Cancer Again: Not Colon?

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Cured
Posts: 489
Joined: Thu Nov 27, 2008 10:53 pm
Location: MO

Cancer Again: Not Colon?

Postby Cured » Mon Jul 30, 2018 1:14 pm

3 days ago I had a craniotomy. They removed what they think is lung cancer, which was pressing against the brain.
It seems I have a bunch of cancer in my lungs, which is the next challenge.
It is all too freaky. I am 10 years cured from Rectal Cancer, and this isn't the source of the metastasized tumors, they say. Although we are waiting for the biopsy results.
They prioritized removing the hunk from my head. What was removed is being biopsied. It seemed odd to proceed before a biopsy.
I am home now, alive and functioning. Think, walk, talk. Have to make myself rest, so I will keep this note short. (I had hoped to post before the surgery, as this group is so supportive)

Please recommend sources/ links for Lung Cancer and a support group for it.

I am fortunate to have family and friends for support, and many prayers. 3 priests visited me and I was able to give Confession before surgery. We took communion 3 times this week (we are Greek Orthodox).
Who knows how long we have left on this earth?
Prayers are appreciated.

-Bill
Last edited by Cured on Sat Aug 04, 2018 6:22 pm, edited 1 time in total.
5-08:Stage 3 Rectal: 6/14 Nodes
Ace Surgeon Removed 90%Rectum & lots of Colon-Full Incision
Ileo Rev'd @6 Mos.
Radiation+5fu Pre-Surgery
FOLFOX 8 Cycles Done 1-09
Clear Scope 8-17; Clear CEA 2-18
Glory to God! Healed by prayers of many
7-18: tumor pressing against brain. Removed.

NHMike
Posts: 1557
Joined: Fri Jul 21, 2017 3:43 am

Re: Cancer Again: Not Colon

Postby NHMike » Tue Jul 31, 2018 8:01 am

A coworker was diagnosed a bit over two years ago with lung cancer. They did a biopsy and genomic tumor testing and determined that they had a drug to treat it. The tumor shrank and stabilized but started to grow again and it was biopsied and there was a tumor mutation. But they had a drug for that mutation as well. So he's still alive and the tumor is under control but he has to keep taking the drug. The drug is targeted so he doesn't have the problems that general chemo has on your whole body. The drugs are in pill form and just work on specific mutations.

It may be that your lung cancer mutation has a drug available for it if they can't remove it via surgery.
6/17: ER rectal bleeding; Colonoscopy
7/17: Stage 3B rectal. T3N1bM0. 5.2 x 4.5 x 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda +radiation
7/5: CEA 2.7; 8/16: 1.9; 9/8: 1.8; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8
MSS, KRAS G12D
10/17: 2.7 x 2.2 x 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx 8 cycles 12/17-6/18

Gloriamazz
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Facebook Username: gloriamazz@ yahoo.com
Location: Ohio
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Re: Cancer Again: Not Colon

Postby Gloriamazz » Tue Jul 31, 2018 10:40 am

Prayers. The Lord is with you

stu
Posts: 759
Joined: Sat Aug 17, 2013 5:46 pm

Re: Cancer Again: Not Colon

Postby stu » Tue Jul 31, 2018 2:06 pm

Hi ,
I think I remember you . So sorry to hear your latest news . That is rough news to process . Just want to pass on my love to you and your family . It was 2009 when my mum was diagnosed. Time flies!!
Once you get your treatment plan together you will be able to plan around it . Rest when you can .
Thinking of you .
Take special care,
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared

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Maggie Nell
Posts: 743
Joined: Wed May 27, 2015 1:57 am
Location: Melbourne, Australia

Re: Cancer Again: Not Colon

Postby Maggie Nell » Wed Aug 01, 2018 12:37 am

Image
DX April 2015, @ 54
35mm poorly diff. tumour found upon emergency r. hemicolectomy
for ileo-colic intussusception.
Lymph nodes: 0/22
T3 N0 MX

DarknessEmbraced
Posts: 3085
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Cancer Again: Not Colon

Postby DarknessEmbraced » Wed Aug 01, 2018 4:38 pm

I'm sorry you're going through this!*hugs* I hope your recovery goes well and that you won't have to wait long for biopsy results.*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17

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wwroam
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Facebook Username: Wayne Whitaker
Location: Brisbane, Australia
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Re: Cancer Again: Not Colon

Postby wwroam » Thu Aug 02, 2018 9:23 pm

Bill

I was Colon Stage 3a in 2007 and diagnosed with Stage 3A NSCLung Cancer last year.
I use LUNGevity to read and occasionaly post. Tom Galli is a real stand-up guy on that site.
At the time of diagnosis I was declared inoperable. I had a small 2.5cm tumour and 2 lymph nodes.
After 4 rounds of Gemcitibine + Carboplatin, 6 rounds of Taxol + Carboplatin and 30 hits of radiation, I am, almost to everyones surprise in remission.
I am under no illusions. Lung Cancer is a very persistent beast but I'm still here .
Best wishes
Wayne
Stage 3a DX 25/06/07
Folfox complete 30/01/08
7 years NED
Port scheduled for removal 8/02/10 Gone.
PSA .54 No prostate problems
Diagnosed Type 2 Diabetic
SO diagnosed CC Stage IV Liver Mets 23/03/15

SteveNZ
Posts: 124
Joined: Tue Apr 24, 2018 4:21 pm
Location: New Zealnd

Re: Cancer Again: Not Colon

Postby SteveNZ » Fri Aug 03, 2018 12:47 am

Wow. That sounds rough.
You are in my prayers
Aged 56 - I feel really young...
Colo-Rectal Cancer T2 N1 M0
March 2018 - Diagnosis
April-May 2018 Radiation+Chemo then a TIA (Minor Stroke). - Stopped Chemo.
June 2018 - Sitting it out before operation. ....Pretty Miserable- emotions gone weird....?!
*Decided to live to 100 as I will get a telegram from Her Majesty the Queen when 100yrs old. I so, so want one.
Am a Salvation Army chap so I complete 'knee drill' (prayer) to the Commander in Chief often. For myself personally this helps me through.

Cured
Posts: 489
Joined: Thu Nov 27, 2008 10:53 pm
Location: MO

Re: Cancer Again: Not Colon?

Postby Cured » Sat Aug 04, 2018 6:33 pm

Thanks all.
Wayne, you offer some encouragement.
The cancer removed from my head is adnocarcinoma.
Monday my whole body gets PET Scanned.
Tuesday bronciotomy. Lots yet to learn.

I feel good. Brain surgery feels easier than the colon surgery did.
Am resting at home.

Tests and Doctors most days this week.
5-08:Stage 3 Rectal: 6/14 Nodes
Ace Surgeon Removed 90%Rectum & lots of Colon-Full Incision
Ileo Rev'd @6 Mos.
Radiation+5fu Pre-Surgery
FOLFOX 8 Cycles Done 1-09
Clear Scope 8-17; Clear CEA 2-18
Glory to God! Healed by prayers of many
7-18: tumor pressing against brain. Removed.

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CRguy
Posts: 9567
Joined: Sun Feb 10, 2008 6:00 pm

Re: Cancer Again: Not Colon?

Postby CRguy » Sat Aug 04, 2018 10:29 pm

Hey homie,
the sucknitude of what you are going through
SUCKS SHIT !!! :evil:

The fact that you are back on forum AFTER surgery .......

WORD !
You had me at
I feel good.

We've gotchur back my friend

Harmony on the Journey
CRguy
Caregiver x 3
Stage IV A rectal cancer/lung met
11 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

Cured
Posts: 489
Joined: Thu Nov 27, 2008 10:53 pm
Location: MO

Re: Cancer Again: Not Colon?

Postby Cured » Wed Aug 08, 2018 3:30 pm

My Onc thinks it actually is colon cancer which is metastatic
Wants to begin FOLFORI
FIRST I need to heal some more from the crainiatomy, before implant of the power port.
And complete the pathologies, as only yesterday they pulled samples from in lungs.
And hope they also can match for Imunotherapy.
5-08:Stage 3 Rectal: 6/14 Nodes
Ace Surgeon Removed 90%Rectum & lots of Colon-Full Incision
Ileo Rev'd @6 Mos.
Radiation+5fu Pre-Surgery
FOLFOX 8 Cycles Done 1-09
Clear Scope 8-17; Clear CEA 2-18
Glory to God! Healed by prayers of many
7-18: tumor pressing against brain. Removed.

User avatar
wwroam
Posts: 746
Joined: Sun Apr 06, 2008 8:13 pm
Facebook Username: Wayne Whitaker
Location: Brisbane, Australia
Contact:

Re: Cancer Again: Not Colon?

Postby wwroam » Wed Aug 08, 2018 6:08 pm

Hi Bill
I might be an old grouchy Aussie but "thinks" isn't good enough.
The treatment for a lung cancer primary and metastasized colon cancer is quite different.
I had an EBUS biopsy not the old school mediastinoscopy and those results determined that my NSCLC was a new primary.
Best wishes
Wayne
Stage 3a DX 25/06/07
Folfox complete 30/01/08
7 years NED
Port scheduled for removal 8/02/10 Gone.
PSA .54 No prostate problems
Diagnosed Type 2 Diabetic
SO diagnosed CC Stage IV Liver Mets 23/03/15

Tarsal69
Posts: 44
Joined: Wed Oct 21, 2015 5:56 pm
Facebook Username: Howard Nelson

Re: Cancer Again: Not Colon?

Postby Tarsal69 » Wed Aug 08, 2018 9:27 pm

wwroam wrote:Hi Bill
I might be an old grouchy Aussie but "thinks" isn't good enough.
The treatment for a lung cancer primary and metastasized colon cancer is quite different.
I had an EBUS biopsy not the old school mediastinoscopy and those results determined that my NSCLC was a new primary.
Best wishes
Wayne

It looks like I am now facing a lung met I have a .8 cm solid nodule that they don’t know yet whether it’s a primary or a colon met either way the best rx would be to sx excuse it an I’m hearing it’s better if it’s a primary lesion wat to u know about which is worse an better to treat thanks
Stage 111b t3n2m0 dx7/22/15
Cea pre 7.4 post resection 2.
Folfox 10/9/15 to 1/18/16 clinical trial 6 txs with Celebrex
Waiting for first post tx scan late March
Cat scan 7/24/15 pet scan7/27/15 clean for any metastasis
Dx resection 8/5/15

Cured
Posts: 489
Joined: Thu Nov 27, 2008 10:53 pm
Location: MO

Re: Cancer Again: Not Colon?

Postby Cured » Sun Aug 12, 2018 7:21 am

My wife is anxious for me to begin chemo ASAP - since our Onc said he believes it is the way to go. However, I just had brain surgery 2 weeks ago and must allow more time for my body to heal before filling it with the aggressive chemicals.
Besides, they pulled samples from my lungs and it will take a while to get the results from them. And now how to find the possible match for Immuno-therapy?
5-08:Stage 3 Rectal: 6/14 Nodes
Ace Surgeon Removed 90%Rectum & lots of Colon-Full Incision
Ileo Rev'd @6 Mos.
Radiation+5fu Pre-Surgery
FOLFOX 8 Cycles Done 1-09
Clear Scope 8-17; Clear CEA 2-18
Glory to God! Healed by prayers of many
7-18: tumor pressing against brain. Removed.

User avatar
Maggie Nell
Posts: 743
Joined: Wed May 27, 2015 1:57 am
Location: Melbourne, Australia

Re: Cancer Again: Not Colon?

Postby Maggie Nell » Mon Aug 13, 2018 4:11 am

If you feel that your whole body needs more time to recuperate and to not be 'gung-ho' asap
with the chemo, then trust that. Your body, your call.
DX April 2015, @ 54
35mm poorly diff. tumour found upon emergency r. hemicolectomy
for ileo-colic intussusception.
Lymph nodes: 0/22
T3 N0 MX


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