Increased CEA

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Mercy110
Posts: 112
Joined: Wed Aug 16, 2017 12:13 am

Increased CEA

Postby Mercy110 » Thu Aug 16, 2018 4:10 am

My mum has stopped chemo for 6 months since her allergic reaction to Oxaliplatin. Now her rountine checking of CEA increased from 3.5 to 19.2, so she has to start folfiri. We heard that this drug is going to make her easier for diarrhea, are there any possible tips for our family?

It is also scaring as the CEA increased quite a lot which reached the highest record so far. We were confident but now we are shocked. Xray of her lungs showed more mets but the doc said there should not be big difference which made us worried about further mets. Her liver and renal functions both seem ok.

Thanks for any ideas.
Mum age 56, NRAS-mutate Q61R
2017-05: Surgery with stoma. T4N1M0. Stage3C. Xeloda No Radio. Increasing CEA. CT: Multiple lung nodules. Stage4.
2017-09: 85% FOLFOX + Avastin, stable CT
2018-03 to 05: Folfox Allergy, Folfiri (with Avastin since Oct)
2019: Increasing CEA. Wait and see. CEA:178
Now: Irinotecan+Zaltrip+TS-1



WISH ALL MIGHTY GOD HEALS MUM WITH HIS MIRACLE

rp1954
Posts: 1523
Joined: Mon Jun 13, 2011 1:13 am

Re: Increased CEA

Postby rp1954 » Thu Aug 16, 2018 5:40 am

A number of people have used glutamine for iri- diarrhea. IV vitamin C with K2 or K3 has been used to improve quality of life for some, when they were ready to quit, worn out on Folfiri .
watchful, active researcher and caregiver for stage IVb/c CC. surgeries 4/10 sigmoid etc & 5/11 para-aortic LN cluster; 8 yrs immuno-Chemo for mCRC; now no chemo
most of 2010 Life Extension recommendations and possibilities + more, some (much) higher, peaking ~2011-12, taper to almost nothing mid 2018, mostly IV C

Mercy110
Posts: 112
Joined: Wed Aug 16, 2017 12:13 am

Re: Increased CEA

Postby Mercy110 » Sat Aug 18, 2018 8:51 am

rp1954 wrote:A number of people have used glutamine for iri- diarrhea. IV vitamin C with K2 or K3 has been used to improve quality of life for some, when they were ready to quit, worn out on Folfiri .



Thank you so much for your suggestions. Mum has been receiving her first round of folfiri today, which takes three days and two nights in hospital. We are also concerned about her CEA coz her marker never increase to 10 or above. We know Mets had increased in her lungs but we are worried if there re any new mets too, though her liver function seems ok. Her next ct would be on November, we are also not sure if this is too late...
Mum age 56, NRAS-mutate Q61R
2017-05: Surgery with stoma. T4N1M0. Stage3C. Xeloda No Radio. Increasing CEA. CT: Multiple lung nodules. Stage4.
2017-09: 85% FOLFOX + Avastin, stable CT
2018-03 to 05: Folfox Allergy, Folfiri (with Avastin since Oct)
2019: Increasing CEA. Wait and see. CEA:178
Now: Irinotecan+Zaltrip+TS-1



WISH ALL MIGHTY GOD HEALS MUM WITH HIS MIRACLE

rp1954
Posts: 1523
Joined: Mon Jun 13, 2011 1:13 am

Re: Increased CEA

Postby rp1954 » Sat Aug 18, 2018 1:49 pm

There are two reasons to look at IV vitamin C + other selected, strong supplements, which have been used successfully by another member with Folfiri-Avastin for several years. She had started to quit after less than a year of Folfiri. Her clinic in BC apparently had a lot of patients like her.

First is that Quality of Life improved with more energy and fewer chemo side effects. The other is that RAS/RAF mutant cells are undermined by IV vitamin C and some of the other supplements, at least combined with the 5FU-LV part. Probably dealing with less gross cancer load and immune damage, we have been able to slow, stop and dissolve mets with daily oral 5UF-LV, super supplements technically chosen, and mild off label drugs. We actually intensify the 5FU's inhibition of cancer with the supplements and off label drugs, although it has been by a hand fit technical process of surgical samples, lab and blood work.
watchful, active researcher and caregiver for stage IVb/c CC. surgeries 4/10 sigmoid etc & 5/11 para-aortic LN cluster; 8 yrs immuno-Chemo for mCRC; now no chemo
most of 2010 Life Extension recommendations and possibilities + more, some (much) higher, peaking ~2011-12, taper to almost nothing mid 2018, mostly IV C


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