Brain metastasis

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Wize1
Posts: 2
Joined: Mon Sep 04, 2017 8:54 pm
Facebook Username: Johhny wise

Re: Brain metastasis

Postby Wize1 » Tue Sep 18, 2018 8:17 pm

I was just diagnosed with brain Mets. Surgery on Monday. Crazylife can you please give me some hope for this situation? I am devastated

crazylife
Posts: 255
Joined: Wed Dec 30, 2015 11:29 am

Re: Brain metastasis

Postby crazylife » Wed Sep 19, 2018 10:31 am

Wize1 wrote:I was just diagnosed with brain Mets. Surgery on Monday. Crazylife can you please give me some hope for this situation? I am devastated


Hey there,

Easiest surgery he has done to date! Recovery was easy, breezy. Just try and stay positive as much as you can and don't read the statistics. Everyone is different.

Good luck and hugs to you.
Wife to DH, 41 years old, diagnosed 11/15
Stage 4, Mod diff, 13/24 LN, 1 liver met
Colon/liver resection at MSK, 11/15
8mm lung met (not confirmed) and enlarged lymph nodes 1/16
12 rounds of folfox (9 with Oxi) 6/16
NED - July 2016
NED - October 2016
3 lung mets - March 2017
7 lung mets, May 2017
RFA to largest met, June 2017
Lung mets growing slowly, October 2017 (off treatment since June 2016)
Right lung surgery, November 2017
Left lung surgery, January 2018
NED - May 2018

Cured
Posts: 568
Joined: Thu Nov 27, 2008 10:53 pm
Location: MO

Re: Brain metastasis

Postby Cured » Wed Sep 26, 2018 11:24 am

Dear Crazylife, YES sad to say that the met to my brain was about the same size as your husbands. The neurologists insisted on removing it ASAP, as soon as an A team could be scheduled. Discovered on Monday and removed on Friday. The surgery went well; I was talking and thinking normal upon waking up. 4 hours after surgery I was walking.

No pain. Seemingly no permanent affects. I can recall memories from throughout the years. My wife took weeks off work to assure that I would take it easy, since I felt normal. I did limit my activities; wouldn’t even walk the dog. My family would kill me if I fell and cracked my skull after successfull surgery! They did 1 dose of radiation which was highly targeted and dosed.

Now I am treating the Mets on my lungs with Folfiri. [all of this is weird since colon cancer isn’t known to metastasize like this - after 10 years]

Praying all goes as well for you all.
5-08:Stg 3 Rectal: 6/14 Nodes
Ace Surgn Remvd 90%Rectm,lots of Colon-Full Incision
Ileo Rev'd 6 Mos.
Radiatn+5fu Pre-Surgery
FOLFOX 8 CyclDone 1-09
Clear Scope 8-17; CEA 2-18
Glory to God! Healed by prayers of many: for 10 yrs
7-18: tumor pressing against brain Removed
Metastatic to lung. CEA 6.9
Folfiri
CEA to 4.5 after 1 chemo
After 8rds CEA 3
CEA 1.8, 2.3,1.7,2.2,5.7,5.3,2.3
12 rds Folfiri
Avastin evy 2 wks
Seizure Anti-seiz meds work-no driving for 6 mo
4-20PET: Lung spots=Chemo


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