Well the radiation doctor said we could hope for a bit of shrinkage, and I may have gotten minimal shrinkage but mostly we were hoping it to help with the pain that I was having which was increasing at the time in that area. So for pain management is really what we were after and anything else would be a bonus. Not sure why they weren’t expecting more shrinkage.
Yes I have a couple trials in mind, my friend with metastatic breast cancer is trying to get into this one which I am also eligible for:
But also curious about this one specifically looking for MSS patients: NCT03473925
Then of course the Octane test trial I want to do definitely: NCT02906943
What about you? Any trials being considered?
rwightman wrote:Steph20021. UGH, not the response I was hoping to hear. I am wishing you the best on your CT results. Please let me know the outcome. I thought the SBRT was supposed to be every effective...were they surprised it didn't not eliminate the mets and spots in the abdomen?
DX 1/31/14 @ 33- SPS-T4a(invades visceral peri), N2a(6/106 LN), M1a(ovary) (Stage 4a) MSS; BRAF V600E
2/1/14-subtotal col, lost R ovary, temp ileo
3/14-9/14- folfox; sepsis
11/14-CT/PET: L ovary met, pelvic met, (?)ghost liver met(?)
12/14-folfiri -13 rds kept me stable from 3/15-6/15
09/15- cea 0.9
05/16- recurrence in abdo wall and lymph nodes
01/17- pulmonary embolism
02/17- 1 wk radiation to abdo wall
08/16- on folfiri
11/18- Beacon trial-encorafenib & cetuximab