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Any Stage 4 long term survivors/cured ?

Posted: Sat Aug 11, 2018 2:12 pm
by Danielito82
Hi all,
I'm 35 yrs and last year I've been diagnosed with stage 4 colon cancer with 3 liver mets!
After 14th cicles of FOLFIRI + CETUXIMAB I became resectable and on the july 24th I had my operation to remove the mets !!
The surgeon was supposed to remove 3 mets , but 2 of them were only scars and 1 was gone !!
Now at the end of September I'll have a colon resection!!
In the colon the tumor is not detectable seems disappeared but the surgeon want to remove the part where it was before as precaution.
Is there any long term survivor or any person that marked the " 5 yrs all clear " with no recurrence?
Thank you

Re: Any Stage 4 long term survivors/cured ?

Posted: Sat Aug 11, 2018 7:19 pm
by ilovemyfrenchie
Congratulations! So happy to hear the results.

Re: Any Stage 4 long term survivors/cured ?

Posted: Sun Aug 12, 2018 2:15 am
by stu
Great to hear you had a super response to chemo . You are a top responder indeed.
My mum had a significant spread to start with so not comparable but she is nine years stage 4 this week . Yippee.
Hope everything goes well with your next lot of surgery .
Stu

Re: Any Stage 4 long term survivors/cured ?

Posted: Sun Aug 12, 2018 6:32 am
by mpbser
"Is there any long term survivor or any person that marked the " 5 yrs all clear " with no recurrence? "

I believe there are some such survivors here on this forum. Your results are wonderful. Thanks for sharing!

Re: Any Stage 4 long term survivors/cured ?

Posted: Sun Aug 12, 2018 7:47 am
by Ehut
I have been clear for over 6 years now. My oncologist and surgeon say I don't need any more scans, just annual CEA monitoring. I was stage 4 with 6 mets to my liver. I don't think I will be comfortable with the term "cured" until I hit 10 years.

Re: Any Stage 4 long term survivors/cured ?

Posted: Sun Aug 12, 2018 8:27 am
by lovelife789
Ehut wrote:I have been clear for over 6 years now. My oncologist and surgeon say I don't need any more scans, just annual CEA monitoring. I was stage 4 with 6 mets to my liver. I don't think I will be comfortable with the term "cured" until I hit 10 years.


Your story is so encouraging ... 6 Mets to liver and no recurrence! I wish you NED forever!!!

Re: Any Stage 4 long term survivors/cured ?

Posted: Sun Aug 12, 2018 10:56 am
by betsydoglover
Stage 4 with 1 liver met. Resolved with chemo. Three years after diagnosis I had a lung recurrence. I've been free of disease for 9+ years now. It sounds like you have had a really good response, so just know that it is possible to be a long term survivor.

Take care,

Re: Any Stage 4 long term survivors/cured ?

Posted: Sun Aug 12, 2018 12:35 pm
by Danielito82
Wow....you guys are great. .!!!.it's amazing to think that everything is possible..I know that each person is different but you give so much hope .!!!!

Re: Any Stage 4 long term survivors/cured ?

Posted: Sun Aug 12, 2018 5:47 pm
by cptmac
On July 22, 2004, my 43rd birthday, I was dx'd with Stage IV colon cancer. I was given six months to live but told I could die at any moment. I signed up for a stage II clinical trial and here I am, NED and off all treatment since June of 2005.

AND I can eat popcorn.

Re: Any Stage 4 long term survivors/cured ?

Posted: Sun Aug 12, 2018 7:54 pm
by plastikos
I believe there are a lot if cured survivors. Congrats. You are in a good place now. Have your tumor (if possible) tested for MSI.

Re: Any Stage 4 long term survivors/cured ?

Posted: Sun Aug 12, 2018 9:46 pm
by cecioboe
My husband Jim was diagnosed in 2011 and after chemo, radiation, surgeries, and more chemo, is still cancer free.
Thanks be to God and his incredible doctors.

Re: Any Stage 4 long term survivors/cured ?

Posted: Mon Aug 13, 2018 9:59 am
by LeonW
plastikos wrote:I believe there are a lot if cured survivors

I've been clear since liver resection of Oct 2013, despite 'palliative' diagnosis (inoperable liver mets) end 2012.
Chemo killed all mets - see sign.

Promoted to annual surveillance (CT + CEA) in June. I don't think I'm officially 'cured', but life is back to normal. No more worries.
I realize I've been lucky. Wish you all the same.
L

Re: Any Stage 4 long term survivors/cured ?

Posted: Mon Aug 13, 2018 12:48 pm
by radnyc
Clear, NED, cured? who knows, but cancer free since 2010. Just keep doing what you're doing, take care of your health, and try to enjoy living.

Peace,

Al

Re: Any Stage 4 long term survivors/cured ?

Posted: Mon Aug 13, 2018 6:06 pm
by Russian27
Cancer free since surgery in January 2009.

Re: Any Stage 4 long term survivors/cured ?

Posted: Mon Aug 13, 2018 8:47 pm
by ranger
Me! I'll post my new #cancerversary now!
Stage 4. Perforating sigmoid colon emergency surgery, chemo, liver met surgery, chemo.
Diagnosed and treated all year in 2009. Proud of everyone who helped me.
I hope you thrive,
Amy