Liver spot - abnormal PET

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heiders33
Posts: 250
Joined: Sat Nov 04, 2017 11:08 am

Liver spot - abnormal PET

Postby heiders33 » Mon Aug 06, 2018 7:09 pm

I found out this morning that my liver spot lit up on the PET scan, so I’m scheduled to meet with a surgeon specializing in surgical oncology next Friday. I’m assuming the next thing is a biopsy to confirm. This is disappointing and feels never ending, but I’m just going to research my options and do the next right thing. If anyone else has been in this situation (liver spot that shows up after chemo), please let me know!
36 year-old female
May 2017: Dx rectal cancer at T3N2M0
MSS, no genetic mutations
June-July 2017: 28 days of chemo/radiation
September 2017: laparoscopic LAR surgery with loop ileostomy
October 2017 - February 2018: six rounds of mop-up XELOX
March 12, 2018: reversal
April 16, 2018: CEA 2.1, all blood counts within normal ranges
May 2018: CT scan showed liver spot, MRI inconclusive
August 2018: PET abnormal, liver enzymes normal, CEA 2.4

stu
Posts: 759
Joined: Sat Aug 17, 2013 5:46 pm

Re: Liver spot - abnormal PET

Postby stu » Tue Aug 07, 2018 3:44 pm

We have “ spoken” already tonight .
:D
Just want to wish you all the very best with your appointment . They will get a good plan in place for you .
Take care,
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared

stu
Posts: 759
Joined: Sat Aug 17, 2013 5:46 pm

Re: Liver spot - abnormal PET

Postby stu » Tue Aug 07, 2018 3:57 pm

Hi ,
Just realised that your liver met is only one cm . That is a very small spread indeed . There will hopefully be lots of options for you and you can quickly put this behind you .
Take care,
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared

heiders33
Posts: 250
Joined: Sat Nov 04, 2017 11:08 am

Re: Liver spot - abnormal PET

Postby heiders33 » Wed Aug 08, 2018 8:21 am

I keep feeling little twinges in the general area of my liver, and I’m not sure if they’re real or if I’m just imagining things! I’m kind of on pins and needles until I can meet with my oncologist and surgeon on Monday. Also I think I will get a second opinion at MSK.
36 year-old female
May 2017: Dx rectal cancer at T3N2M0
MSS, no genetic mutations
June-July 2017: 28 days of chemo/radiation
September 2017: laparoscopic LAR surgery with loop ileostomy
October 2017 - February 2018: six rounds of mop-up XELOX
March 12, 2018: reversal
April 16, 2018: CEA 2.1, all blood counts within normal ranges
May 2018: CT scan showed liver spot, MRI inconclusive
August 2018: PET abnormal, liver enzymes normal, CEA 2.4

User avatar
susie0915
Posts: 818
Joined: Wed Aug 02, 2017 8:17 am
Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: Liver spot - abnormal PET

Postby susie0915 » Wed Aug 08, 2018 8:40 am

I m sorry you are going through this. As you know, meeting with the doctors and having a plan always seems to calm our nerves. Praying for a good appointment Monday with your oncologist. Hugs coming your way.
58 yrs old Dx @ 55
5/15 DX T3N0MO
6/15 5 wks chemo/rad
7/15 sigmoid/scar tissue left
8/15 Pet scan NED
9/15 LAR
0/24 nodes
10/15 Bowel blockage. surgery,early ileo rev, c-diff inf :(
12/15 6 rds of xelox
5/16 Clear CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 CT 4mm lung nod
7/17 no change lung nod
10/17 Clear pel/abd CT
11/17 CEA<.5
1/18 CT/Lung no change in 4mm nodule
5/18 CEA<.5, clear CT pel/abd/lung nod no change

mpbser
Posts: 430
Joined: Wed Apr 19, 2017 11:52 am

Re: Liver spot - abnormal PET

Postby mpbser » Wed Aug 08, 2018 9:17 am

Good luck on Monday. Fingers crossed for you!

I think a second opinion at MSK is a good idea, especially with "inconclusive" findings and if you aren't currently a patient at a top tier Cancer Center.
Wife 4/17 Dx age 45
5/17 - Lap left hemi
Adenocarcinoma
5 x 4 x 1 cm
low grade
T3 N2b M1a
Stage IV A
lymph nodes: 9 of 54
8/17 Sub-total colectomy
2nd tumor 5.5 cm T1 N0
CEA: 1.4, 2.1, 1.5, 1.9, 1.9, 2.1, 2.1, 2.4, 1.7, 2.0
MSS/MSI-L
Lynch no; KRAS wild
Immunohistochemsistry: Normal MLH1, MSH2, MSH6, and PMS2
Tumor DNA variants: MTOR, APC, TP53
Liver left hepatectomy seg 4 1/31/18
5/18 NED

teacher2017
Posts: 168
Joined: Sat Sep 09, 2017 1:18 pm
Facebook Username: Lydia Clark

Re: Liver spot - abnormal PET

Postby teacher2017 » Fri Aug 17, 2018 6:17 am

Yes we are in the same boat. I am meet with the surgeon today and will tell you why he suggests and the plan here. We will get through his one. It’s a bump in the road. We are not statistics. Let’s keep remembering that!
48 year old female- mom of 2 (12,15)
DX stage 3c - 12/17 LN. T3
8" sigmoid resection Sept 22 2017
6.1cm tumor size
chemo -folfox 11/8/17-4/18
CEA level- 1.4 11/8/17
Colonoscopy- 5/30/18 - CLEAR!
Cea level- 1.8 6/1/18
Cea level- 2.1. 8/4/18


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