Diagnosed with multiple bone mets

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teri3
Posts: 405
Joined: Fri Jan 09, 2015 11:03 am

Diagnosed with multiple bone mets

Postby teri3 » Tue Jul 24, 2018 7:31 pm

I seen my oncologist today and was diagnosed with multiple bones mets, the areas are very small at this point and not giving me any trouble. Internet search doesn't give a very promising prognosis. But we all know what internet searches give us lol. Anyone else dealing with this?
My health right now is really good other lung thingies and now bone thingies. You would never guess I was dealing with stage IV cancer. Just trying to see what I'm going to have to deal with. My oncologist says a lot of people deal with it for years.
Thanks
Teri
58 yrs old female
MSS KRAS mutation G12V
adenocarcinoma sigmoid colon dx 11-14
sigmoidectomy 11-14
Stage 3A
3 out of 20 lymph nodes involved
started FolFox 1-27-15
11 rounds FOLFOX last one 6-30-2015
7-29-2015 PET clear
5-14-2016 CT 2 nodules one in each lung
Confirmed pulmonary metastasis stage 4
FOLFIRi + Avistin started 8-16 11 rounds complete 12-16
CT 12-16 nodules shrunk chemo break wait and see :?
CT growth
VATS l lung 4 10 17
VATS r lung 4 24 17
CT 2 nodules r up and l low :(

WarriorSpouse
Posts: 220
Joined: Tue Aug 16, 2016 9:02 pm

Re: Diagnosed with multiple bone mets

Postby WarriorSpouse » Wed Jul 25, 2018 5:01 am

I am sorry to read your post, but I was happy to see your positive attitude and approach to your new normal. Every day may be a challenge, but you are well schooled in challenges since diagnosis. Keep moving forward and live a purposeful life with those you love. My thoughts are with you as you battle this new issue.
WS
D/H 47 years old, 10/2014, Stage IV M/CRC, nodes 12/15, para-aortic, 5 cm sigmoid resection, positive Virchow. KRAS mut, MSS, Highly Differentiated, Lynch Neg, 5FU/LV and Avastin 1 YR (Oxi for 5 months), Zeloda/Bev since 01/2016. 02/2019 recurrence para-nodes, back to 5FU/LV Oxy/Bev. It is working again. "...Perseverance is not a long race; it is many short races one after the other."-Walter Elliot

CLD
Posts: 206
Joined: Fri Mar 27, 2015 7:16 pm

Re: Diagnosed with multiple bone mets

Postby CLD » Wed Jul 25, 2018 5:05 am

So sorry to read this. I hope your Dr finds a treatment that helps you. Stay strong
Wife to DH/ Father of 6 (age 42 at dx) diagnosed Jan 2015 stage IIIC
Tumor deposit in mesentery 13/24 lymph nodes +
CEA at dx: 5
MSS
Low Grade/Mod. Diff.
FOLFOX 6 months
N.E.D until June 2018
PET Scan 6/18
Biopsy confirms cancer in 3 Paraaortic lymph nodes
Folfiri + Avastin (6tx) and Xeloda during radiation
Cancer all over both lungs dx Jan 2019
FOLFIRI +AVASTIN presently

teri3
Posts: 405
Joined: Fri Jan 09, 2015 11:03 am

Re: Diagnosed with multiple bone mets

Postby teri3 » Thu Jul 26, 2018 10:19 pm

Thank you Warrior spouse! Attitude is everything and no.matter were this takes me I've got to keep on keeping on. Life's to short not to make the best of it.
Teri
58 yrs old female
MSS KRAS mutation G12V
adenocarcinoma sigmoid colon dx 11-14
sigmoidectomy 11-14
Stage 3A
3 out of 20 lymph nodes involved
started FolFox 1-27-15
11 rounds FOLFOX last one 6-30-2015
7-29-2015 PET clear
5-14-2016 CT 2 nodules one in each lung
Confirmed pulmonary metastasis stage 4
FOLFIRi + Avistin started 8-16 11 rounds complete 12-16
CT 12-16 nodules shrunk chemo break wait and see :?
CT growth
VATS l lung 4 10 17
VATS r lung 4 24 17
CT 2 nodules r up and l low :(

teri3
Posts: 405
Joined: Fri Jan 09, 2015 11:03 am

Re: Diagnosed with multiple bone mets

Postby teri3 » Thu Jul 26, 2018 10:23 pm

Thanks CLD. When does your DH get his bone biopsy? They aren't schedule one for me the bone scan was pretty conclusive. Please let me know how things go.
Prayers to you both
Teri
58 yrs old female
MSS KRAS mutation G12V
adenocarcinoma sigmoid colon dx 11-14
sigmoidectomy 11-14
Stage 3A
3 out of 20 lymph nodes involved
started FolFox 1-27-15
11 rounds FOLFOX last one 6-30-2015
7-29-2015 PET clear
5-14-2016 CT 2 nodules one in each lung
Confirmed pulmonary metastasis stage 4
FOLFIRi + Avistin started 8-16 11 rounds complete 12-16
CT 12-16 nodules shrunk chemo break wait and see :?
CT growth
VATS l lung 4 10 17
VATS r lung 4 24 17
CT 2 nodules r up and l low :(

CLD
Posts: 206
Joined: Fri Mar 27, 2015 7:16 pm

Re: Diagnosed with multiple bone mets

Postby CLD » Fri Jul 27, 2018 3:45 pm

Hi Teri, Bone biopsy will be done pending his scheduled MRIs the first week of August. The Interventional Radiologist said he didn't think they were cancer, so that's the hope we are clinging onto right now. I just posted todays events in a new post. Hope you are doing well.
Wife to DH/ Father of 6 (age 42 at dx) diagnosed Jan 2015 stage IIIC
Tumor deposit in mesentery 13/24 lymph nodes +
CEA at dx: 5
MSS
Low Grade/Mod. Diff.
FOLFOX 6 months
N.E.D until June 2018
PET Scan 6/18
Biopsy confirms cancer in 3 Paraaortic lymph nodes
Folfiri + Avastin (6tx) and Xeloda during radiation
Cancer all over both lungs dx Jan 2019
FOLFIRI +AVASTIN presently

teri3
Posts: 405
Joined: Fri Jan 09, 2015 11:03 am

Re: Diagnosed with multiple bone mets

Postby teri3 » Sat Jul 28, 2018 9:39 pm

Thank you for the update! Prayers
Hugs
Teri
58 yrs old female
MSS KRAS mutation G12V
adenocarcinoma sigmoid colon dx 11-14
sigmoidectomy 11-14
Stage 3A
3 out of 20 lymph nodes involved
started FolFox 1-27-15
11 rounds FOLFOX last one 6-30-2015
7-29-2015 PET clear
5-14-2016 CT 2 nodules one in each lung
Confirmed pulmonary metastasis stage 4
FOLFIRi + Avistin started 8-16 11 rounds complete 12-16
CT 12-16 nodules shrunk chemo break wait and see :?
CT growth
VATS l lung 4 10 17
VATS r lung 4 24 17
CT 2 nodules r up and l low :(


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