Well, today -- infusion #10 -- has been weird.
I got the same 25% cut in dosage as before, as I expected. My neuropathy showed up a week after Infusion 9, a week ago today, and has held steady and has only been mildly tingly in my feet and a little numb in my fingers when I rub them together. I did speak with my oncologist's nurse, and she said this is what they do when it's very mild and not painful. They had seen the note I entered in the system a week ago about my neuropathy. My oncologist is at a conference so was not there to see me (this was an off week for me to see her). I will see her the next time I go in for an infusion.
We finished up by 12:30pm, which was by far the earliest we've ever gotten out of there. We got lab results back very fast and also the chemo drug request went through very quickly. We ate downtown at a local deli/grill my husband likes, and then came home. When I got home I felt really lousy and my stomach felt off, so after I did a small work thing that was time sensitive and needed to be turned in today, I went to bed around 3pm. I woke up shortly before 8. I feel a whole lot better, but I hope I don't just lie awake most of the night. I had intended to drink lots of water to flush out the toxins today, so I'm now trying to catch up on that. I do think I needed the sleep, so I'm hopeful it'll be fine. I'll probably go to bed a bit late.
I was really surprised to sleep so long on an infusion afternoon; normally I don't get tired until disconnect day.
(Edited because it looks like I hadn't mentioned my onset of neuropathy in this thread yet)
Last edited by Jannine
on Fri Nov 09, 2018 9:20 pm, edited 2 times in total.
DX: sigmoid colon cancer 5/2018. 48 F
laparoscopic sigmoid resection (24 cm removed); no stoma.
7.5cm adenocarcinoma -- mod diff.
1 noncontiguous tumor deposit also removed; 0/31 lymph nodes
T3 pN1c M0
5/2018 before surgery, CEA 11.2
6/2018 began 12 infusions adjuvant FOLFOX; CEA 3.7
7/2018: CEA 1.9; added neulasta post infusion
9/2018: CEA 2.8
10/2018: CEA 2.4