Any Stage 4 long term survivors/cured ?

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Danielito82
Posts: 6
Joined: Sat Aug 11, 2018 1:53 pm

Any Stage 4 long term survivors/cured ?

Postby Danielito82 » Sat Aug 11, 2018 2:12 pm

Hi all,
I'm 35 yrs and last year I've been diagnosed with stage 4 colon cancer with 3 liver mets!
After 14th cicles of FOLFIRI + CETUXIMAB I became resectable and on the july 24th I had my operation to remove the mets !!
The surgeon was supposed to remove 3 mets , but 2 of them were only scars and 1 was gone !!
Now at the end of September I'll have a colon resection!!
In the colon the tumor is not detectable seems disappeared but the surgeon want to remove the part where it was before as precaution.
Is there any long term survivor or any person that marked the " 5 yrs all clear " with no recurrence?
Thank you

ilovemyfrenchie
Posts: 14
Joined: Fri Nov 03, 2017 9:20 pm

Re: Any Stage 4 long term survivors/cured ?

Postby ilovemyfrenchie » Sat Aug 11, 2018 7:19 pm

Congratulations! So happy to hear the results.
Daughter to 59 yo w/ Stage 4 Mets to liver & peritoneal
10/1/17 ER trip for GI bleed found rectal tumor (CEA 71)
10/2/17 emergency colostomy (no resection, told tumor inoperable due to Mets found)
10/17 started Folfiri with Avastin (CEA 171)
8/18 CT = liver Mets continue to shrink (CEA 4)

“Chemo for life” hoping for surgery soon

stu
Posts: 879
Joined: Sat Aug 17, 2013 5:46 pm

Re: Any Stage 4 long term survivors/cured ?

Postby stu » Sun Aug 12, 2018 2:15 am

Great to hear you had a super response to chemo . You are a top responder indeed.
My mum had a significant spread to start with so not comparable but she is nine years stage 4 this week . Yippee.
Hope everything goes well with your next lot of surgery .
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

mpbser
Posts: 482
Joined: Wed Apr 19, 2017 11:52 am

Re: Any Stage 4 long term survivors/cured ?

Postby mpbser » Sun Aug 12, 2018 6:32 am

"Is there any long term survivor or any person that marked the " 5 yrs all clear " with no recurrence? "

I believe there are some such survivors here on this forum. Your results are wonderful. Thanks for sharing!
Wife 4/17 Dx age 45
5/17 - Lap left hemi
Adenocarcinoma
5 x 4 x 1 cm
low grade
T3 N2b M1a
Stage IV A
lymph nodes: 9 of 54
8/17 Sub-total colectomy
2nd tumor 5.5 cm T1 N0
CEA: 1.4, 2.1, 1.5, 1.9, 1.9, 2.1, 2.1, 2.4, 1.7, 2.0
MSS/MSI-L
Lynch no; KRAS wild
Immunohistochemsistry: Normal MLH1, MSH2, MSH6, and PMS2
Tumor DNA variants: MTOR, APC, TP53
Liver left hepatectomy seg 4 1/31/18
5/18 NED

Ehut
Posts: 194
Joined: Wed Sep 26, 2012 4:24 pm
Location: Algonquin, IL

Re: Any Stage 4 long term survivors/cured ?

Postby Ehut » Sun Aug 12, 2018 7:47 am

I have been clear for over 6 years now. My oncologist and surgeon say I don't need any more scans, just annual CEA monitoring. I was stage 4 with 6 mets to my liver. I don't think I will be comfortable with the term "cured" until I hit 10 years.
Dx 12/11 rectal stage IV w/ 6 mets to liver, age 35
4 cycles FOLFOX 12/11 to 2/12
short course radiation 2/12
rectal/liver resection 3/12, temp ileostomy
8 cycles FOLFOX/FOLFIRI 4/12 to 8/12
ileostomy reversal 10/12
port out 10/13
NED for 6+ years and counting!

lovelife789
Posts: 114
Joined: Thu Aug 24, 2017 5:28 am

Re: Any Stage 4 long term survivors/cured ?

Postby lovelife789 » Sun Aug 12, 2018 8:27 am

Ehut wrote:I have been clear for over 6 years now. My oncologist and surgeon say I don't need any more scans, just annual CEA monitoring. I was stage 4 with 6 mets to my liver. I don't think I will be comfortable with the term "cured" until I hit 10 years.


Your story is so encouraging ... 6 Mets to liver and no recurrence! I wish you NED forever!!!
F/38 - Dx 8 Mar 17, CEA 80.5
Stage IV Sig. Colon, 6 Liver mets, T3N0M1a, KRAS NRAS Wild, G2=Moderately differentiated
3/17- 6/17 - 6 rounds of FOLFOX + Erbitux - CEA 2.5
7/17 - 1st Liver resect/Colon/Gall, all clear margin
8/17 - 2nd Liver resec
9-12/17' - completed 13 rounds of FOLFOX - CEA 1.0
1/18 - Clear PET SCAN - CEA 1.4
3/18 - Clear MRI - CEA 0.8
6/30 - PET SCAN showed a lung nodule that grew from 5mm to 8mm - CEA 1.0
Aug - VATs done, colon met cfm

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betsydoglover
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Joined: Mon Aug 14, 2006 2:31 pm
Facebook Username: Betsy Lindh Williams
Location: Maryland - outside DC

Re: Any Stage 4 long term survivors/cured ?

Postby betsydoglover » Sun Aug 12, 2018 10:56 am

Stage 4 with 1 liver met. Resolved with chemo. Three years after diagnosis I had a lung recurrence. I've been free of disease for 9+ years now. It sounds like you have had a really good response, so just know that it is possible to be a long term survivor.

Take care,
Betsy
diag. Stage IV, 5/05, liver met
lap sigmoid colectomy, 6/05
6 cycles Xeloda/oxaliplatin/Avastin (NED after 2)
11/08 9x13mm right lower lobe lung nodule; removed via VATS 4/09
NED
6 cycles Xeloda + Avastin
Avastin only 10/09-5/11
Still NED 06/18

Danielito82
Posts: 6
Joined: Sat Aug 11, 2018 1:53 pm

Re: Any Stage 4 long term survivors/cured ?

Postby Danielito82 » Sun Aug 12, 2018 12:35 pm

Wow....you guys are great. .!!!.it's amazing to think that everything is possible..I know that each person is different but you give so much hope .!!!!

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cptmac
Posts: 1178
Joined: Mon Nov 19, 2007 3:15 pm
Facebook Username: Dorothy McGrath

Re: Any Stage 4 long term survivors/cured ?

Postby cptmac » Sun Aug 12, 2018 5:47 pm

On July 22, 2004, my 43rd birthday, I was dx'd with Stage IV colon cancer. I was given six months to live but told I could die at any moment. I signed up for a stage II clinical trial and here I am, NED and off all treatment since June of 2005.

AND I can eat popcorn.
cptmac
As long as you're alive, there is hope.
dx 7/04 stage IV
colon resection 8/04
liver resection 9/04 with HAI pump installed
Stage II trial w irinotecan as systemic and FUDR for direct chemo to liver via HAI pump
Cured since 9/04

plastikos
Posts: 309
Joined: Wed Jan 14, 2015 6:09 am

Re: Any Stage 4 long term survivors/cured ?

Postby plastikos » Sun Aug 12, 2018 7:54 pm

I believe there are a lot if cured survivors. Congrats. You are in a good place now. Have your tumor (if possible) tested for MSI.
St. IV Colon CA @ 37, male, Kras wild, MSI-high (2014)
11/2014 Right Hemicolectomy + Liver Resection
12/2014 - 6/2015 FOLFOX + Cetuximab
10/2015 - Recurrence liver
Liver resection 10/2015
FOLFIRI 11/2015 - 5/2016
Recurrence liver, nodes 11/2016
Pembrolizumab started 12/2016 -> pseudoprogression(?) -> biliary obstruction -> biliary stenting
Chemo 4x: most mets inactive and smaller on PET-CT
March 2017 - Back on Pembrolizumab again
Sept 2017 - SIRT - > NED

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cecioboe
Posts: 594
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Facebook Username: Ceci Lagarenne (Higgins)
Location: Texas

Re: Any Stage 4 long term survivors/cured ?

Postby cecioboe » Sun Aug 12, 2018 9:46 pm

My husband Jim was diagnosed in 2011 and after chemo, radiation, surgeries, and more chemo, is still cancer free.
Thanks be to God and his incredible doctors.
Wife to Jim Stage IV RC w/liver mets
DX 9/16/11
T3N1M1
Oct - Dec 2011 chemo/rad
1/04/12 ileo
1/16/12 LAR, liver resection
2/29/12 blockage, emer surg, ileo rev
4/16/12- 9/16/12 chemo
10/22/12 - 10/3/18 NED
De-ported 6/24/16

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LeonW
Posts: 348
Joined: Sun May 03, 2015 4:59 pm
Location: Amsterdam, Netherlands

Re: Any Stage 4 long term survivors/cured ?

Postby LeonW » Mon Aug 13, 2018 9:59 am

plastikos wrote:I believe there are a lot if cured survivors

I've been clear since liver resection of Oct 2013, despite 'palliative' diagnosis (inoperable liver mets) end 2012.
Chemo killed all mets - see sign.

Promoted to annual surveillance (CT + CEA) in June. I don't think I'm officially 'cured', but life is back to normal. No more worries.
I realize I've been lucky. Wish you all the same.
L
Dec 2012 CC (7 cm mass), 2 unresect liver mets, CEA 41.8 (MM @65yrs)
Jan 2013 colectomy @ spleen, 2/26 nodes IVa T3N1bM1a MSI-low
Feb-Aug - 1x Xelox-7x Xelox/Avastin, shrinkage from #3
Sept - 2x failed PV embolization
Oct 2013 - R liver resect 28 hosp days (delirium, liver failure, emboli, encephalopathy) pCR - no cancer cells
2014/15 - recovery; scopy finds polyp
2016 - new town, new life
June 2018 - 5 yr mark, 2 polyps
clean CTs and (1.3-1.4) CEAs: 4x2014, 6x2015-17, 1x2018; next June 2019

radnyc
Posts: 306
Joined: Tue Apr 06, 2010 6:32 pm

Re: Any Stage 4 long term survivors/cured ?

Postby radnyc » Mon Aug 13, 2018 12:48 pm

Clear, NED, cured? who knows, but cancer free since 2010. Just keep doing what you're doing, take care of your health, and try to enjoy living.

Peace,

Al
DX Jan '10, at 47
Feb - colon resection - 2/17 nodes
April - liver mets - Stage 4
3 months Folfox chemotherapy
August '10 liver resection and HAI pump
7 months chemo FUDR HAI and Folfiri systemic
NED since August 2010
Last treatment April '11
HAI Pump removed Dec '15

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Russian27
Posts: 489
Joined: Sun May 17, 2009 9:47 am

Re: Any Stage 4 long term survivors/cured ?

Postby Russian27 » Mon Aug 13, 2018 6:06 pm

Cancer free since surgery in January 2009.
Dx at 39(12/2008), Stage IV, omentum mets,
0/16 lymph nodes positive,
right colectomy 1/2009,
FOLFOX + avastin 2/2009-7/2009
Thank You Colonclub! 2015

ranger
Posts: 336
Joined: Sat Nov 14, 2009 2:02 pm
Facebook Username: cancerIsSOfunny
Contact:

Re: Any Stage 4 long term survivors/cured ?

Postby ranger » Mon Aug 13, 2018 8:47 pm

Me! I'll post my new #cancerversary now!
Stage 4. Perforating sigmoid colon emergency surgery, chemo, liver met surgery, chemo.
Diagnosed and treated all year in 2009. Proud of everyone who helped me.
I hope you thrive,
Amy
colon resection 3/09
liver resection and takedown 8/09
11 rounds of folfax, avastin. plus AM655 or placebo, completed jan 2010
hernia repair 3/11
http://cancerissofunny.blogspot.com/
https://m.facebook.com/Cancer-is-SO-fun ... 100303900/
@cancerissofunny
age 67, never thought I'd make it. happy.
NED a long time.
Essential Thrombocytosis, monitoring
still here.


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