Abdominal Pains

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Swirdfish
Posts: 287
Joined: Sun Jun 19, 2016 3:57 am

Abdominal Pains

Postby Swirdfish » Thu Aug 09, 2018 5:33 pm

Hi All,

I hope you are all traveling well. Been a good year for me, all CT scans and ultrasounds have come back as good. Still even this far out, I still get clustering on the occasional days, but I have complete control. So life could be better, but for what it is, im happy. I can work, play and do most things I did prior to diagnosis. If I have bad days i'll have some codeine and all will be well.

However, over the recent month or so I've been experiencing abdominal pains. Generally the whole area, its not all the time, perhaps maybe 4 times within the last month or two. The most recent one, had me down for the day, but the area still has a mild pain for days after.

I guess what im worried about is perhaps peritoneal mets.

I've never experienced this before, so this is why im concerned.

Any ideas? Has anyone else experienced something similar.
06/2016 Went in for colonoscopy came out with a tumor. Age 35
12cm from verge at junction. Rectal cancer.
Clinical stage T3 NO MO
Temp illestomy
Completed 5FU and Radiation
LAR surgery planned 13 Oct 2016
Completed ULAR surgery 11-10-2016.
0/22 nodes
pT3 N0 M0 R1
Stage 2A

Pathology reviewed and changed
ypT3 N0 M0 R0

Started folfox 21-11-2016
5-4-17 NED
Reversal 12-4-17

erins
Posts: 26
Joined: Sun May 27, 2018 12:41 pm

Re: Abdominal Pains

Postby erins » Fri Aug 10, 2018 11:57 am

Sorry you’re going through this—i would ask your doctor—any sort of change like that ought to get you to the top of their priority list, and no one will question the alarm bells, even if it turns out to be minor considering the history involved.

As for personal experience, I’m not sure we can help much, since everyone is different, And only your doctor can really figure out what’s going on. Sorry!
38 yr old female
Rectal bleeding for 1 month—>
5/4/18 colonoscopy found mass in sigmoid colon
5/21/18 LAR
stage 2a, 0/17 lymph, clean margins
T3N0M0 G1
LVI neg, PNI neg, MSS

rp1954
Posts: 1379
Joined: Mon Jun 13, 2011 1:13 am

Re: Abdominal Pains

Postby rp1954 » Fri Aug 10, 2018 2:58 pm

When we want to reduce the odds of being months late on detection or surprises, we add extra biomarkers to the basic bloodwork (CBC + CEA + CMP or Chem20). We add some extra chemistry panels to see how stable potential noise factors like inflammation (ESR, hsCRP), sugar (FBG, HgbA1C) and thyroid (TSH) are.

There are a number of recent papers addressing extra markers beyond CEA, for detection or prognosis with peritoneal CRC mets. Basically they use CEA, CA125, LDH, CA19-9, CA72-4, ferritin with varying degrees of sensivitivity and specificity.

I found it interesting that Prof David Morris, a surgical cimetidine pioneer in Oz, analyzed prognosis with a reduced CA199 threshold, starting at 17 units for peritoneal CRC in his group's paper, vs 34 or 37 or 39 units typical for pancan detection, although 17 units is a little low for single time tests' detection with CA199. Kemeny was using LDH>200 for risk in her paper with CRC liver mets.

group with Morris (abstract only)
group without Morris full paper available
Kemeny's paper with LDH
biggest marker batch
watchful, active caregiver for stage IVb CC since early 2010. immuno"Chemo forever," for mCRC

Swirdfish
Posts: 287
Joined: Sun Jun 19, 2016 3:57 am

Re: Abdominal Pains

Postby Swirdfish » Sat Aug 11, 2018 3:54 am

Thanks All for your replys. Gives me some direction.
06/2016 Went in for colonoscopy came out with a tumor. Age 35
12cm from verge at junction. Rectal cancer.
Clinical stage T3 NO MO
Temp illestomy
Completed 5FU and Radiation
LAR surgery planned 13 Oct 2016
Completed ULAR surgery 11-10-2016.
0/22 nodes
pT3 N0 M0 R1
Stage 2A

Pathology reviewed and changed
ypT3 N0 M0 R0

Started folfox 21-11-2016
5-4-17 NED
Reversal 12-4-17

DarknessEmbraced
Posts: 3128
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Abdominal Pains

Postby DarknessEmbraced » Sat Aug 11, 2018 8:40 am

I'm sorry you're having pain!*hugs* I would talk to your doctor. I hope you feel better soon!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17


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