DH has had his colostomy for almost 2 years now. The restructure failed a week after the surgery, resulting in sepsis. Surgeon said the intestines were just too weak to hold but he wanted to give DH a chance at it. I wish we had chosen the ostomy going in because the sepsis delayed treatment by at least a month.
DH goes to work on non-chemo days via the subway and makes sure he has adequate supplies in his briefcase and in the office. The only thing he hasn't done is go in the ocean/pool with his pouch but he was never big on this anyway. We've been to Italy, on a cruise, to Disney, etc. There are websites/blogs we've read to pick up tips/tricks. For example, the pouching system he uses now is not what we were shown in the hospital.
Do ask for other surgical/medical opinions on surgery/treatment. Do not let anyone tell you that an ostomy will slow you down!
Caregiver to DH, dx @ 50, mets to liver/lungs, MSS, wild
9/16 CEA 114, blockage, left hemi, perm. colostomy
11/16 port in, FOLFOX + Avastin
6/17 CEA 15, 5FU + A only due to neuropathy
11/17 CEA 38, CAPOX + A
1/18 CAPOX = hi bilirubin/bad hfs, back to FOLFOX + A
5/18 growth; Vectibex + 75% Irinotecan
7/18 CEA 23, shrinkage
10/18 CEA 28, growth of 2 liver tumors/shrinkage of few and lung nodes
11/18 Lonsurf, looking at spheres, proton, trials