Surgery Tomorrow - 27th New Zealand Time

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rtcasper
Posts: 50
Joined: Sat Aug 04, 2018 12:12 pm
Location: Ohio

Re: Surgery Tomorrow - 27th New Zealand Time

Postby rtcasper » Sun Sep 30, 2018 2:01 pm

Steve, how are things going for you? I pray all is well my friend.
By the glory, by the grace, by the strength of God, I will be made whole.

43-M
Aug 3, 18-colonoscopy, 5cm mass 12cm from AV rectal cancer
Aug 16-MRI
Aug 17-CT,chest and pelvis
CEA-.99-likely not a good marker
Clinical DX-T2/T3n1 -3cm mass, 13.5 from AV-might be colon? - let surgeon make determination
Sept 10-14 radiation
Sept 25-CR lap surgery, temp loop ileostomy
Oct 2-path stage pT1N0M0-no chemo recommended
Jan 8-stoma takedown
Jan-April- C diff
May-Fecal matter transplant
Sept-Clean scan NED

SteveNZ
Posts: 147
Joined: Tue Apr 24, 2018 4:21 pm
Location: New Zealnd

Re: Surgery Tomorrow - 27th New Zealand Time

Postby SteveNZ » Mon Oct 22, 2018 9:11 pm

Sorry for not being around, I have been high on oxy contime and in awful, awful pain.
UPDATE- Things were pretty awful for a while.
My system refused to work and the scan showed a fluid build up so had a drain in my side. Everything had to be fed into me by IV.

Finally most pain has gone and today stoma was working.
Hurray, things getting there at last..
AND am eating again..... what a struggle that was. Am finally off the intravenous, tpn feeding system.

Thanks for being there.
Last edited by SteveNZ on Mon Oct 22, 2018 9:15 pm, edited 1 time in total.
Aged 56 - I feel really young...
Colo-Rectal Cancer T2 N1 M0
March 2018 - Diagnosis
April-May 2018 Radiation+Chemo then a TIA (Minor Stroke). - Stopped Chemo.
August 27th-November 2018 - Surgery and long, long recovery
*Decided to live to 100 as I will get a telegram from Her Majesty the Queen when 100yrs old. I so, so want one.
Am a Salvation Army chap so I complete 'knee drill' (prayer) to the Commander in Chief often. For myself personally this helps me through.

NHMike
Posts: 2506
Joined: Fri Jul 21, 2017 3:43 am

Re: Surgery Tomorrow - 27th New Zealand Time

Postby NHMike » Mon Oct 22, 2018 9:14 pm

Happy to hear that things turned for the better. That sounded like quite the ordeal.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

SteveNZ
Posts: 147
Joined: Tue Apr 24, 2018 4:21 pm
Location: New Zealnd

Re: Surgery Tomorrow - 27th New Zealand Time

Postby SteveNZ » Mon Oct 22, 2018 9:22 pm

NHMike wrote:Happy to hear that things turned for the better. That sounded like quite the ordeal.

It was the pits.
High all the time, and high Temps plus tubes up my nose. Sadly I could not handle the ng tube well gagging/choking continually. They numbed my throat a bit in the end.
The good news is there is no sign of cancer in the tissue or lump nodes
Aged 56 - I feel really young...
Colo-Rectal Cancer T2 N1 M0
March 2018 - Diagnosis
April-May 2018 Radiation+Chemo then a TIA (Minor Stroke). - Stopped Chemo.
August 27th-November 2018 - Surgery and long, long recovery
*Decided to live to 100 as I will get a telegram from Her Majesty the Queen when 100yrs old. I so, so want one.
Am a Salvation Army chap so I complete 'knee drill' (prayer) to the Commander in Chief often. For myself personally this helps me through.

Lee
Posts: 6165
Joined: Sun Apr 16, 2006 4:09 pm

Re: Surgery Tomorrow - 27th New Zealand Time

Postby Lee » Mon Oct 22, 2018 9:46 pm

I am so sorry it has been such an ordeal. I hope it's smooth sailing from this day forward.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

User avatar
mobrouser
Posts: 156
Joined: Wed Apr 11, 2018 1:44 pm
Location: Ontario

Re: Surgery Tomorrow - 27th New Zealand Time

Postby mobrouser » Mon Oct 22, 2018 10:39 pm

SteveNZ wrote:The good news is there is no sign of cancer in the tissue or lump nodes

That is fantastic news! Thank you for sharing it with us while dealing with such a stressful and difficult recovery.

Cheers,
mob 8)
CC Dx Oct 2017 @ age 58
Laparoscopic right hemi-colectomy Dec 2017
Adenocarcinoma ascending colon – 6cm x 6cm x 2cm, Low Grade, penetrates to peritoneum
T4a N2a M0, Stage IIIC
lymph nodes 6 positive out of 18
FOLFOX started Jan 16 2018; finished Aug 2 2018 (felt like a year)
CEA - 01/15/18 - 2.8; 07/29/18 - 5.3
CT scan Aug 8 2018 - Clear
PET scan Sept 6 2018 (thought about bringing the cat :wink: ) - Clear
Colonoscopy Dec 7 2018 - Clear - Next in 3 years?

User avatar
Atoq
Posts: 388
Joined: Wed Oct 25, 2017 9:31 am

Re: Surgery Tomorrow - 27th New Zealand Time

Postby Atoq » Tue Oct 23, 2018 1:00 am

I am happy to hear you are better! And wonderful news about the outcome.

Claudia
1972, 2 kids
Dx rectal cancer 10.2017
T3N2aMX (suspect met left lung 8 mm)
Lynch neg
CEA 1.8
Neoadjuvant chemoradio Xeloda + 25x2 Gy
05.12.17 laparotomic surgery for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle lung biopsy , stage IV
07.05.18 CAT scan, lung met 11 mm
04.06.18 ileo reversal
26.06.18 wedge VATS
24.08.18, 31.02.19 CAT scan
12.09.18, 06.02.19 scope, CEA 1.6
19.11.18 colonscopy
20.08.19 CAT, eco
13.09.19 scope, CEA 1.2
18.03.20 CAT, eco, scope, NED

Gravelyguy
Posts: 330
Joined: Thu Jul 05, 2018 6:03 pm

Re: Surgery Tomorrow - 27th New Zealand Time

Postby Gravelyguy » Tue Oct 23, 2018 6:07 am

So glad you seem to be turning a corner and thankful for the update. Have been praying and wondering what was happening.

Also thankful for the good news of no cancer!

Dave
6/17 dx mRC t3n1m1 very low rectal tumor 2 liver Mets 1.3 cm and .9 cm

6/17 begin 4 rounds Folfox w/Vectibix
9/17 short course radiation
10/17 rectal and liver resection LAR with coloanal anastomosis (no rectum left)
11/17-3/18 8 rounds Folfox
6/18 still NED!! Takedown
8/28/18 still NED! CEA .8 new low for me
10/18/18 colonoscopy clear
12/12/18 clear scans, CEA .9 still NED!
6/11/19 clear scans CEA 1.0
12/19/19 clear scans CEA 1.0 still NED!
6/17/20 clear scans CEA 1.1 still NED!

User avatar
Maggie Nell
Posts: 1142
Joined: Wed May 27, 2015 1:57 am
Location: Central Highlands, Victoria, Oz

Re: Surgery Tomorrow - 27th New Zealand Time

Postby Maggie Nell » Tue Nov 20, 2018 12:23 pm

Kia Ora Steve,

You popped into my mind this week of Thanksgiving and have bumped your thread in case you've been lurking. Hope you
got over the hump and you're still with us mate.
DX April 2015, @ 54
35mm poorly diff. tumour, incidental finding following emergency r.j hemicolectomy
for ileo-colic intussusception.
Lymph nodes: 0/22
T3 N0 MX

Sorbitol is the Devil
Ordained Dudeist Priest at Dudeism, the Church of the Latter-Day Dude 8)

Lee
Posts: 6165
Joined: Sun Apr 16, 2006 4:09 pm

Re: Surgery Tomorrow - 27th New Zealand Time

Postby Lee » Wed Nov 21, 2018 2:02 pm

Maggie Nell wrote:Kia Ora Steve,

You popped into my mind this week of Thanksgiving and have bumped your thread in case you've been lurking. Hope you
got over the hump and you're still with us mate.


ditto, hope you are recovering from your ordeal and mostly back to normal.

Take care,

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

SteveNZ
Posts: 147
Joined: Tue Apr 24, 2018 4:21 pm
Location: New Zealnd

Re: Surgery Tomorrow - 27th New Zealand Time

Postby SteveNZ » Sun Jan 27, 2019 5:36 pm

Sorry for not sharing for a bit.
2018 was not a good year for my vintage..

GREAT NEWS-Am home, cancer free and have a job interview tomorrow. :D :D :D :D
Aged 56 - I feel really young...
Colo-Rectal Cancer T2 N1 M0
March 2018 - Diagnosis
April-May 2018 Radiation+Chemo then a TIA (Minor Stroke). - Stopped Chemo.
August 27th-November 2018 - Surgery and long, long recovery
*Decided to live to 100 as I will get a telegram from Her Majesty the Queen when 100yrs old. I so, so want one.
Am a Salvation Army chap so I complete 'knee drill' (prayer) to the Commander in Chief often. For myself personally this helps me through.


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