Stage 4 to a clear PET!

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Posts: 258
Joined: Fri Mar 18, 2016 8:16 am

Stage 4 to a clear PET!

Postby AppleTree » Mon Aug 06, 2018 9:56 pm

After almost 2.5 years...a clear PET!!!

My CT scan had showed possible lung thingies again. So, I was bracing for the PET results. My sister and I looked at each other and then asked my oncologist if she had the right patient on the screen. We did not want to celebrate prematurely! We just lost a sister to cancer last month. Over the winter we tried to get our treatment chairs next to each other.

Another scan is scheduled in 3 months to double check those lungs. And my oncologist recommends I keep my port for a year.

I am 3 months out from stopping chemo. I am getting stronger...slowly. At 5'8" I was down to 104 pounds. Now, I am at 106. I met with the oncology nutritionist today and she was super helpful. Trying to get my body to hold on to food for more than 3-4 hours is a challenge because of my diarrhea. So, I learned a lot of tricks for adding more proteins. By the end of the day, my head feels like a heavy bowling ball up there. And I will be starting a strength rebuilding class for cancer patients at the hospital. It is free!

I need to get strong now so I can get a job.

One thing at a time. I am going to enjoy the rest of the summer with my son. We were in the swimming pool today. He was gone a week to Boy scout camp last week and I really missed him. But, I was so grateful he was off with boys climbing mountains and doing things I can not do...yet. Next year is World Jamboree and he really wants to go. We are going to have to really concentrate on fundraising because it is expensive. But to see his huge smile after this past week...put a big smile on my face too. That and my clear PET.
Diag Feb 5, 2016 Age 45
3 cm tumor 5 cm from verge
Radiation + Xeloda pills - 3000mg 5x week
3/14 - 4/16 - 25 sessions
Shrank just over 50% L nodes 0/13
Remove rectum with temp Ileo 6/17
Reversal 7/20 due to infection
Acute hepatitis August. Chemo cancelled
June to September 2016 - 58 days in hospital

6/16, MRI shadow in lung
Pet - 6.6mm Met in Upper R lobe
7/30 VAT surgery Mass General/Boston
8/24 port
8/30 - 4/28 Folfox. 12 rounds
June CT shows new lung Mets.
July/Oct PETs...CLEAR!

Posts: 48
Joined: Sat Aug 04, 2018 12:12 pm
Location: Ohio

Re: Stage 4 to a clear PET!

Postby rtcasper » Tue Aug 07, 2018 9:19 am

Wonderful news!
By the glory, by the grace, by the strength of God, I will be made whole.

Aug 3, 18-colonoscopy, 5cm mass 12cm from AV rectal cancer
Aug 16-MRI
Aug 17-CT,chest and pelvis
CEA-.99-likely not a good marker
Clinical DX-T2/T3n1 -3cm mass, 13.5 from AV-might be colon? - let surgeon make determination
Sept 10-14 radiation
Sept 25-CR lap surgery, temp loop ileostomy
Oct 2-path stage pT1N0M0-no chemo recommended
Jan 8-stoma takedown

Posts: 1032
Joined: Sat Aug 17, 2013 5:46 pm

Re: Stage 4 to a clear PET!

Postby stu » Tue Aug 07, 2018 3:41 pm

So happy for you . All the very best with the fundraising. You will have great fun together.
Take care,
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

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