DH has had his colostomy for almost 2 years now. The restructure failed a week after the surgery, resulting in sepsis. Surgeon said the intestines were just too weak to hold but he wanted to give DH a chance at it. I wish we had chosen the ostomy going in because the sepsis delayed treatment by at least a month.
DH goes to work on non-chemo days via the subway and makes sure he has adequate supplies in his briefcase and in the office. The only thing he hasn't done is go in the ocean/pool with his pouch but he was never big on this anyway. We've been to Italy, on a cruise, to Disney, etc. There are websites/blogs we've read to pick up tips/tricks. For example, the pouching system he uses now is not what we were shown in the hospital.
Do ask for other surgical/medical opinions on surgery/treatment. Do not let anyone tell you that an ostomy will slow you down!
Caregiver to DH, dx @ 50, mets to liver/lungs/lymphs, MSS, quad wild
10/16: CEA 114, partial blockage, left hemi, perm. colostomy
11/16: port in, FOLFOX+Avastin
4/17: CEA 11
6/17: CEA 15, 5FU+A only due to neuropathy
11/17: CEA 38, CAPOX+A
12/17: CEA 29
1/18: CAPOX caused hi bilirubin/bad hfs, back to FOLFOX+A
5/18: growth + ascites; 6.4 bilirubin, change to Vectibex/Irinitecan
8/18: .9 bilirubin, CEA 31, shrinkage/no ascites