Allen wrote:You have my deep sympathies. Hang in there and remain hopeful. I had a 1 cm liver met, which was diagnosed immediately after colon cx diagnosis. After 6 FOLFOX treatments, the liver met was completely obliterated! The surgeon could not find it at surgery (open procedure) so he removed the entire lobe where it had been. Even the pathologist could find no evidence of the tumor. I don't know about the implantable pump, I had the standard 48 hr pump regimine. I'm hopeful that you'll have the same sort of outcome!
I've since completed 6 more FOLFOX treatments and I'll soon be entering the watchful waiting / scanning / periodic anxiety phase. Best of luck to you.
teacher2017 wrote:Allen wrote:You have my deep sympathies. Hang in there and remain hopeful. I had a 1 cm liver met, which was diagnosed immediately after colon cx diagnosis. After 6 FOLFOX treatments, the liver met was completely obliterated! The surgeon could not find it at surgery (open procedure) so he removed the entire lobe where it had been. Even the pathologist could find no evidence of the tumor. I don't know about the implantable pump, I had the standard 48 hr pump regimine. I'm hopeful that you'll have the same sort of outcome!
I've since completed 6 more FOLFOX treatments and I'll soon be entering the watchful waiting / scanning / periodic anxiety phase. Best of luck to you.
Thank you! I hope this is a bad memory very quickly. I don’t understand why it’s there- I just had chemo finish in April and my blood work, liver enzymes and cea have been normal all year. I need this out.
Cmac1275 wrote:teacher2017 wrote:Allen wrote:You have my deep sympathies. Hang in there and remain hopeful. I had a 1 cm liver met, which was diagnosed immediately after colon cx diagnosis. After 6 FOLFOX treatments, the liver met was completely obliterated! The surgeon could not find it at surgery (open procedure) so he removed the entire lobe where it had been. Even the pathologist could find no evidence of the tumor. I don't know about the implantable pump, I had the standard 48 hr pump regimine. I'm hopeful that you'll have the same sort of outcome!
I've since completed 6 more FOLFOX treatments and I'll soon be entering the watchful waiting / scanning / periodic anxiety phase. Best of luck to you.
Thank you! I hope this is a bad memory very quickly. I don’t understand why it’s there- I just had chemo finish in April and my blood work, liver enzymes and cea have been normal all year. I need this out.
Hi Teacher. Definitely sending love and prayers your way.
I just recently underwent a liver resection of my right lobe and 10% of my left lobe on July 2nd. FOLFOX + Avastin worked really great. It made liver resection possible. Plus, my CEA markers went down from 60 to normal range in the 2s again.
Well, on August 9th I had a clear CT scan. A small leftover tumor was there but hadn't grown (the plan was always two surgeries to get everything). Then, on August 28th, I had an MRI. They found 5-6 "new" spots but only on "old" liver. Since the original MRI was denied by insurance company in June, we have no baseline to know if those were there. CT scan may have missed them. On September 4th, a PET scan showed spots lighting up on both lobes. They are all very small. And until my biopsy on 9/17/2018, we won't know for sure if it's cancer — or hopefully something else (scar tissue, inflammation from healing, etc.).
Well, I share this with you because for the first time, I've been emotionally rattled. Everything was going swimmingly. But, through research, a great medical team and support groups like this one...I've come to realize this is just part of the new normal. At least for some of us. Cancer, I know realize, will behave and do things we may never understand. But my outlook is still very positive despite the many tentacles cancer uses to impact us.
Yours is too. They caught it early. And that's a really good thing.
As such, I've stopped asking "why." I'm now focused on "what." What else can I do to beat the disease, or at least make life extremely difficult for it to thrive in my body? Diet, exercise, surgery, supplements as adjunct therapy. You name it. If it gets me to NEDville, I'm throwing the kitchen sink at it.
Stay positive. And most importantly, continue to be your own best advocate and stay proactive. You've got this!
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