I am comparatively early in the process, but I find that people *seem* to think that it will be "over" when I finish chemo. I just reached the halfway point in my 12 cycles of FOLFOX, so I am a neophyte.
Or maybe they just recognize that finishing chemo is a milestone, and they are hoping that positive thinking will help and want to encourage me?
For me, since I currently have no known masses, when people ask me about the future I just say that we hope the chemo mops up any stray cells and beyond that we just have to wait and see.
I too have wondered how long one goes on waiting for the other shoe to drop, so to speak, thinking of oneself as "having cancer." Do people who have been NED for 5 years or more still think of themselves as "having cancer"?
I was thinking about how long, should I be lucky enough to not have a recurrence within a year, say, I would go without having my port removed?
F, 64 at DX CRC Stage IV (or "3 1/2" per Dana Farber consult, LOL)
3/17/18 blockage, emergency surgery, r hemicolectomy
11 of 25 nodes
5 of 5 mesentery nodes, matted
0.5 cm sub-capsular liver met removed
pT3 pN2b pM1
Neg CEA, neg BRAF, KRAS G12D, germline mut ATM
dMMR, MSI-H, Neg for Lynch
Added Neulasta 6/28/18
7/9/18 CT scans show no masses or enlarged nodes, 2mm indeterminate lung nodule
11/20/18 CT scans NED. Lung nodule likely calcified granuloma. Enlarged spleen.