Colon cancer: my treatment and side effects

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Caat55
Posts: 671
Joined: Sat Dec 23, 2017 6:01 pm

Re: Colon cancer: my treatment and side effects

Postby Caat55 » Sun Mar 03, 2019 10:13 pm

Isn't it nice to have the port gone? I have a little over a month to go before reversal. Trying to get loose ends wrapped up. I can do writing from home but need to see a lot of kids between now and then.
Good luck with the 5k. I am happy to be getting my 10000 steps in most days and get in my yoga.
Stay safe with the cold coming your way.
Susan
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds
CT NED 9/2018
PET NED 12/18
Clear Colonoscopy 2/19

Jannine
Posts: 175
Joined: Wed Jun 20, 2018 7:46 am
Location: Maryland, USA

Re: Colon cancer: my treatment and side effects

Postby Jannine » Sat Mar 16, 2019 10:20 pm

I managed to knock 2 minutes off my 5k time from last year (the numbers are not glorious; went from 43 minutes to 41 minutes of run/walking). I'm really happy to have done so well, given that I haven't been training steadily. I really thought I'd be lucky to match my time from last year.

Eventually I'm going to run the whole way on one of these races! :)
DX: sigmoid colon cancer 5/2018. 48 F
laparoscopic sigmoid resection (24 cm removed); no stoma.
7.5cm adenocarcinoma -- mod. diff.
1 noncontiguous tumor deposit removed; 0/31 lymph nodes
T3 pN1c M0
5/18 before surgery, CEA 11.2
6/18 began FOLFOX
7/18: CEA 1.9; added neulasta post infusion
9/18: CEA 2.8
10/18: 25% chemo reduction
11/18: CEA 1.8
7/19 CT scan clear

PatMc4
Posts: 1
Joined: Sun Mar 17, 2019 3:11 pm

Re: Colon cancer: my treatment and side effects

Postby PatMc4 » Sun Mar 17, 2019 4:09 pm

Hi, new to the forum, but have found it very interesting and helpful. I expect to have my 3rd round of FolFox next week, after having it postponed for 2 weeks due to low blood counts. I got lots of patient education material prior to starting treatment and fatigue seems to be the only side effect mentioned in the material that I have had. However, I had a mild case of shingles (which probably messed with those blood counts) and I was just diagnosed with a DVT behind my left knee. Once I started researching, I discovered that neither of these is particularly unusual. I was particularly surprised to read that cancer itself, chemo and having a port all increase the risk of DVT. I consider myself very fortunate so far and realize things can change at any time.

Jannine
Posts: 175
Joined: Wed Jun 20, 2018 7:46 am
Location: Maryland, USA

Re: Colon cancer: my treatment and side effects

Postby Jannine » Sun Mar 17, 2019 8:44 pm

Yikes. Good luck! I can't imagine dealing with both of those on top of dealing with chemo.
DX: sigmoid colon cancer 5/2018. 48 F
laparoscopic sigmoid resection (24 cm removed); no stoma.
7.5cm adenocarcinoma -- mod. diff.
1 noncontiguous tumor deposit removed; 0/31 lymph nodes
T3 pN1c M0
5/18 before surgery, CEA 11.2
6/18 began FOLFOX
7/18: CEA 1.9; added neulasta post infusion
9/18: CEA 2.8
10/18: 25% chemo reduction
11/18: CEA 1.8
7/19 CT scan clear

Jannine
Posts: 175
Joined: Wed Jun 20, 2018 7:46 am
Location: Maryland, USA

Re: Colon cancer: my treatment and side effects

Postby Jannine » Wed Oct 09, 2019 9:09 pm

It's been a while since I've posted to this thread, but: Had my bloodwork yesterday morning, CEA is holding steady at 1.8 and everything else looked fine. I'll have bloodwork and my 6-month CT scan in January. If that looks good she'll be pushing me back to an annual CT scan.

Over the summer I contracted c diff after my one-year colonoscopy. The colonoscopy looked great; no polyps, and only one diverticule. But I feel certain that the colonoscopy gave me c diff. I had c diff two more times, with only a couple of weeks between ending antibiotics and the c diff coming back each time. I met with a gastroenterologist after the last one, and we decided that if I got it again we were going to try a fecal transplant.

Fortunately it has now been two months and the c diff has not come back. Didn't have to give the fecal transplant a try yet. I am being fastidious about washing my hands, but I'm concerned that I really don't have much control over it coming back. I just have to hope that my gut is now healthy enough to fight it off if I do re-encounter it.

Metronidazole was what knocked it out, after two unsuccessful rounds of Vancomycin, the second of which was a pulse taper. Metronidazole isn't statistically as likely to be successful with a recurrent infection, I understand, but it somehow worked for me.
DX: sigmoid colon cancer 5/2018. 48 F
laparoscopic sigmoid resection (24 cm removed); no stoma.
7.5cm adenocarcinoma -- mod. diff.
1 noncontiguous tumor deposit removed; 0/31 lymph nodes
T3 pN1c M0
5/18 before surgery, CEA 11.2
6/18 began FOLFOX
7/18: CEA 1.9; added neulasta post infusion
9/18: CEA 2.8
10/18: 25% chemo reduction
11/18: CEA 1.8
7/19 CT scan clear


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