9 years out, Stage 4 NEDville

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ranger
Posts: 351
Joined: Sat Nov 14, 2009 2:02 pm
Facebook Username: cancerIsSOfunny
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9 years out, Stage 4 NEDville

Postby ranger » Mon Aug 13, 2018 8:54 pm

I'm still here! 9 years, minus some stuff I didn't need, like appendix, gall bladder, some of my colon, a liver met. I always told myself that cancer didn't belong in me, so once I got rid of it, it would stay gone.
Cancer, you can't kill everybody. So there.
Posting my #cancerversary Aug 14 to encourage others.
colon resection 3/09
liver resection and takedown 8/09
11 rounds of folfax, avastin. plus AM655 or placebo, completed jan 2010
hernia repair 3/11
http://cancerissofunny.blogspot.com/
https://m.facebook.com/Cancer-is-SO-fun ... 100303900/
@cancerissofunny
age 70, never thought I'd make it. happy.
NED a long time.
Essential Thrombocytosis, monitoring
still here.

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ANDRETEXAS
Posts: 662
Joined: Fri Feb 14, 2014 11:01 am
Location: Austin, Texas (University of Tennessee alumnus)

Re: 9 years out, Stage 4 NEDville

Postby ANDRETEXAS » Mon Aug 13, 2018 11:19 pm

Congratulations! It's always nice to hear from others who have a long-term/NED recovery. And as you said - it gives newcomers and oldsters alike determination and encouragement.
2/10/14 - Colon resect
2/13 - DX- Stage IIIb
6 of 18 lymph nodes cancerous
3/7 - Port placed
3/11 - FOLFOX (12 rds w/full oxi)
8/14 - Chemo finish
8/25 - CT- Inc
9/5 - clean PET
12/10- clean CT

3/2/15 - Clean colonoscopy & port removed
3/4 - clean CT
9/21- clean CT

3/23/16 - clean CT

2/22/17- clean CT

3/21/18 - clean CT
4/1 - clean colonoscopy

3/11/19 - clean CT
9/23 - Five-year release - Annual visits now !

4/13/23 - clean colonoscopy

ONE DAY AT A TIME !

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CRguy
Posts: 10473
Joined: Sun Feb 10, 2008 6:00 pm

Re: 9 years out, Stage 4 NEDville

Postby CRguy » Mon Aug 13, 2018 11:39 pm

DAMN STRAIGHT !!!!!!
WORD !!!!!!

Cheers and Congrats ranger
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

stu
Posts: 1613
Joined: Sat Aug 17, 2013 5:46 pm

Re: 9 years out, Stage 4 NEDville

Postby stu » Tue Aug 14, 2018 1:29 am

Yippee . My mum is nine years this week too . Twins .
Keep enjoying yourself .
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

Danielito82
Posts: 28
Joined: Sat Aug 11, 2018 1:53 pm

Re: 9 years out, Stage 4 NEDville

Postby Danielito82 » Tue Aug 14, 2018 10:03 am

Congrats... happy #cancerversary!!! :)

DarknessEmbraced
Posts: 3816
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: 9 years out, Stage 4 NEDville

Postby DarknessEmbraced » Sat Aug 18, 2018 8:54 am

Congratulations! :D
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

martd
Posts: 128
Joined: Tue Nov 21, 2017 3:48 pm
Location: Phoenix, Az

Re: 9 years out, Stage 4 NEDville

Postby martd » Sat Aug 18, 2018 9:35 am

Congratulations!! Thanks for posting
49 y/o male dx 11/2017 crc
Stage 4 with 17 liver Mets, cea 490
RAS, BRAF WT Tp53 LOF
12 rounds folfox , avastin
5/18 cea 2.8 liver resection and pve
7/18 part 2 liver resection, remove right side of liver
Surgical site mrsa infection, wound vac
8/18 cea .9 cCR, rectal tumor is gone
Rectal surgery postponed, watch and wait
10/18 clear scan CEA .7
01/19 clear scan CEA .9
04/19 clear scan CEA .9
07/19 clear scan CEA 1.0

teacher2017
Posts: 275
Joined: Sat Sep 09, 2017 1:18 pm
Facebook Username: Lydia Clark

Re: 9 years out, Stage 4 NEDville

Postby teacher2017 » Mon Aug 20, 2018 6:26 am

I really needed to hear this!!! Thank you!!!
50 yo mom of 2 (15, 18)
DX stage 3c - 12/17 LN. T3
8" colon resection 9/22/17
6.1cm tumor
folfox 11/17-4/18
CEA -1.4 11/8/17
Colonoscopy- 5/18-CLEAR!
Cea -1.8 6/18
Cea -2.1. 8/18
8/10/18 Stage 4
1cm met in seg.8 liver
Liver resection-9/18
Cea -1.5/1.2
Port removal-9/19
Cea -1.2 10/19
Cea -1.1 02/2020
Cea - 1.2 5/20
Cea-1.1 9/20
Cea- 1.3 2/21
Cea.1.3 5/21

crikklekay
Posts: 142
Joined: Thu Feb 15, 2018 9:47 am
Location: Richmond, VA

Re: 9 years out, Stage 4 NEDville

Postby crikklekay » Mon Aug 20, 2018 11:10 am

Congrats! I love hearing from people who have gone through hell and seen the other side, it helps me feel like this is something we can beat and beat for good. Thank you and good luck!
Caring for DH John
Stage IIIC, Lymph nodes: 6/22
Chemo: FOLFOX (6)
12/17 ER and emergency surgery
02/18 Hospital w/MSSA infected port, PICC line inserted, chest CT scan showed septic emboli & blood clots
03/18 Hospital w/CDIFF
08/18 CT Scan Clear, NEMD
2018/2019/2021 Colonoscopy Clear
2019/2020/2021/2022 CT Scan Clear
2021 PET scan & MRI show one spot on liver
08/21 Liver surgery to remove spot, confirmed mCRC. Now Stage IV
09/21 Start Folfiri + Avastin
03/22 CEA Rise, continuing chemo

ranger
Posts: 351
Joined: Sat Nov 14, 2009 2:02 pm
Facebook Username: cancerIsSOfunny
Contact:

Re: 9 years out, Stage 4 NEDville

Postby ranger » Wed Aug 22, 2018 6:47 pm

Thanks everyone!
ranger
colon resection 3/09
liver resection and takedown 8/09
11 rounds of folfax, avastin. plus AM655 or placebo, completed jan 2010
hernia repair 3/11
http://cancerissofunny.blogspot.com/
https://m.facebook.com/Cancer-is-SO-fun ... 100303900/
@cancerissofunny
age 70, never thought I'd make it. happy.
NED a long time.
Essential Thrombocytosis, monitoring
still here.


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