Beacon Trial Update:
Night 1- lots of vomiting all night and a blinding migraine
Day 2-still a terrible migraine
Day 3-headache and body aches but I go to work; I believe I start to get a couple red welts and pimples on my face and going down my neck a bit
Day 4- body aches worsen to extremely painful arms and legs and hips and so I keep wanting to keep moving and shaking out my legs and arms but nothing helps, pins and needles behind my knees and elbows making it so I can’t walk (diagnosed with a bladder infection and I asked for a litre of saline to help my kidneys as I felt I was dehydrated but all my electeolytes came back normal. Given an antibiotic for bladder and naproxen for body aches).
My trial nurse told me to give the encorafenib a break for a couple of days to see if it’s the cause of the pins and needles and painful extremities. So I skipped the pills in day 4 and will today on day 5 too.
DX 1/31/14 @ 33- SPS-T4a(invades visceral peri), N2a(6/106 LN), M1a(ovary) (Stage 4a) MSS; BRAF V600E mutation
2/1/14-subtotal col, lost R ovary, temp ileo
3/14-9/14- folfox; sepsis
11/14-CT/PET: L ovary met, pelvic met, (?)ghost liver met(?)
12/14-folfiri -13 rds kept me stable from 3/15-6/15
8/15-HIPEC, hysterectomy et al, 2nd temp ileo, NED?
09/15- cea 0.9
05/16- recurrence in abdo wall and lymph nodes
Jan/17- pulmonary embolism
Feb/17- 1 wk radiation to abdo wall
Aug/16- on folfiri