Has anyone received a Chronic Lukemia diagnoses post colorectal cancer?

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StupidAssCancer
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Location: Utah

Has anyone received a Chronic Lukemia diagnoses post colorectal cancer?

Postby StupidAssCancer » Thu Jul 19, 2018 6:49 pm

Has anyone received a Chronic Lukemia diagnoses post colorectal cancer? I just went in for my annual and my dr is putting me through a host of testing as she thinks I have Chronic Luekemia. I know nothing about this but am curious if there is a link between colorectal Cancer and this lukemia? Also is it a metastasis or its own Cancer? And lastly what have you done to treat it if you also have been given this diagnoses? My original colorectal diagnoses was 5 years ago
Thank you much for your answers.
Stage 3c Colorectal Cancer
Surgery March 2013 Jpouch Temp Iliostomy
May 2013Chemo Infusions 5-FU Oxi Lev-Allergic
Radiation w/Xeloda Chemo-Allergic
Oct 2013 Reversal of Ostomy Nov 2013 Perm Ileostomy
Feb 2016 Ostomy collapsed moved to other side
Jun 2016 colon removed permanent ileostomy
Jul 2018 Chronic Luekemia diagnoses

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CRguy
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Joined: Sun Feb 10, 2008 6:00 pm

Re: Has anyone received a Chronic Lukemia diagnoses post colorectal cancer?

Postby CRguy » Thu Jul 19, 2018 10:27 pm

Hey homie
sorry you are faced with more challenges ... BUTT ... the fact that your docs are upping their game
and pushing for more info = GOOD !

Get all the info
plan your work
then
WORK YOUR PLAN

WORD !

Harmony
CRguy on the journey
Caregiver x 3
Stage IV A rectal cancer/lung met
11 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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StupidAssCancer
Posts: 65
Joined: Sun Sep 29, 2013 9:24 pm
Facebook Username: Alys.Geertsen
Location: Utah

Re: Has anyone received a Chronic Lukemia diagnoses post colorectal cancer?

Postby StupidAssCancer » Thu Jul 19, 2018 10:35 pm

Thank you, yes totally will make my plan. I was just curious if we are seeing this as a result of treaatment it Therapy to our original Cancer/chemo.
Thank you got your words of encouragement :D
Stage 3c Colorectal Cancer
Surgery March 2013 Jpouch Temp Iliostomy
May 2013Chemo Infusions 5-FU Oxi Lev-Allergic
Radiation w/Xeloda Chemo-Allergic
Oct 2013 Reversal of Ostomy Nov 2013 Perm Ileostomy
Feb 2016 Ostomy collapsed moved to other side
Jun 2016 colon removed permanent ileostomy
Jul 2018 Chronic Luekemia diagnoses

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CRguy
Posts: 9613
Joined: Sun Feb 10, 2008 6:00 pm

Re: Has anyone received a Chronic Lukemia diagnoses post colorectal cancer?

Postby CRguy » Thu Jul 19, 2018 11:39 pm

I cannot recall specifically if anyone here had a confirmed leukemia Dx post CRC treatment.
I had persistently low lymphocytes for about 2 years + after chemoradiation with no other CBC abnormalities and that all slowly got back to "normal"

An actual Dx of say, CLL could have a number of causes, some of which may include prior cancers and chemo / radiation etc.
BUTT ... AFAIK I know of no direct causality / link specifically to what we get as CRC'ers

Getting all the testing done to get the info is what is needed, 'cos sometimes the changes in lab results are NOT actual diseases
like we have gone through.
If not ... that is GOOD
If so .. than as I said, better your docs are ahead of it by getting the tests done = GOOD docs !

Keep us in the loop sista'
we are here for you !!!

Cheers
CRguy
Caregiver x 3
Stage IV A rectal cancer/lung met
11 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

rp1954
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Joined: Mon Jun 13, 2011 1:13 am

Re: Has anyone received a Chronic Lukemia diagnoses post colorectal cancer?

Postby rp1954 » Fri Jul 20, 2018 12:33 am

Chemotherapy and radiotherapy have some cumulative risk for dysplasia and leukemia. Chemo for CRC is not considered especially problematic although there is a tendency to not much acknowledge common treatment dysplasias either. Other problems have historically been considered more critical.

A Colon Club forum member who has discussed CML is Traci43, at CSN these days. It is a problem to distinguish de novo chronic leukemia from treatment related chronic leukemia and it has pretty low coverage in the literature. With acute leukemia drs do routinely distinguish between treatment related and de novo acute leukemia.

In the medical literature there are long term upper MCV values that associate with later risk of treatment related leukemia, particularly some drugs for other cancers. MCV is a consideration in chemo intensity for us, upper (leukemia risk) and lower (to be active enough against cancer). In my wife's immunochemo regimen, things that are described to ameliorate some dysplasias and leukemia cells include natural folate sources, PSK (a special hot water Coriolus mushroom extract), the human form of vitamin K2 (menatetrenone aka menaquinone-4), and IV vitamin C.
watchful, active caregiver for stage IVb CC since early 2010. immuno"Chemo forever," for mCRC

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StupidAssCancer
Posts: 65
Joined: Sun Sep 29, 2013 9:24 pm
Facebook Username: Alys.Geertsen
Location: Utah

Re: Has anyone received a Chronic Lukemia diagnoses post colorectal cancer?

Postby StupidAssCancer » Fri Jul 20, 2018 9:04 am

Thank you so very much for taking the time to delve into this with me. I had found some literature but not much on it so hearing personal case stories is always where I find my greatest education through my progress with this cancer etc.
The tips you shared are priceless. Thank you! I will have a certain diagnoses on Thursday and I’m sure will be back with more questions at that point.
My very best to you and your wife,
Alys
Stage 3c Colorectal Cancer
Surgery March 2013 Jpouch Temp Iliostomy
May 2013Chemo Infusions 5-FU Oxi Lev-Allergic
Radiation w/Xeloda Chemo-Allergic
Oct 2013 Reversal of Ostomy Nov 2013 Perm Ileostomy
Feb 2016 Ostomy collapsed moved to other side
Jun 2016 colon removed permanent ileostomy
Jul 2018 Chronic Luekemia diagnoses

DarknessEmbraced
Posts: 3128
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Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Has anyone received a Chronic Lukemia diagnoses post colorectal cancer?

Postby DarknessEmbraced » Sat Jul 21, 2018 10:57 am

I'm sorry you're going through this and hope you won't have to wait long for answers!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17

User avatar
StupidAssCancer
Posts: 65
Joined: Sun Sep 29, 2013 9:24 pm
Facebook Username: Alys.Geertsen
Location: Utah

Re: Has anyone received a Chronic Lukemia diagnoses post colorectal cancer?

Postby StupidAssCancer » Sun Jul 22, 2018 7:33 pm

Thank you.... I’m very anxious to get some answers.
Stage 3c Colorectal Cancer
Surgery March 2013 Jpouch Temp Iliostomy
May 2013Chemo Infusions 5-FU Oxi Lev-Allergic
Radiation w/Xeloda Chemo-Allergic
Oct 2013 Reversal of Ostomy Nov 2013 Perm Ileostomy
Feb 2016 Ostomy collapsed moved to other side
Jun 2016 colon removed permanent ileostomy
Jul 2018 Chronic Luekemia diagnoses


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