A friend of my family was diagnosed with Stage IV CC with mets to the liver about 6 or so years ago. I believe she started with only one liver met and went through the usual treatments most patients do. She thought that at year 5, with NED, she was "cured." Shortly after that milestone, about a year and half ago, around the same time my husband was diagnosed, two new mets were found, one on lung and other on liver. It was a real blow. I don't know all the details but over the past year, the liver mets either multiplied or grew at an accelerated rate. It wasn't good. One lung met also appeared.
She had nearly half her liver ablated and/or chemo directly administered to her liver (I get this info third hand so I'm not sure exactly what was done) about 4 months ago. My aunt took care of her while in the hospital (aunt is a nurse with many years experience) and at her home. Family friend recovered amazingly. I saw her a month ago and I was really happy to see how well she looked given all that she has gone through of late.
I got a call from my aunt yesterday with the bad news that a scan she had shows that there is a new tumor on the liver and the one in her lung has increased in size. She has an appointment with her oncologist on August 8th. I have been thinking about suggesting that they go try MSK but I don't know how well-received the suggestion will be. I can't recall where her treatment is currently but I think it's either Johns Hopkins or Univ of Penn Med Center. My aunt seems to think the oncologist our friend has is wonderful, so I just don't know.
I didn't mention any of the new developments to my husband last night because I didn't want to ruin his night out with his friends. I told him about it this morning, and said that if he happens to have any recurrence (just being realistic but praying that won't ever be the case), we should consider Dr. Kenemy at MSK. He was very receptive to the idea which I have been putting off talking to him about for quite some time. *phew*
Praying for family friend.
Wife 4/17 Dx age 45
5/17 - Lap left hemi
5 x 4 x 1 cm
T3 N2b M1a
Stage IV A
lymph nodes: 9 of 54
8/17 Sub-total colectomy
2nd tumor 5.5 cm T1 N0
CEA: 1.4, 2.1, 1.5, 1.9, 1.9, 2.1, 2.1, 2.4, 1.7, 2.0
Lynch no; KRAS wild
Immunohistochemsistry: Normal MLH1, MSH2, MSH6, and PMS2
Tumor DNA variants: MTOR, APC, TP53
Liver left hepatectomy seg 4 1/31/18