My first infusion was a non-event. Rounds 2 and 3 were dreadful.
Gosh, you've had a rough ride - my sympathies. In the weird world I now live in, I truly appreciate how lucky I am that my cancer was caught and cut out with (almost) no prior symptoms or advance warning… I would not have coped well with the waiting and wondering.
I'm also conscious of the advice of @boxhill to not borrow trouble! I've seen this advice expressed in a number of ways across this board, and now that I've started my chemo, it's an attitude I'm working hard to adopt. I tend to be a catastrophist at the best of times, and I've now seen the practical benefits of dealing with the now
rather than worrying about the what if…
Thanks again to you all for the great advice and experiences. I was really struggling to imagine what the experience would be like for me. With one round under my belt and your experiences in my in-box, while I'm not taking anything for granted, I'm less daunted by a crippling fear of the unknown.
For others who are new to Folfox, I found that water and walking were useful for me in week one. The chemo nurse "prescribed" that I walk 10,000 steps a day and drink 3 litres of water every day. This, and fine-tuning my fibre intake, became my "job". When I was jittery or just feeling odd, I would walk… and the sense of control it gave me was worth more than the tiny endorphins it released.