ER Visit

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bitchslapped
Posts: 1483
Joined: Tue Sep 09, 2014 3:23 pm
Location: PNW/USA

Re: ER Visit

Postby bitchslapped » Thu Aug 02, 2018 8:41 pm

I don't think you're meant to take vacations, DE. Seems to me you had some serious flareup a few years ago just prior to a scheduled vacation. They say vacations can be stressful on the body. :) I hope you go in again if your pain & issues continue on like this!

Best Wishes
BS
DSS,35YO,unresect mCRC DX 7/'14,lvr,LN,peri,rib
FOLFOX+Avstn 4 Rnds d/c 10/'14
Stent 9/'14
FOLFIRI+Avstn 10/'14
Gone From My Sight 2/20/15
Me:garden variety polyps + precancerous polyp
Carergver x2 DH,DM dbl occupancy,'03-'10
DH dx 47YO mCRC,'04-'07 fried x HAI
DM dx CC 85YO,CC,CHF,stroke,dementia,aphasia

orlar
Posts: 65
Joined: Fri Jul 21, 2017 12:51 am
Location: oregon

Re: ER Visit

Postby orlar » Fri Aug 03, 2018 10:40 am

I'm surprised that you were discharged having active blood loss. Hopefully, the pain will subside and you can get back to a normal diet and enjoy that trip.
Take care of your self!

P.S. Getting a specialist appointment in the U.S. can sometimes take a while too! A lot depends on where you live.
56yo male DX 5/17, Right Hemi colectomy 6/17
Stage 3c 12 of 21 LN
7/17-12/17 Folfox(no Oxi round 9-12)
12/17 liver/lung mets-Stage 4 MSS KRAS G13D
2/18 liver doubled to 8.5cm+new met, lung mets to 1.4cm, multi peri/omen
2/18-7/18 Folfiri+Avastin(no 5FU after C2)
4/18 mets shrinking
7/18 liver/lung mets growing, Folfiri stopped
10/18 In Clinical Trial
CEA 5/17-16.2, 12/17-16.1, 02/18-43.0, 3/18-16.9, 4/18-9.0, 5/18-5.5, 6/18-6.9, 7/18-7.8, 9/18-56

DarknessEmbraced
Posts: 3128
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: ER Visit

Postby DarknessEmbraced » Sun Aug 05, 2018 8:35 am

I did have issues prior to a vacation last year and a couple of days during the vacation. Hopefully, things will settle down. I was having small clots and small amounts of blood and gas in the ER. Then I had nothing. I think because my colon was empty. Thanks everyone!
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17

AppleTree
Posts: 223
Joined: Fri Mar 18, 2016 8:16 am

Re: ER Visit

Postby AppleTree » Mon Aug 06, 2018 9:35 pm

I hope you are feeling better by the time you leave for vacation. Can you do liquid protein drinks? Ensure never agrees with me, but I get a powdered plant protein that I blend with Almond milk and banana. Nutritionalist told me today to try pea milk to boost the protein content.

Can you go to your primary Dr and get fast tracked for a colonoscopy?
Diag Feb 5, 2016 Age 45
3 cm tumor 5 cm from verge
Radiation + Xeloda pills - 3000mg 5x week
3/14 - 4/16 - 25 sessions
Shrank just over 50% L nodes 0/13
Remove rectum with temp Ileo 6/17
Reversal 7/20 due to infection
Acute hepatitis August. Chemo cancelled
June to September 2016 - 58 days in hospital

2017
6/16, MRI shadow in lung
Pet - 6.6mm Met in Upper right lobe
7/30 VAT surgery Mass General/Boston
8/24 port
8/30 - 4/28 Folfox. 12 rounds
2018
June CT shows new lung Mets.
July PET...CLEAR!

DarknessEmbraced
Posts: 3128
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: ER Visit

Postby DarknessEmbraced » Tue Aug 07, 2018 10:10 am

Unfortunately, protein drinks are expensive here. I would have to do rice or soy milk since I get anaphylaxis from tree nuts. Unfortunately, there is no fast tracking here. My family doctor is usually booked up so it's very hard to get in to see her. I will have to keep trying to get a hold of the GI's office. My family doctor would tell me to wait to see the GI. I think I'm going to only had solid food once a day in the morning and liquids the rest of the day because I have bad cramping and pain all the time.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17

DarknessEmbraced
Posts: 3128
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: ER Visit

Postby DarknessEmbraced » Tue Sep 18, 2018 10:01 am

My appointment with the GI isn't until November 21st even though I was in the ER July 31st with horrible pain and rectal bleeding. :( I knew he wouldn't take me seriously! My stomach has been awful since then!
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17

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bitchslapped
Posts: 1483
Joined: Tue Sep 09, 2014 3:23 pm
Location: PNW/USA

Re: ER Visit

Postby bitchslapped » Tue Sep 18, 2018 12:19 pm

DE, How about the turkey, rice, soy milk diet for a few days to rest. Allergy specialists sometimes recommend that b/c it is bland, highly tolerable, then advise patients to gradually add foods one @ a time to identify the problem foods. Protein drinks can firm up the bowel. If that's not what you want, maybe stay away from them for awhile. If stool firms up too much it can act as a "plug" so to speak causing liquid waste (diarrhea) to back up behind it, thus the constipation/diarrhea cycle. A real challenge to manage. Do you take Vit D to help manage inflammation or flaxseed oil capsules to aid in digestion? My DM suffered from IBS long before it was really recognized by the medical community. Colitis different I know, but she had very similar symptoms as you. Difficult to manage to be sure.

It can be a real Catch 22. Bland diets easy on the gut, yet problematic due to lack of fiber, so really have to play around w/it, which I'm sure you've done many times.

Best Wishes
BS
DSS,35YO,unresect mCRC DX 7/'14,lvr,LN,peri,rib
FOLFOX+Avstn 4 Rnds d/c 10/'14
Stent 9/'14
FOLFIRI+Avstn 10/'14
Gone From My Sight 2/20/15
Me:garden variety polyps + precancerous polyp
Carergver x2 DH,DM dbl occupancy,'03-'10
DH dx 47YO mCRC,'04-'07 fried x HAI
DM dx CC 85YO,CC,CHF,stroke,dementia,aphasia

DarknessEmbraced
Posts: 3128
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: ER Visit

Postby DarknessEmbraced » Tue Sep 18, 2018 12:31 pm

I usually just end up skipping a meal or going on liquids for a day or so. I eat fish and seafood but no other meat. I have issues no matter what I eat unfortunately. I keep a food diary where I keep track of what I eat along with symptoms. I have eliminated many foods since my colon resection. I can't take vitamin D because it makes my hyperparathyroidism symptoms much worse so I avoid it. I don't really take any supplements except two chewable vitamin C once in a while. I take dicetel(an anti-spasmodic) 3 times a day and I have buscopan. I can't take buscopan too often because there's a shortage right now. I only have a few buscopan left. I appreciate the advice though. Since surgery I either have many small bms a day, constipation or diarrhea. This year I have been trending toward constipation more. I can't take metamucil(too much cramping, diarrhea), stool softners(bad diarrhea) or anything like miralax(bad diarrhea). I'm on my period which makes everything worse.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17

RulaLenska
Posts: 19
Joined: Fri May 04, 2018 8:13 pm

Re: ER Visit

Postby RulaLenska » Tue Sep 18, 2018 7:32 pm

I’m sorry to hear about your ER troubles. I get sort of un nerved with these kinds of issues. I guess it scares me not knowing exactly what’s happening in there and then anxiety takes over. So when I get to this stage I take .5mg of lorazepam. Not so much that it knocks me out but enough to reduce the anxiety. Then I can try to refocus on food that I can eat without creating a problem. Sometimes it’s a cup of broth with a little baked potato blended in. Just smelling broth helps my appetite. Other times I’ll have a little Gerbers baby food, specifically pumpkin. I’ve been a dog sitter for a long time and the pumpkin for diarrhea can be the only thing that works for the puppers at times. It has worked for me too. Slows things down without going too far the other way. I really hope this resolves for you soon enough that you can travel.
Peace and health
Cyn
Dx 8/16 IV stage with mets to lungs liver adrenals
KRAS wt MSS CEA over 400
2 x folfori caused refractory diarrhea but dropped CEA to 200
Switched to folfox stopped after 10 due to neuropathy
Avastin leucorvorin 5fu dropped after 11 due to hfs
Chemo break to travel.
Nov. 2017 emergency sleeve colectomy of primary tumor.
Vectibix irinotecan
PET scan shows no lung or adrenal tumors
5/2 Portal Vein Embolisation in preparation for liver resection.
6/12 extended right resection removing 60%.

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peanut_8
Posts: 2272
Joined: Sun May 25, 2014 1:31 pm
Location: Capital of Texas

Re: ER Visit

Postby peanut_8 » Tue Sep 18, 2018 9:02 pm

I'm frustrated on your behalf, DE. Seems like your medical team has failed you. GRRRR.

Maybe try the BRAT diet? You probably know what it is, butt I'm including a link just in case. https://www.webmd.com/children/brat-diet.

Is Carnation Instant Breakfast powder available in your area? That may be more affordable than other protein drinks because of the powder. (less weight to ship?). I read a couple of the Amazon reviews on it, and a couple of people had bloating issues, butt many loved it.

(HUGS)
peanut
Terri aka peanut
diagnosed Jan 14, RC stage 2a, age 56
permanent colostomy
MSS
April 14, 28 chemo/rad with Xeloda
June 14 adjuvant Xeloda 6 rounds
currently NED

DarknessEmbraced
Posts: 3128
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: ER Visit

Postby DarknessEmbraced » Wed Sep 19, 2018 10:16 am

Thanks for the advice Rula and peanut!*hugs* I was able to enjoy your trip to Vancouver and West Edmonton Mall despite my stomach issues. I tried Carnation Instant Breakfast but it seems to make me feel worse. Today, my stomach is in knots and I have to keep rushing to the bathroom for softer bms. I'm having a lot of rectal pain and spasms! Yes our medical system has definitely failed me.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17


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