Sep 04, 2018 4:36 pm

Update.
Colon refuses to start up. :( :(
Have to be fed and all else (medication) interveniously so not a happy chapel.
The nasal gastric tube is the pits.
Aged 56 - I feel really young...
Colo-Rectal Cancer T2 N1 M0
March 2018 - Diagnosis
April-May 2018 Radiation+Chemo then a TIA (Minor Stroke). - Stopped Chemo.
August 27th-November 2018 - Surgery and long, long recovery
*Decided to live to 100 as I will get a telegram from Her Majesty the Queen when 100yrs old. I so, so want one.
Am a Salvation Army chap so I complete 'knee drill' (prayer) to the Commander in Chief often. For myself personally this helps me through.

Soccermom2boys
Posts: 222
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Re: Surgery Tomorrow - 27th New Zealand Time

Postby Soccermom2boys » Tue Sep 04, 2018 7:36 pm

Steve—I was happy to see you were posting an update, but then bummed to hear it has been a tough recovery for you, sorry. I had a ng tube for 48 hours after surgery and was going crazy, so I am feeling for you and truly hope your colon gets it’s act together soon so you can get rid of that tube. Your wife mentioned you had to have an ostomy because of radiation damage—is it a permanent colostomy? I had to have one because my tumor was butting up against the anal sphincter so it was either clear margins and a permanent colostomy or majorly risk a recurrence but no colostomy—I feel I chose wisely. :D Always know you have quite a few of us on here with permanent ostomies if you have questions. Keeping you in my thoughts as you continue to recover.
8/3/15 Went in with a hemorrhoid, came out with a tumor
8/12/15 Biopsy from colonoscopy confirms RC (45 yrs old--zero family history!)
9/21 - 10/29/15 chemorad 28 tx (with Xeloda)
12/17/15 APR with perm colostomy
Pathology report stages me as IIIA (T2N1M0)--1/15 LN detects cancer
2/3/16 chemo port inserted
2/8-6/2/16 8 rounds of Folfox

NHMike
Posts: 2555
Joined: Fri Jul 21, 2017 3:43 am

Re: Surgery Tomorrow - 27th New Zealand Time

Postby NHMike » Tue Sep 04, 2018 7:45 pm

Sorry to hear that the large intestine hasn't woken up. I do hope that it gets started up soon so that you can get back to the new normal.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

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O Stoma Mia
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Re: Surgery Tomorrow - 27th New Zealand Time

Postby O Stoma Mia » Wed Sep 05, 2018 3:29 am

SteveNZ wrote:Update.
Colon refuses to start up. :( :(
Have to be fed and all else (medication) interveniously so not a happy chapel.
The nasal gastric tube is the pits.

Thank you for the update. I'm sorry to hear that your bowel is still asleep and that you are now on TPN (Total Parenteral Nutrition).

Five years ago I was in this situation for a total of about three weeks. I eventually had to have a central line port installed because the peripheral IV lines that they were using at the beginning were too narrow to handle the thick, viscous TPN solutions. A central line port has a wider diameter, and the viscous protein TPN can flow more smoothly there.

The bowel condition your wife referred to earlier is called 'paralytic ileus'. You can find out more about it on the Internet. It can affect any part of the intestine.

Since you might be losing weight because of eating so little, you should check to see what your current Body Mass Index (BMI) is, because if it gets below 18.5 then you would be in the cachexia danger zone:
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=46365&p=340274#p340274

When I was in the hospital under TPN, I lost quite a bit of weight because the protein fluid didn't flow fast enough through the IV tube, and the narrow-gauge IV tube kept getting clogged up.
.
.

Eleda
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Location: Ireland

Re: Surgery Tomorrow - 27th New Zealand Time

Postby Eleda » Wed Sep 05, 2018 5:08 am

AppleTree wrote:Thank you for the update. I was in ICU for 3 days (they had a/c there) before they moved me to a regular unairconditioned room. Yes, walking was key and trying to sit on a chair in 1/2 hour increments. About 5 days later I had tons of fecal matter come out down my legs. What a mess. They told me this was normal after getting a stoma...the last bits so to say. So maybe he will want a depends or mat on the bed. I was so shocked and upset, but if I had known ahead of time it would not have been such a surprise.



Appletree, the exact same happen me, firstly in the hospital 4days post surgery

Second thankful in a hospital again the day I started chemo exactly 2 months later

What looked and textured like pancake batter , it's was such a shock, I was nervous leaving the house again for a while,,, ( I now carry depends incase)
Apparently it's nothing serious,,
Just embarrassing!!!!!!!!

It's amazing how doctors differ
Met my surgeon Fri in connection to reversal ( of course he wants to see his handwork working)
And asked about lazy bowel if I leave it too long!!!! ( After X mas) and he says no if it's 4 months or 24 months I/u pretty much have a new rectum that will need retraining regardless,.

Steve that was my worst nightmare ( a bag at 47!!!!not the cancer :D lol ) at the time, but 4 months in and with the proper bag,,,, it's a piece of cake so if my reversal goes badly,,, I ain't pushed TBH,,, it's not that bad I'm reality, so don't think of its as such. Bad thing

Mike I can now go a week or over with the convex sensuro mio bags
It's brilliant, I'm Evan going back to Spain on a girls holiday next month and then back again with my kids,,,,

Hope u start to recover quickly Steve :D
Adele X
SWF, 47
Mom to 3 sons 6/8/12
Dec4th 2017 colonoscopy for minor intermittent rectal bleeding during Summer
CEA 4.4
DX T3 L3C M0 2.5/3 cm above AV.
JAN 3RD started 1650mg Zelda 2xday, with 28 radiation
Did tagamet 800mg daily and 75mg IV VIT C WEEKLY UNTIL SURGERY and
Tumor reduce by 80% 1 LN still remaining
TATME May10th, temp illeostomy
10/07/2018 CEA 3
MMR INTACT
Began FOLFOX July 10th
24/08/2018 Allergic reaction so next infusion lucovorin and 5fu
CEA 4
Second attempt with oxi aug 12th

SteveNZ
Posts: 147
Joined: Tue Apr 24, 2018 4:21 pm
Location: New Zealnd

Re: Surgery Tomorrow - 27th New Zealand Time

Postby SteveNZ » Sun Sep 16, 2018 4:31 pm

Thank you for your replies.
UPDATE- At day 18 after op bowel was still not working. :(
Very painful and I look like I am having twins.
X-ray showed swoolen areas and blockages. Pretty sure it is the irradiated intestines playing up.
Being fed by IV.
Day 19 bowel finally started slowly and with much pain. :D :( :( :D

Today are trying food through nasal tube (man I gag continually with that) again and hoping all will keep working. Surgeon would rather follow this rather than operate to "rummage around".

So getting there.
Aged 56 - I feel really young...
Colo-Rectal Cancer T2 N1 M0
March 2018 - Diagnosis
April-May 2018 Radiation+Chemo then a TIA (Minor Stroke). - Stopped Chemo.
August 27th-November 2018 - Surgery and long, long recovery
*Decided to live to 100 as I will get a telegram from Her Majesty the Queen when 100yrs old. I so, so want one.
Am a Salvation Army chap so I complete 'knee drill' (prayer) to the Commander in Chief often. For myself personally this helps me through.


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