Any Stage 4 long term survivors/cured ?

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Danielito82
Posts: 28
Joined: Sat Aug 11, 2018 1:53 pm

Re: Any Stage 4 long term survivors/cured ?

Postby Danielito82 » Tue Aug 14, 2018 4:59 am

Hi all !!
Did you guys change your diet ??

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LeonW
Posts: 358
Joined: Sun May 03, 2015 4:59 pm
Location: Amsterdam, Netherlands

Re: Any Stage 4 long term survivors/cured ?

Postby LeonW » Tue Aug 14, 2018 11:46 am

Danielito82 wrote:Did you guys change your diet ??

Nope. But we (DW+myself) were never excessive diners and continue to enjoy any types of meat, (shell)fish, veggies, pastas and an occasional drink.
L
Dec 2012 - CC, 2 unresect liver mets, CEA 41.8 (MM 65yrs)
Jan 2013 - colectomy @ spleen, 2/26 nodes, IVa T3N1bM1a MSI-low
Feb-Aug - 1x Xelox-7x Xelox/Avastin, shrinkage from #3
Sept - 2 failed PV embolizations
Oct 2013 - R liver resect 28d hosp (liver failure/delirium, lung emboli, encephalopathy), cancer dead (pCR)
2014/15 - recovery, scopy: 2 polyps
2016 - new town, new life
June 2018 - 5 yr mark, scopy: 2 new polyps
1.3-1.4 CEA/clean CT: 4x2014, 6x2015-17, 2x2018-19 :D, next June 2020

stevieb
Posts: 402
Joined: Sat Feb 09, 2013 12:26 am

Re: Any Stage 4 long term survivors/cured ?

Postby stevieb » Fri Aug 17, 2018 12:04 pm

I am currently 5.5 years since diagnosis of Stage IV to liver and lungs. After chemo, surgeries (6), cryoablations, and maintenance chemo I was NED for 15 months. Just found a small spot on my lower left lung and have another cryoablation scheduled Sept. 5th to take care of that one. Been living a near normal life for 3+ years now!
Dx age 33
12/19/12 Stage IV liver/lung
1/14-2/28/13 Folfox
3/27/13 rectal/lung rst; temp ileo
7/11/13 liver res/ileo rev
9/30/13 - Folfox
11/13,2/21 NED
3/14 lung recur;6/16-VATS
7/14 5 bi lung mets
10&11/15 laser lung surg
2015 Colondar Model
12/15 5 lung met-folfiri
5/15 NED
11/15 2 lung mets; cryoablation
1/4/17 2 lung mets; cryoablation
NED as of 1/23/17

Irishduffy
Posts: 3
Joined: Fri Aug 17, 2018 7:44 pm

Re: Any Stage 4 long term survivors/cured ?

Postby Irishduffy » Fri Aug 17, 2018 8:13 pm

Today’s my 20 year anniversary of my diagnosis at age 31 with stage 4 rectal cancer with a met to liver. I’ve been NED since surgery.

NCMike12
Posts: 7
Joined: Sun Jul 29, 2018 8:58 pm
Facebook Username: Mike Wright

Re: Any Stage 4 long term survivors/cured ?

Postby NCMike12 » Fri Aug 24, 2018 6:12 pm

Makes me hopeful as a new stage 4 colon and rectum cancer diagnosis with a newly found metastasis in my brain. At 46 and healthy, I am really positive and hopeful that after my brain tumor is removed next week and then onto radiation, chemo and surgically remove colon tumors, I will have a chance.

Reading this board has been the most reinforcing, satisfying and positive feedback I have read the last two weeks. I am so happy to see so many survivors that are healthy and happy and get to spend more time with their loved ones. Gives me hope in modern cancer treatments for everyone suffering with this terrible disease...

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DBF
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Facebook Username: https://www.facebook.com/#!/profile.php?id=1000008
Location: New York

Re: Any Stage 4 long term survivors/cured ?

Postby DBF » Fri Aug 24, 2018 9:16 pm

Hello,

I reached five years this past May, currently NED.

Wishing the same for you!

Donna
6/13 Dx @ 29 Wks pregnant, 42 yo
Adenocarcinoma, mucinous
7/13 C-sec/col resec/part. hysterectomy
8/13 Pulm embolism
8/13 Liv met
9/13 Liv resect
FOLFOX
CEA UP
ADAPT: Xeloda/Celebrex
2/14 oopherectomy
10/15 obstruction surg
10/17 Scar tissue removal/vsg surg
NED :D
Mom to 3 boys: 21, 9 & 6

AppleTree
Posts: 267
Joined: Fri Mar 18, 2016 8:16 am

Re: Any Stage 4 long term survivors/cured ?

Postby AppleTree » Fri Aug 24, 2018 9:44 pm

Right now I am NED! I will take that for however long it lasts. One thing this board has taught me is that even if it does come back, there are success stories and lots of support. I do not think a how many years timeline is so good because it varies so much for different people. I am taking it 1 day at a time. Trying to fit in some fun stuff, as I am able. Life is going on and I am happy to be here!
Diag Feb 5, 2016 Age 45
3 cm tumor 5 cm from verge
Radiation + Xeloda pills - 3000mg 5x week
3/14 - 4/16 - 25 sessions
Shrank just over 50% L nodes 0/13
Remove rectum with temp Ileo 6/17
Reversal 7/20 due to infection
Acute hepatitis August. Chemo cancelled
June to September 2016 - 58 days in hospital

2017
6/16, MRI shadow in lung
Pet - 6.6mm Met in Upper R lobe
7/30 VAT surgery Mass General/Boston
8/24 port
8/30 - 4/28 Folfox. 12 rounds
2018
June CT shows new lung Mets.
July/Oct PETs...CLEAR!

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dianetavegia
Posts: 2715
Joined: Sat May 16, 2009 8:47 pm
Facebook Username: Diane Weldy Tavegia
Location: Villa Rica, Georgia
Contact:

Re: Any Stage 4 long term survivors/cured ?

Postby dianetavegia » Mon Aug 27, 2018 9:35 am

My onc said 'cured' in April based on the cure chart that says 6 years after a liver resection with no recurrence is cured and 6 years 4.8 months the chance of a met drops to that of the healthy population who've never had CRC. I'm at that point but will have a final CT in early October then go to a CEA every ??? for a few years.

I was NOT Stage IV at dx, tho. My liver met was metrochronus (appeared more than 2 years post dx).
Stage IIIB cc surgery 1/7/09. 5/17 nodes. 12 tx FOLFOX
Stage IVa 2/15/12. PET = 1.5cm liver met. HR 4/11/12 No chemo

Over 10 years since dx and 7 years post liver resection.
NED since 2012

“O Lord my God, I cried out to You, And You healed me.” Psalms 30:2

erinnatacha
Posts: 4
Joined: Tue Sep 20, 2016 2:22 pm

Re: Any Stage 4 long term survivors/cured ?

Postby erinnatacha » Tue Aug 28, 2018 5:44 pm

Hi. I believe I was staged IV in August 2016, had a lymph node puff up in my abdomen. Two surgeries plus radiation/xeloda combo and I am still vertical. It is great to hear about all of you thriving. I have hope.

Rgp
Posts: 15
Joined: Thu Nov 15, 2018 3:08 pm

Re: Any Stage 4 long term survivors/cured ?

Postby Rgp » Wed Feb 06, 2019 9:08 pm

Hi all long term survivors. So happy for you and it's also encouraging to hear all the positive stories. Do you guys follow any specific diet? Any advice on this is much appreciated.
Thanks
40 yr old male
3/6/18 colonoscopy - stage 4 rectal cancer, 3 liver Mets, perirectal lymph nodes
3/28/18 6 chemo-folfox and avastin
6/12/18 MRI showed liver mets disappeared
7/12/18 5 days radiation
7/23/18 rectal resection with clear margins. In the OR, the surgeon decided not to do it as he couldn't see any mets
7/31/18 diagnosed with PE
8/2/18 abscess, drain install
9/13/18 MRI/CT clear. No sign of liver mets
10/5/18 6 adjuvent chemo, folfox
1/19 Ct and MRI Clear.
7/22 MRI liver mets back at same spot

teacher2017
Posts: 245
Joined: Sat Sep 09, 2017 1:18 pm
Facebook Username: Lydia Clark

Re: Any Stage 4 long term survivors/cured ?

Postby teacher2017 » Fri Feb 08, 2019 5:11 pm

Irishduffy wrote:Today’s my 20 year anniversary of my diagnosis at age 31 with stage 4 rectal cancer with a met to liver. I’ve been NED since surgery.



Holy moly!!! How wonderful! I was dxed with stage 4 with one stinking liver met in Sept. had it removed and am still scared too death. Thank you for the hope!!!!
48 yo female- mom of 2 (12,15)
DX stage 3c - 12/17 LN. T3
8" sigmoid resection 9/22/17
6.1cm tumor
chemo -folfox 11/8/17-4/18
CEA level- 1.4 11/8/17
Colonoscopy- 5/30/18 - CLEAR!
Cea level- 1.8 6/1/18
Cea level- 2.1. 8/4/18
Sh$t has hit the fan- 8/10/18 Stage 4
1cm met in seg.8 liver
Liver resection- 9/12/18
Cea level- 1.5 10/1/18
Cea level- 1.2 12/1/18
Clear scan- 12/5/18
Cea level- 1.1 3/2/19
Clear scan- 3/1/19
Cea level- 1.2 6/2/19
Clear scan- 6/2/19
Colonoscopy - 7/8/19 CLEAR
Still here!!!!!

radnyc
Posts: 375
Joined: Tue Apr 06, 2010 6:32 pm

Re: Any Stage 4 long term survivors/cured ?

Postby radnyc » Fri Feb 08, 2019 7:44 pm

8.5 years
DX Jan '10, at 47
Feb - colon resection - 2/17 nodes
April - liver mets - Stage 4
3 months Folfox chemotherapy
August '10 liver resection and HAI pump
7 months chemo FUDR HAI and Folfiri systemic
NED since August 2010
Last treatment April '11
HAI Pump removed Dec '15


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