Enemas to manage LARS

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MaryannW
Posts: 76
Joined: Thu Jun 04, 2015 7:32 am

Enemas to manage LARS

Postby MaryannW » Mon Aug 20, 2018 5:57 pm

Hi all,

I suffer with major LARS following ULAR and neoadvujant radiation therapy. I have found great relief from daily enemas and am looking for an enema specific support group online, so that I can post any questions I might have and share information. Does anyone know of such a support group online?

Thankyou
Maryann
Dx Feb 2015 RC Stage 2a
5.5 weeks Xelolda + Radiation
ULAR 25.6.2015
6 Rounds mop up Xeloda
Reversal 7 April 2016
NED & living with LARS

NHMike
Posts: 2555
Joined: Fri Jul 21, 2017 3:43 am

Re: Enemas to manage LARS

Postby NHMike » Tue Aug 21, 2018 9:02 pm

Definitely something that I'd look into as well.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

rockhound
Posts: 113
Joined: Fri Jul 14, 2017 5:00 pm

Re: Enemas to manage LARS

Postby rockhound » Tue Aug 21, 2018 10:36 pm

The LARS group on facebook is pretty awesome.. also a rectal cancer group via colontown there. I'd recommend both, even with all the facebook privacy issues.
45 yr old male
Diagnosed December 2016, age 41
Stage 1/IIA rectal cancer - T2/3N0M0 via MRI (MRI indicates stage 1; onc/surgeon = stage 2a)
Lynch syndrome, MSH6 mutation, MSI
2 to 3/2017 Xeloda + Radiation
5/10/17 - Robotic LAR with temp. loop illeostomy, 0/20 lymph nodes
6 to 7/2017 - Six cycles Folfox @ full strength
9/20/17 - Ileostomy takedown
10/17 - CT, NED
5/18 - CT, NED
11/18 - CT, NED
5/19 - CT, NED..moving to yearly CT scans
5/20 - CT, NED
5/21 - CT, NED (4 yr. scan)

MaryannW
Posts: 76
Joined: Thu Jun 04, 2015 7:32 am

Re: Enemas to manage LARS

Postby MaryannW » Fri Aug 24, 2018 3:54 am

Thanks Rockhound, I’m a member of the LARS FB page but wanted something additional relating to enemas because it will most likely be my lifelong management tool. I will check out the rectal cancer group on Colontown as I’ve not been there before. Thanks for your reply. My quality of life has picked up considerably due tomenemas.
Dx Feb 2015 RC Stage 2a
5.5 weeks Xelolda + Radiation
ULAR 25.6.2015
6 Rounds mop up Xeloda
Reversal 7 April 2016
NED & living with LARS

MaryannW
Posts: 76
Joined: Thu Jun 04, 2015 7:32 am

Re: Enemas to manage LARS

Postby MaryannW » Fri Aug 24, 2018 3:55 am

Thanks for the reply Mike. If I find a dedicated group I’ll let you know.
Dx Feb 2015 RC Stage 2a
5.5 weeks Xelolda + Radiation
ULAR 25.6.2015
6 Rounds mop up Xeloda
Reversal 7 April 2016
NED & living with LARS


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